CAREGIVER PROGRAM DATA SUMMARY

1
CAREGIVER PROGRAM DATA SUMMARY

• N4A Conference Intensive
• July 10, 2005

2
Data and the Caregiver Program (1)

• Use of Data
• Multiple Data Sources
• Demonstrate Program Results
• Support Program Initiatives
• AoA Data Initiatives
• SPR, National Surveys, Data Integration, Data
  Analysis and Dissemination
• New Caregiver Data Specs
• Minimal Requirements

3
Data and the Caregiver Program (2)

• Importance of Caregivers
• Success of Program Implementation
• Importance of OAA Support of Caregivers
• Role of the Network in Supporting Caregivers

4
Federal Interagency Forum on Aging Related
Statistics 12 Federal Agencies (OMB, AoA,
Census, SSA, NIA, CMS, etc.)
37 Indicators in 5 key areas
Released Nov. 2004 Copies sent to
SUAs/AAAs www.agingstats.gov
PopulationEconomicsHealth StatusHealth Risks
BehaviorsHealth Care
Sample charts follow
5
(No Transcript)
6
(No Transcript)
7
(No Transcript)
8
(No Transcript)
9
ORIGINAL EXPECTATIONS

• Initiate program implementation immediately.
• Serve 250,000 Caregivers per year in the early
  years.
• Pursue multi-faceted programs providing a variety
  of services.
• 20 of States to provide all five types of
  caregiver services.

10
FY 2002 RESULTS

• Number Served
• Information 4 million
• Access 440,000
• CSGT 180,000
• Respite 76,000
• Supplemental 56,000
• 44 States (86) provided services in all five
  categories

11
FY 2003 RESULTS

• Number Served
• Information 8 million
• Access 590,000
• CSGT 300,000
• Respite 200,000
• Supplemental 223,000
• 48 States (94) provided services in all five
  service categories.

12
CHANGE 2002 TO 2OO3

• Percent Change
• Information 100
• Access 34
• CSGT 67
• Respite 163
• Supplemental 298

13
National CaregiverPilot Surveys

• Sample Surveys of Caregivers of OAA Clients, AND
  Caregivers Served by NFCSP
• Survey Provides Data on
• Caregiver Characteristics
• Caregiving Provided
• Caregiver Support Needed
• Caregiver Burdens and Rewards
• Caregiver Assessment of OAA Services to Elderly
  OAA Clients

14
WHO THEY ARE (1)

• 70 Are Women (79 in 04)
• 40 Are Daughters (51 in 04)
• 7 Are Wives (9 in 04)
• 46 Are Aged 60 and Over (37 in 04)
• One-Third Are 65 and Over (30 in 04)
• 27 Have a Condition That Limits the Care They
  Can Provide (33 in 04)
• 95 Are Relatives (91 in 04)
• 20 Are Minority (20 in 04)

15
WHO THEY ARE (2)

• 38 Live In Rural Areas (29 in 04)
• But Distance Problems Do Not Appear to Be
  Significant with These Caregivers
• 34 Live in the Same Household (44)
• 80 Are Less than 20 Minutes Away (82)
• 95 Are Within an Hours Distance (99)
• 46 Are Employed (39)
• 34 Full Time (29)
• 50 Reported Income Under 25,000 (50)
• One-Third Had Income of 40K or More (28)

16
WHAT THEY DO

• 85 Take Them Out Shopping/to Doctors (85)
• 78 Prepare Meals and Do Laundry (78)
• 70 Kept Track of Bills and Finances (72)
• 56 Helped with Medicine and Bandages (60)
• 45 Helped with Dressing/Eating/Bathing (49)
• 31 Said They Were the Only Caregiver for the
  Elderly Person They Cared For (35)
• 15 Reported Caring 24 Hours a Day (21)
• 65 Reported Caring 1 to 8 Hours a Day (60)

17
WHAT THEY NEED (1)

• INFORMATION!!!!
• 76 Want One Place to Call for Help (83)
• 64 Want Help Dealing with Bureaucracies (67)
• 58 Want Information on How to Pay for Nursing
  Home Care (64)
• 42 Want Help in Selecting a Nursing Home or
  Other Care Facility (49)

