Diapositiva 1

1
Sicily Region
Health Department Celiac Disease Program
Background 5.000.000 inhabitants Expected celiac
patients 50.000 Known celiac patients
10.000 Missing patients 40.000 Overdiagnosis Incre
asing cost for gluten free products reimbursement
2
Sicily Region
Health Department Celiac Disease Program
Objectives Celiac disease network for diagnosis
and follow up Pediatrician and GP awareness
increase for celiac disease Celiac disease
Registry Budget re-evaluation for gluten-free
products reimbursement
How to pursue this objectives?
3
Sicily Region
Health Department

• Hub and Spoke Service Delivery Model
• One or few sites act as a principal base
  providing centralized support or activities to
  satellite sites which are connected to the
  principal site
• There will be identified principal and satellite
  sites
• The hub and spokes will have shared
  organizational and clinical Governance
• - There will be shared information management and
  information technology

4
Sicily Region
Health Department
The Celiac Disease Program hub and spoke model
allows for opportunities for a range of
arrangements, including (but not limited to) the
following examples Within the hub, allied
health services, preventive and/or specialist
clinics are provided training and education
opportunities may be offered and administrative
support only is provided to spokes In addition
to the arrangements at example no.1, allied
health services, preventive and/or specialist
clinics are provided on an outreach basis to
spokes
5
Sicily Region
Health Department

• Hub and Spoke Service Delivery Models
• One or few sites act as a principal base
  providing centralized support or activities to
  satellite sites which are connected to the
  principal site
• There will be identified principal and satellite
  sites
• The hub and spokes will have shared
  organizational and clinical Governance
• - There will be shared information management and
  information technology

6
Sicily Region
Health Department
Database construction (AIC and HD joint
venture) Demographic data Symptoms or signs
Serology Endoscopy Histology Genetics if
serology not done or discordant with histology
Database utilization for Certification Registry
with follow-up gluten free diet cost data
7
Case finding study enrollment criteria
8
May we share this model and facilities in
MEDI-CEL?