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My HealtheVet

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... administration of online surveys or other data collection ... Veteran will access extracted data sent to My HealtheVet from VA Electronic Medical Record (EMR) ... – PowerPoint PPT presentation

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Title: My HealtheVet


1
My HealtheVet
Supporting research data needs
Ken Weingardt, PhD Todd Wagner, PhD
December 12, 2008
2
Types of MHV Access
  • Three-tier model
  • Open use
  • Registered Users
  • In Person Authenticated Users
  • Except for open use, system logs
  • All user activity.
  • Registered IPA users can enter
  • And save information.

3
Activity log data
The administrative portion of the MHV database or
transaction logs can be made available for
research Transaction logs includes demographic
information from registration, logs each user
transaction such as date/time entered account,
how long they spent on the site, which pages they
visited. This information can be linked to
individual patients in CPRS to examine
relationship to health care utilization and
patient level outcomes.
4

PHR self-entered information
  • MHV is a Personal Health Record and NOT a VA
    record. As such, researchers cannot access
  • Patient Self-Entered Information (e.g. vitals,
    health journal)
  • Patient CPRS records extract, labs etc
  • Secure messages to providers
  • Medical records imported from outside VA
  • Unless

5

MHV Delegation
Veterans will soon be able to delegate access to
their complete MHV record to family members,
caregivers and other interested parties including
researchers. Default option is no
delegation Researchers doing prospective studies
may ask participants to delegate full MHV access
prior to randomization
6
Support prospective studies
MHV patient record flag in CPRS can be used to
target veterans for study recruitment. Preparator
y to research (with an approved IRB protocol and
a Waiver of HIPAA Compliant Authorization) an
HSRD Investigator doing a prospective study may
look at CPRS to identify veterans at her/his
facility who have MHV accounts.
MHV
7
Support prospective studies
  • Example Patient education for HTN
  • Get local approvals
  • Identify MHV users with HTN in ViSTA
  • Obtain informed consent
  • Obtain delegated access to PHR data
  • Pull self-entered BP data
  • Track outcomes
  • MHV does not support randomization at this time

MHV
8
Support retrospective studies
Linkage between MHV transaction log data and
CPRS/ VA administrative data would be
permissible. Transaction log data includes real
SSN, translate to SCRSSN can then match with
Austin.
9

MHV will NOT support
The administration of online surveys or other
data collection efforts through MHV A system
allowing veterans to opt-in or opt-out of
research during the registration process.
10
MHV Legal documents
System of Record specifies ownership of data
and accessiblity Terms Conditions
specifies contractual relationship between MHV
user and VHA. Privacy Policy specifies how the
data will/will not be used. Documents need to
be amended to support research. System of records
must be posted for public comment. Terms and
Conditions must go through OGC review
11
Research Collaboration
next steps
discussion
12
Inform Engage Activate
My HealtheVet PHR
VA EMR
  • VistA/CPRS is the authoritative VA medical
    record.
  • Veteran "owns" his/her My HealtheVet Personal
    Health Record (PHR).
  • Veteran will access extracted data sent to My
    HealtheVet from VA Electronic Medical Record
    (EMR).
  • Veteran control of access to information (via
    delegation).

CPRS ? VistA ? BCMA VistA Imaging
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