Children facing the lifethreatening illness of a parent

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Children facing the life-threatening illness of
a parent

• Background
• Dissemination - traditional and otherwise
• Practical difficulties
• Opportunities
• Ethical issues
• Childrens rights

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Background

• Collaborative inquiry
• Palliative Care
• Limitations of previous research
• Liberationist not protectionist
• Children as competent

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Dissemination

• Principle of collaboration
• Practicalities and PhDs
• Advantages
• Ethics

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Problems

• Not the day job!
• Impact of parental illness
• Costs of collaborative presentations
• The dissemination environment
• Adult oriented
• Academic
• Individualistic

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Advantages

• Video - an accessible medium
• Emotive subject
• Novelty factor

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Ethical issues

• Whose benefit?
• Making it safe
• Use and abuse
• Who owns the work? ( - and the money!)

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Reflections

• Challenging the status quo
• Agency angst
• Its a start.
• Childrens rights, responsible children

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