NKO

1
NKO

• Lars Lidgren 4 may 2007

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NKO
Director Jonas Ranstam

• Statisticians
• Quality manager
• Systems manager
• Project secretary

• Research assistants
• Associated experts (Health Economics,
  Bioinformatics)

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Registers associated with NKO 2007
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National registers associated with NKOSupported
by the National Board of Health and Welfare

• Swedish Shoulder Arthroplasty Register
• Swedish Knee Arthroplasty Register
• Swedish Hip Fracture Register
• Swedish Hip Arthroplasty Register
• Swedish Cruciate Ligament Register
• Swedish Spine Register
• Children with Cerebral Palsy Register (CPUP)
• Children RA Register

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Other patient registers in the musculoskeletal
area associated with NKO

• Swedish Hand Arthroplasty Register
• Nordic Gait Analysis Register
• Rheumatic Surgery Register
• Scleroderma Register
• Systemic Vasculitis Register
• Southern Sweden Arthritis Therapy Group Register
  (SSATG)
• Scandinavian Sarcoma Group Register
• Swedish Ankle Arthroplasty Register

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Other registers associated with NKO

• The thyroid register
• Scandinavian patient register for follow up of
  thyroid and parathyroid surgery
• The indication register
• A national study of current indications for hip
  and knee joint arthroplasty
• The clinical trials registry
• Compliant with ICMJEs and WHO's requirements.
  Uses a simplified registration process.
• Further registers in pipeline.

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Registers available for record linkage with NKO
registers (after approval)

• Population register
• Cause of death register
• Health and disease registers
• Patient registers
• Twin register
• Tumour register
• Registers administrated by The Swedish Social
  Insurance Administration
• Etc.

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Reports
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3C - a general and dynamic database system for
collecting data and maintaining registers
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3C
Comporto Form creation and register
administration tool Registration of patient data
(Web) Computo Analysis and reporting module
based on the R-project Comedius Secure internet
communication tool
Computo was the best IT-idea of the year 2005 in
the Swedish health care according to the
newspaper Dagens Medicin.
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Meta database for data of musculoskeletal
disorders Coordination and documentation of
current registers
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NKO
National Board of Health and Welfare
- SCB - etc.
uncoordinated, inadequately
documented registers in a
number of technical formats with
unknown data definitions and unclear
rules for utilization
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NKO
National Board of Health and Welfare
- SCB - etc.
Well defined registers in different technical
data base system systems with distinct data
definitions and common procedures
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• Thank you for listening