Demonstration Projects

1
Demonstration Projects

• General Objectives
• Reduce treatment gap and social and physical
  burden
• Educate health personnel
• Dispel stigma
• Develop models for promotion of epilepsy control
  world wide
• Integration of epilepsy care in health systems

2
Coordination of Demonstration Projects

• AFRO Senegal, Zimbabwe, Congo, Cameroon,
  Rwanda
• AMRO Brazil, Honduras
• EMRO Pakistan, Afghanistan, Djibouti, Sudan
  Somalia, Yemen
• EURO Georgia, ?
• SEARO D.P. Korea, India, Indonesia, Myanmar
  Nepal
• WPRO China, Mongolia

3
Demonstration Project China

• Prior to demonstration project
  Prevalence 5.000.000
• Treatment Gap 30
• After demonstration project Prevalence 9 -
  12.000.000
• Treatment Gap 65

Prevalence treatment gap grossly underestimated
4
Demonstration Project China

• Approval by Ministry of Health
• Expansion 6 16 provinces
• 2.5 40 million inhabitants
• Epilepsy care to be included in primary care in
  rural China
• Funding administrative financial support
  through local governments

Project Sustainable
5
Demonstration Project Brazil

• Situation assessment
• Life-time prevalence of epilepsy 9.2/1000
• Prevalence of active epilepsy 5.4/1000
• Treatment gap 38
• Outcome assessment Model of epilepsy treatment
  at primary health level based on the existing
  health system is effective providng important
  reductions in seizure frquency and general well
  being
• Epilepsy has been officially adopted as a theme
  to be considered in elementary education by the
  Ministry of Education
• A National Epilepsy Programme is under review at
  the Ministry of Health

6
Demonstration Projects

• Ultimate Goal
• Development of a variety of successful models of
  epilepsy control that can be integrated into the
  health care systems of the participating
  countries and regions and, finally, applied on a
  global level

7
Development of Guidelines

• Within GCAE framework guidelines to be developed
  on
• treatment in childhood and adolescence
• burden of epilepsy
• treatment with essential drugs
• Ongoing
• Evidence based guidelines for diagnosis and
  treatment of neonatal seizures in developing
  countries
• Facilitator WHO Collaborating Centre Oasi
  Centre, Italy
• Involvement ILAE/IBE/WHO experts

8
Epilepsy and Legislation Project

• Background
• Laws impacting people with epilepsy