Bild 1

1
Respite care
A model for carrying it out at Ågrenska in Sweden
Gunilla Jaeger Ågrenska 2006
2
Ågrenska a centre for children, teenagers and
adults with disabilities and their families
Gunilla Jaeger Ågrenska 2006
3
Ågrenska - todays programsFamily stays
focus on rare diseases Stays for adults
focus on rare diseases Respite care ADHD
consultant Staff with disabilities - day
centre Courses for professionals
Gunilla Jaeger Ågrenska 2006
4
Development- All children grow up at home
- Modern parents modern demands -
Increasing need for respite service
Gunilla Jaeger Ågrenska 2006
5
Based upon International Documents
- Convention on Human Rights - Convention on the
Rights of the Child (1989) - Standard Rules on
the Equalization of Opportunities for Persons
with Disabilities (1993)
Gunilla Jaeger Ågrenska 2006
6

• 1994 Act on Support and Services for
• Certain Persons with Functional Impairments
• - Respite care one of the ten rights
• - City councils responsible

Gunilla Jaeger Ågrenska 2006
7
Respite care

• - Started with three groups 1989
• Altogether 15 participants
• Gradually developed more groups

Gunilla Jaeger Ågrenska 2006
8
Childrens Staff at Ågrenska work with all
programs

• Preschool teachers, teachers
• Nurses
• Occupational therapist
• Recreational specialists

Gunilla Jaeger Ågrenska 2006
9
Childrens staff

• In respite care also intermittently hired staff
• - Number of staff set according to needs of each
  group

Gunilla Jaeger Ågrenska 2006
10
Respite care

• Aims
• Rest for parents and siblings.
• Start cutting bonds to parents
• Social development refining
• social skills.

Gunilla Jaeger Ågrenska 2006
11
Respite care

• Help to prepare for adult life, new
• aspects to be considered
• Important issues
• Where to live and together
• with whom?
• What kind of occupation can
• i handle?

Gunilla Jaeger Ågrenska 2006
12
Respite careMethods

• - Continuity and fixed groups
• Homogenous groups
• Carefully planned contents
• Competent staff
• - Long term planning
• Evaluation
• Documentation

Gunilla Jaeger Ågrenska 2006
13
Experience - parents

• - Competent staff condition for trust
• Appreciate long term planning
• Appreciate homogenous groups

Gunilla Jaeger Ågrenska 2006
14
Experience - participants

• - Like it
• Appreciate friends and activities
• Can relax themselves

Gunilla Jaeger Ågrenska 2006
15
Experience - authorities

• - Very good reputation
• Long queue

Gunilla Jaeger Ågrenska 2006