18
WHAT THEY NEED (2)

• SERVICES
• 52 Want Stipend/Tax Break/Financial Help (62)
• 49 Want Help with Housekeeping (61)
• 38 Want Help with Transportation (50)
• 33 Want Help with Bathing/Toileting (35)
• 27 Want Help with Shopping (40)
• 24 Want Respite Care or Adult Day Care (39)

19
ASSESSMENT OF OAA SERVICES

• 65 Were Very Satisfied with Services (57)
• 28 Were Somewhat Satisfied (35)
• 69 Said Services Helped a Lot to Make Them
  Better Caregivers (69)
• 28 Said They Helped a Little (25)
• 48 Said OAA Services Definitely Helped Them
  Provide Care Longer (42)
• 38 Thought the Services Helped Them Provide Care
  Longer (41)

20
NFCSP WHO THEY ARE (1)

• 77 Are Women (79)
• 35 Are Daughters (51)
• 29 Are Wives (9)
• 63 Are Aged 60 and Over (37)
• HALF Are 65 and Over (30)
• 45 Have Condition That Limits Care They Can
  Provide 53 Caregiving Worsens Condition (33)
• 98 Are Relatives (91)
• 20 Are Minority (20)

21
NFCSP WHO THEY ARE (2)

• 29 Live In Rural Areas (29)
• But Distance Problems Do Not Appear to Be
  Significant with These Caregivers
• 72 Live in the Same Household (44)
• 87 Are Less than 20 Minutes Away (82)
• 97 Are Within an Hours Distance (99)
• 26 Are Employed (39)
• 15 Full Time (29)
• 50 Reported Family Income Under 25,000 (50)
• 28 Reported Income of 40,000 or More (28)

22
NFCSP WHAT THEY DO

• 87 Take Them Out Shopping/to Doctors (85)
• 91 Prepare Meals and Do Laundry (78)
• 88 Kept Track of Bills and Finances (72)
• 83 Helped with Medicine and Bandages (60)
• 71 Helped with Dressing/Eating/Bathing (49)
• 18 Said They Were the Only Caregiver for the
  Elderly Person They Cared For (35)
• 42 Reported Caring 24 Hours a Day (21)
• 34 Reported Caring 1 to 8 Hours a Day (60)

23
NFCSP WHAT THEY NEED (1)

• INFORMATION!!!!
• 85 Want One Place to Call for Help (83)
• 75 Want Help Dealing w/Bureaucracy (67)
• 72 Want Information on How to Pay for Nursing
  Home Care (64)
• 56 Want Help in Selecting a Nursing Home or
  Other Care Facility (49)

24
NFCSP WHAT THEY NEED (2)

• SERVICES
• 71 Want Stipend/Tax Break/Financial Help (62)
• 64 Want Help with Housekeeping (61)
• 43 Want Help with Transportation (50)
• 43 Want Help with Bathing/Toileting (35)
• 27 Want Help with Shopping (40)
• 65 Want Respite Care or Adult Day Care (39)

25
ASSESSMENT OF OAA SERVICES --NFCSP

• 69 Were Very Satisfied with Services (57)
• 23 Were Somewhat Satisfied (35)
• 74 Said Services Helped a Lot to Make Them
  Better Caregivers (69)
• 23 Said They Helped a Little (25)
• 52 Said OAA Services Definitely Helped Them
  Provide Care Longer (42)
• 31 Thought the Services Helped Them Provide Care
  Longer (41)

26
ANALYSIS SUMMARY (1)

• Indicators related to the elderly population
  suggest that the need for caregivers and the need
  to support caregivers will remain strong.
• Program data indicate that the States, area
  agencies on aging and providers have worked hard
  to get this program off the ground, exceeding
  initial production expectations.
• Caregivers are feeling the pressure and are
  considering institutions even though OAA services
  help.

27
ANALYSIS SUMMARY (2)

• Caregivers recognize the value that OAA programs
  and services provide in helping elderly
  individuals maintain their independence in the
  community.
• Caregivers receiving services from the Network
  are serving very old and vulnerable people, often
  their own spouse, and provide more care.
• Caregivers served by the Network are also older
  and more vulnerable themselves.

28
ANALYSIS SUMMARY (3)

• Assessments for served caregivers appear to be
  slightly higher than those of caregivers who are
  not clients a possible effect of the caregiver
  program itself.
• Program and consumer assessment data have
  resonated in Washington better assessment
  scores from OMB greater support of AoA plans to
  modernize the OAA to better support the Network.