Integrated State Data Systems

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Integrated State Data Systems

• Walter P. Pete Bailey, M.P.H.

2
South Carolinas Integrated Health and Human
Services Data System

• All Payer Health Care Utilization Data
  (Inpatient, ER, Etc.)
• Medicaid Eligibility and Claims
• State Employee/teachers Health Plan Eligibility
  and Claims
• Vital Records
• State Agency Program Data
• Other

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Linking Individual Records Using a Unique
Tracking Number

• Personal identifiers used solely to determine if
  individual is already in our system
• Each individual is assigned a number that stays
  with them perpetually
• Unique tracking number randomized so identity can
  never be discovered
• Personal identifiers removed from statistical
  records

4
Integrated Data vs. Administrative Data

• Monitor change over time
• Define specific sub-populations at an individual
  level
• Link members of sub-population with various
  program data to identify characteristics
• Use of Social Service
• Relationship to Criminal Justice
• Performance in School
• Health Problems

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Integrated Data vs. Administrative Data Number
of Special Needs Children by Agencies and Data
Source
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Example of Use of Integrated Data System in SC
Free Reduced Lunch Medicaid Children Linked
to Public School Performance English Language
Arts Test Scores PACT Exam Poor
Non-Poor1999 2000 School Year, South Carolina
Data linked as part of a cooperative agreement
between the Department of Education, SC Education
Oversight Committee, SC Department of Health and
Human Services, and SC Department of Social
Services.
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Uses for the Safety Net Population Estimating the
SC Safety Net PopulationLinking Unduplicating
Medicaid, TANF, Food Stamps, Uninsured
Hospitalizations, ER Visits Outpatient
SurgeriesFree Clinics will be added when data
is available
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Uses in Enrollment in SCHIP

• Linkage of uninsured inpatient and ER, food stamp
  clients with Medicaid eligibility
• Identified those still uninsured at points in
  time
• Mapped at census block level to highlight areas
  for outreach
• Linked school free reduced lunch files to
  Medicaid eligibility to identify school districts
  for priority outreach

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Helpful Qualities in Building an Integrated Data
System

• Neutral Organization
• Non-service Provider
• Trusted Organization
• Preserve Existing Power Structure
• Respect Partner Roles
• Appropriate Control of Data