Service User Involvement in pathways to recovery

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Service User Involvement in pathways to recovery
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What is Borderline UK?

• Borderline UK Ltd is an internet based network
  of people diagnosed with or meeting the criteria
  for any PD, professionals working with people
  with PD and PD carers.
• Primarily we work to support people affected by
  PD in the UK. At the moment we do this through
  internet based support groups, supported
  volunteering and involvement work and information
  provision.
• Alongside this the organisation also aims to
  raise awareness of PD, combat prejudice and
  stigma and assist in the development of services.
• Founded in 2000, the organisation is the oldest
  and largest PD service-user led group of its kind.

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Real Service User Involvement...

• Has genuine purpose and function
• Is mutually agreed, and is informed by honest,
  two-way discussion
• Has a real feeling of being in it together
• Can change or develop dependent on the needs of
  SUs or of the service

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SU involvement Recovery

• Self - esteem
• Routine and Purpose
• Re-framing a difficult period in our lives
• Developing new skills that will help us in the
  future
• Enabling a more gradual leaving from services
  that might not otherwise be possible
• Thats the easy part...

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SU Involvement staying sick

• For SUs
• Retention of a comfortable and familiar identity
• Remaining in a known world
• Feeling a need to not fully recover for fear
  of losing job or role
• For Staff
• Difficulty in adjusting to new boundaries
• Struggles with expectations
• Professional Protectivism

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Moving on together

• Nothing lasts forever...
• Dont get lost in the label debate...
• Open, frank, honest talk is the only way
  forward
• Expectations
• Concerns
• Changes
• Budgets payment
• Remember that were not after your jobs!