CDCs National Center on Birth Defects and Developmental Disabilities

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CDCs National Center onBirth Defects and
Developmental Disabilities
Birth Defects and Developmental
DisabilitiesHereditary Blood DisordersHuman
Development and DisabilityAligning our
Future by José F. Cordero, MD, MPH
Assistant Surgeon General Director,
National Center on Birth Defects and
Developmental Disabilities, Centers for
Disease Control and PreventionCityMatch
Conference, September 14, 2004, Portland Oregon
Promoting the health of babies, children, and
adults, and enhancingthe potential for full,
productive living
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CDCs Organization Prior to Futures Initiative
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Operational Perspective of the New Customer
Centric CDC Organizational Chart
Office of the Director
Coordinating Center for Environmental
and Occupational Health and Injury Prevention
Coordinating Center for Health Promotion
Coordinating Center for Public Health
Information and Services
Channels
People Living in All Communities
Partners
Alliances
Stakeholders
Office of Terrorism Preparedness and Response
Coordinating Center for Infectious Diseases
Office of Global Health
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CustomersSAFER ? HEALTHIER ? PEOPLE
Alliances
Channels
Partners
Stakeholders
Business
Public Health Systems
Health Care Delivery
Federal Agencies
Education
Coordinating Center for Health Information and
Services
National Center for Health Marketing
National Center for Public Health Informatics
National Center for Health Statistics
Coordinating Center for Infectious
Diseases NCID, NCHSTP, NIP
Coordinating Center for Health
Promotion NCCDPHP, NCBDDD, Genomics
Coordinating Center for Environmental and
Occupational Health and Injury
Prevention NCEH/ATSDR NCIPC, NIOSH
Office of Global Health
Office for Terrorism Preparedness Emergency
Response
Executive Leadership Team
Management Council
Executive Board
Strategy and Innovation
Chief of Science
Chief of Public Health Improvement
Workforce and Career Development
Office of the Chief of Staff
Director
Office of the Chief Operating Officer
CDC Washington
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Health Protection Goals

• Preparedness
• People in all communities will be protected
  from infectious, environmental, and terrorist
  threats.
• Health Promotion Prevention of Disease, Injury,
  and Disability
• All people will achieve their optimal
  lifespan with the best possible quality of health
  in every stage of life

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The Role of Coordinating Center for Health
Promotion

• Minimize silos
• Identify and capitalize on opportunities for
  coordination of research
• Decrease duplication and redundant activities
• Provide leadership, management, and
  accountability for cross-center goals

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Why the Futures Initiative Matters

• Health impact
• CDCa customer-centric organization
• Public health research
• Leadership for the nations health system
• Global health
• Effectiveness and accountability

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Quote from CityLights
MCH specialists look for a door at CDC marked
MCH as the point of entry to the wealth within.
Finding none, they face the daunting prospect of
navigating a maze of programs, people and
projects to access and effectively use CDCs many
wonders - without a map.
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What is not changing
Commitment to scientific excellence Commitment
to partners Integrity and stewardship of the
publics trust Roles of centers
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NCBDDD Strategic Planning
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NCBDDD Focus Areas
For populations served by the centers mission,
we will

• Promote healthy birth
• outcomes

• Ensure optimal child
• development and well-being through early
  
• early identification and
• intervention

• Prevent secondary
• conditions and promote
• health of adolescents and
• adults

• Address health disparities

• Ensure a healthy environment
• and appropriate emergency
• response

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Center Focus Area 1
Promote Healthy Birth Outcomes
Primary prevention of adverse congenital and
developmental outcomes with origins in the
preconception, prenatal, and perinatal
periods. Research and surveillance into
the causes and risk factors associated with these
outcomes.
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Healthy Birth Outcomes
Fetal Alcohol Syndrome Prevention Program
Kernicterus in Full-Term Infants
Birth Defects State Programs
Folic AcidA Prevention Program
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Center Focus Area 2
Ensure Optimal Child Development and Well-Being
Through Early Identification and Intervention
Primary and secondary prevention of adverse
physical, social, emotional, and developmental
outcomes in children from birth through
pre-adolescence.
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Developmental Milestones Target Audiences
Primary Audiences Child health care providers,
including pediatricians, family physicians, PAs
and NPs, nurses, parents of Children Ages 4 and
Younger Secondary Audience Childcare providers,
including day care workers, Head Start, and
preschool teachers
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Center Focus Area 4
Address Health Disparities
Research and intervention in promoting health
equity across the lifespan, regardless of
disability status, race, ethnicity,
socio-economic status, or age. Study of
differential incidence, treatment access, and
survival rates among special populations,
including infants with birth defects or genetic
conditions, children with developmental
disabilities, people with bleeding disorders, and
people with physical and mental
disabilities. Measurement and improvement of
quality of life and participation in social and
community activities.
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Impact of Fortification by Race/Ethnicity
(Prevalence of Spina Bifida and Anencephaly)
Hispanic
12.0
White
Black
10.0
8.0
Prevalence (per 10,000)
6.0
4.0
2.0
Pre-fortification
Optional fort.
Mandatory fortification
0.0
1995
1996
1997
1998
1999
2000
2001
Year quarter of birth
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Spanish-language Folic Acid CampaignIntervention
Strategy
Mass Media
Interpersonal Communication
AND
A surround sound approach
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SFACES Communities
Intervention
Comparison
Washington
Maine
Montana
Vermont
Minnesota
North Dakota
Michigan
Oregon
New Hampshire
New York
Wisconsin
South Dakota
Massachusetts
Idaho
New York
Denver
Wyoming
Sacramento
Michigan
Rhode Island
Connecticut
Pennsylvania
Iowa
Nebraska
New Jersey
Nevada
Ohio
DC
Indiana
Las Vegas
Delaware
Illinois
Utah
Maryland
Bakersfield
West Virginia
Colorado
California
Kansas
Virginia
Missouri
Kentucky
North Carolina
Tennessee
Arizona
Oklahoma
Arkansas
South Carolina
New Mexico
San Antonio
Los Angeles
Mississippi
Georgia
Alabama
Miami
Texas
Florida
Louisiana
Alaska
U.S. Virgin Islands
Hawaii
Puerto Rico
Guam
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SFACES Consumption from multivitamin or folic
acid alone
50
44.0
42.2
45
37.5
40
35
36.8
35.0
30
30.4
Percentage of respondents
25
20
15
7.4
10
5.6
5
3.4
0
0
1.6
2000
2002
2003
Survey year
Intervention Multivitamin
Intervention Folic acid
Comparison Folic acid
Comparison Multivitamin
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CDCs National Center onBirth Defects and
Developmental Disabilities
Birth Defects and Developmental
DisabilitiesDisability and HealthHereditary
Blood DisordersTHANK YOU !
Promoting the health of babies, children, and
adults, and enhancingthe potential for full,
productive living