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Belgian PID Registry
CLaire-Michele Farber, MD, PhD CUB Erasme,
Brussels, Belgium
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Belgian PID registry
o Registry still on paper (see limitations
imposed by the local Protection of Privacy
Commission o Documentation began in 1990, with
sharp increase in 1997. Patients identified
through name of reporting
physician and number. o Documenting centres
University Hospitals of Antwerp, Brussels, Ghent,
Liege Hopital St Joseph Montegnee. o 253
cases/10 6 inhabitants.

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Belgian PID registry
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Belgian PID registry

• o Perspectives
• Use data for collaboration in diagnosis,
  management, studies
• Participate in international registers
  whilerespecting Belgian privacy laws
• Increase awareness of PID reach internists and
  GP (not enough ab deficiencies-gt not enough CVID
  ( 2nd peak of incidence 20-30 years of age)
• Save lifes!