Title: PHLO Seminar, presented by Nancy Meagher
1What is PHLO?
PHLO Seminar, presented by Nancy Meagher May 26,
2005
2PHLO Core Groups
Centre for Health Services and Policy
Research Edudata Canada Human Early Learning
Partnership School of Occupational and
Environmental Hygiene
3About PHLO
- Infrastructure grant awarded
4Our goals / The opportunity
- To put BC in the unique position to be a
research-rich, learning province - To be the most dynamic environment in the country
to study population health and learning - To be the first population health data repository
to include development and environmental data - To develop and implement best practices in
privacy and data security for research purposes
5NICU children case study
6Langley water case study
7Langley water case study
- Water, sewage systems Langley Township
- Address based
- Land use data BC Assessment Authority
- ?Lot based
- Health data
- ? Individually based, by PHN
8- Aggregating to postal code or census tract
obfuscates critical differences considered - Connecting to GI illness must be done at the
individual address level
9Our mission
To advance collaborative research, training, and
data resources that will foster unique insights
into human health and well-being.
COLLABORATORY
10RESEARCH RESOURCE
11Population health and human development research
encompasses many dimensions
Education
Early childhood
Population health
Work
Family Community
Environment
Health services
12Current data resources are rich but have been
isolated
Education
Early childhood
Population health
Work
Family Community
Environment
Health services
13Current data resources
Health / BCLHD
Education / Edudata
ECD / HELP
Workers Comp
BC K-12 Student
Births / Deaths
EDI
MD Visits
Cancer Registry
FSA
Hospital Visits
Welfare
School District
Continuing Care
Educator
Pharmacare
Mental Health
14Objectives as a
RESEARCH RESOURCE
1) enhancing available data for approved research
projects
Education
Early childhood
Population health
Work
Family Community
Environment
Health services
15Wish list data samples
Health / BCLHD
Education / Edudata
ECD / HELP
Env Occ / SOEH
Reserve School
Ambulance
Exposure
Children in Care
CCHS
University
Air Quality
Child Protection
Perinatal
Natl Dose Registry
Community Asset
Cancer Tx
H2O
NLS CY
Waitlist Registry
Childcare Licensing
16 and 2) facilitating cross-linkages between
available resources
Education
Early childhood
Population health
Work
Family Community
Environment
Health services
17Key underpinnings of research resource concept
RESEARCH RESOURCE
Coordination, not consolidation
- Existing organizations maintain organizational
integrity, relationships, responsibilities - Economies of scale and best practices through
pooling i.e. data documentation, linkage
protocols
18Key underpinnings of research resource concept
RESEARCH RESOURCE
Fastidious privacy protocols
Coordination, not consolidation
- Mandate to meet and exceed FOIPPA regulations,
building on proven track record of BCLHD and
Edudata - Access approval remains with data stewards
19Key underpinnings of research resource concept
RESEARCH RESOURCE
Fastidious Privacy protocols
Coordination, not consolidation
State-of-the-art security
- Data resources are stored as independent data
holdings with cooperative management - Security protocols and technologies are cutting
edge
20Key underpinnings of research resource concept
RESEARCH RESOURCE
Fastidious Privacy protocols
Coordination, not consolidation
Research-driven agenda
State of the art Security
- Data development is guided by PHLO partners
21Key underpinnings of research resource concept
RESEARCH RESOURCE
Available to researchers more widely
Fastidious Privacy protocols
Coordination, not consolidation
Research-driven agenda
State of the art Security
- Research resources will be available to non-PHLO
researchers with approved access, on a cost
recovery basis
22Data flows in action
High Security Zone
Data Preparation Unit
23 COLLABORATORY
24Objectives of the
COLLABORATORY
Facilitating cross-fertilization of ideas
Education
Early childhood
Work
Population health
Family Community
Environment
Health services
25Key underpinnings of collaboratory concept
COLLABORATORY
Dedicated research space
- Spatial setup to allow for increased interaction
of partnering organizations and fostering new
ideas
26Key underpinnings of collaboratory concept
COLLABORATORY
Dedicated research space
Partnering across institutions
- Extend cross-fertilization across geographical
and institutional boundaries - Government, other universities, other institutes
27Key underpinnings of collaboratory concept
COLLABORATORY
Dedicated research space
Setting research priorities
Partnering across institutions
- Collaborators help to set an agenda for
population health research, and in turn for
development of the resources of PHLO
28Key underpinnings of collaboratory concept
COLLABORATORY
Dedicated research space
Creating capacity in the next generation of
researchers
Setting research priorities
Partnering across institutions
- Development of cutting edge tools and techniques
- Creating an intellectual environment for
population health research in BC
29Key underpinnings of collaboratory concept
COLLABORATORY
Dedicated research space
Creating capacity in the next generation of
researchers
Setting research priorities
Partnering across institutions
Advanced training
- Research privacy training
- Using administrative data
30Why is this important?
31- Lifecourse perspective / developmental
trajectories (NICU case study) - Cross-domain impacts (Langley water case study,
Fire smoke case study) - Family unit or intergenerational analysis
(Sawmill worker case study) - System level, population based perspective
- Longitudinal policy perspective
32BC fire smoke case study
Vehicle exhaust and industrial emissions
33(No Transcript)
34BC fire smoke case study
Vehicle exhaust and industrial emissions
35Sawmill workers children case study
- Original cohort of 28,000 sawmill workers, worked
in one of 14 BC sawmills 1950-2000 - Study of health impact of exposure to
chlorophenol wood preservatives - Objectives have expanded to include, i.e. noise,
wood dust and mold exposures, job strain
Research opportunity Are there
inter-generational impacts of working conditions?
36Sawmill workers children case study
37Progress so far the crosswalk PEN to PHN
97 EDI to PEN 43,791/47,760 91.7
38PHLO rough timeline
Research resource and collaboratory functioning
infrastructure development
2004
2005
2006
2007
2008
2009
2010
Grant awarded
Grant completion
Budget finalization