Centers for Disease Control and Prevention

1
National Center on Birth Defects and
Developmental Disabilities
Disability and Health Program

• Centers for Disease Control and Prevention

2
National Center on Birth Defects and
Developmental Disabilities

• Surveillance
• Birth Defects and Pediatric Genetics
• Developmental Disabilities
• Autism
• Prevention
• Primary folic acid
• Secondary - EHDI
• Tertiary Disability health
• Health Promotion
• Disability and Health

3
Mission - Disability and Health

• Promote the health and wellness of people with
  disabilities

Promote independence, productivity, and
participation
Prevent/reduce secondary conditions that
exacerbate activity limitations
4
ICF Conceptual Model
Disorder/Disease ICD-9/10
Impairment of Structure or Function
Activity Limitation
Participation Restriction
Personal Factors
Environmental Factors
5
ICF Conceptual Model possible application to
young person with mental retardation
Disorder/Disease ICD-9/10 Trisomy 21 (DS)
ACTIVITY (LIMITATION) interference with rehearsal
IMPAIRMENT IQ52
PARTICIPATION (RESTRICTION) Segregated classroom
PERSONAL FACTORS poor self concept social
withdrawal
ENVIRONMENTAL FACTORS limited interaction with
age peers
6
Disability Status andSelf-Reported Health Status

7
Comparative Status on Selected Health Indicators
- People with and without Disabilities
50
40
30
Percent
20
10
0
Depression
Overweight
Physical Activity
People w/o Disabilities
People w/ Disabilities
Sources HHS, 2000 Campbell, 2001 HHS, 1996
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Prevalence Cognitive Disability

• Condition
• Mental Retardation
• Larson, et al. (2000), lifespan prevalence 0.87
• Yeargin-Allsopp et al., 1992), age 10 1.03
• Learning disability - SIPP, 1999 age gt18 1.3
• Traumatic Brain Injury - Thurman, et al.,
  1999 2.0
• Age-related dementia - SIPP, 1999 (age 65) 3.6
• Stroke - Gorelick et al., 1999 1.4
• Activity
• Difficulty learning, remembering, concentrating
• BRFSS, 12 states DC, 1998, age gt18 6.6

9
Current Programand Science Activities

• 14 states addressing Disability and Health issues

10
State Projects, 1997 - 2001
WA
OR
MA
NY
RI
IA
DC
CO
KS
NC
NM
SC
AR
AL
TX
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Current Programand Science Activities

• 14 states addressing Disability and Health issues
• 11 research projects

12
Current Supported Research

• Cost identification methods
• Cost identification in prevention and management
  of secondary conditions experienced by adults
  with developmental disabilities
• University of Montana

• Patterns of cost and course of secondary
  conditions
• Secondary conditions associated with disability
• University of South Carolina

• Measurements of the community environment
• Measuring the environments of children and youth
  with disabilities
• University of North Carolina

13
Current Programand Science Activities

• 14 states addressing Disability and Health issues
• 11 research projects
• 3 national information centers

14
Special Populations

• National Center on Physical Activity and
  Disability to gather and disseminate
  information on physical activity and disability
  at the University of Illinois at Chicago
• http//ncpad.cc.uic.edu/home.htm
• National Limb Loss Information Center Amputee
  Coalition of America
• http//www.amputee-coalition.org/nllic_about.htm
  l
• Christopher and Dana Reeve Paralysis Resource
  Center
• http//www.paralysis.org/

15
Current Programand Science Activities

• 14 states addressing Disability and Health issues
• 11 research projects
• 3 national information centers
• Coordination role for Healthy People 2010,
  Chapter 6 -- Disability and Secondary
  Conditions

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Healthy People 2010

• Disability and Secondary ConditionsChapter 6
• Congregate care of people with disabilities
• Children and youth with disabilities included in
  regular education programs
• Health and wellness programs
• Assistive devices and technology
• Environmental barriers affecting participation
• Surveillance and health promotion programs

17
Current Programand Science Activities

• 14 states addressing Disability and Health issues
• 11 research projects
• 3 national information centers
• Coordination role for Healthy People 2010,
  Chapter 6 -- Disability and Secondary
  Conditions
• Conference support

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Conference Support

• National conference on preventing violence
  against people with disabilities May 2002
• Improving the health and wellness of women with
  disabilities February 2002
• Promoting optimal health for older adults with DD
  April 2002
• Conference on promoting oral health for children
  with special health needs June 2002
• Workshop on developing summary health measures
  that address the concerns of people with
  disabilities -- June 2002

19
National Center on Birth Defects and
Developmental Disabilities
Disability and Health Program Vincent Campbell.
Ph.D. VCampbell_at_cdc.gov

• Centers for Disease Control and Prevention