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Comments on the Washington Group Position Paper
Proposed Purpose of an Internationally
Comparable General Disability Measure Alicia
Bercovich IBGE Brazil
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World Programme of Action concerning Disabled
Persons

• Goals
• To promote the participation of persons with
  disabilities in all aspects of life
• preventing the onset and consequences of
  impairments,
• promoting optimal levels of functioning,
• equalizing opportunities for participation.
• United Nations, New York, 1983

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Framework

• The International Classification of Functioning
  and Disability (ICF) is a guide for the
  measurement design.

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Purposes of the harmonized mensuration of
disability

• to provide services, including the development of
  programs and polices for service provision and
  the evaluation of these programs and services,
• to monitor the level of functioning in the
  population,
• to assess equalization of opportunities.

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International relevance and feasibility of
implementation

• Relevance
• Is the purpose of relatively equal importance
  across countries with respect to policy?
• Feasibility
• Is it possible to collect the proposed
  information using a comparable general disability
  measure that includes a small set of census-like
  questions?

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Evaluation of purposes Relevance and Feasibility

• Provision of Services
• Relevance (yes) Feasibility (no)
• Monitoring the level of functioning in the
  population
• Relevance (yes) Feasibility (no)
• Assessing equalization of opportunity
• Relevance (yes) Feasibility (yes)

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Purpose for the measure

• Assessment of equalization of opportunities as
  the purpose for the first general disability
  measure to be developed by the WG.

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Benefits

• Identification of a broad subpopulation, which
  can be further described using detailed
  information obtained via extended survey sets.
• Limitations
• the general disability measure developed to suit
  the proposed purpose may not suit other purposes
• no comprehensive assessment of disability or
  identification of the true disabled population
• Lacking information about mechanisms that
  facilitate participation
• Groups related to the NGOs on Disability and
  other related Organizations are not encouraging
  the identification of a large subpopulation of
  people with disability

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Transition to Measurement

• Measuring Activity and Participation
• Willful actions
• Specific tasks
• Organized activity
• Information considered indication of participation

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Some Comments (I)

• Necessity of Harmonization to have meaningful and
  comparable measures
• Cultural Differences between countries continue
  to affect comparability
• The need for the Census and Surveys teams
  tounderstand the purpose
• Training people in the technical and operational
  teams
• To achieve a concrete set of questions
  recommended for insertion in Censuses and Surveys

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Some Comments (II)

• Minimum set of Questions recommended
• Questions must be operationalized by the
  countries according to local characteristics
• Pilot tests harmonized and analyzed
• Documentation of the results of the tests
• Recommendations on Editing and Imputation of the
  new variables
• Analyzing the results standardization of a
  minimal set of checks to be performed at the
  country level

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More Comments (III)

• Documentation on the limitations on comparability
  due to cultural and contextual factors for each
  one of the participating countries
• Statistical measures on the accuracy of results
  (to establish comparisons)

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End