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Promoting patient-centred healthcare around the world

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Title: Promoting patient-centred healthcare around the world


1
Promoting patient-centred healthcare around the
world
CHAIN CASE STUDY
Name Regina M. N. Kamoga Job Title Board
Member IAPO Country Manager CHAIN Uganda
Global Patients Congress 2006 22nd-24th February
2006 Barcelona-Spain
2
Promoting patient-centred healthcare around the
world
Content of Presentation
  • A short introduction about Community Health And
    Information Network (CHAIN)
  • CHAINs Vision
  • Why patient centred health care
  • CHAINs role towards the move to Patient centred
    healthcare
  • Conclusion

3
Promoting patient-centred healthcare around the
world
About CHAIN
  • International not for profit organization
    registered as a charity and company in the United
    kingdom and Uganda. It promotes the empowerment
    of people living with HIV/AIDS.
  • Established in 1998.
  • CHAINs work is undertaken in Africa and in the
    Great Lakes region in particular. (Uganda, Kenya,
    Rwanda, Burundi, Tanzania Democratic republic
    of Congo.

4
CHAINs Vision
  • People living with HIV/AIDS having choices and
    opportunities to make informed decisions about
    their health, social and economic circumstances.
    Well-informed communities are better able to
    support people living with HIV and to respond
    effectively to the challenges of the HIV
    pandemic.

5
Patient-centred care
Promoting patient-centred healthcare around the
world
  • It is when the health care system is designed and
    healthcare is delivered in an appropriate way so
    that it can answer the needs of patients.
  • (www.patientsorganizations.org/pchreview)

6
Why patients-centred health care
7
Whycontd
8
Why contd
9
CHAINs role towards patient centred Health care
  • Patient Involvement patients should have the
    opportunity to be involved in healthcare at their
    level of choice.
  • Gone are the days in Africa when patients left
    every thing to their doctors. We must work
    towards creating an expert patient who is
    empowered and hence able to take part in
    decisions that affect his or her health.
  • Patients must feel that they are part of the
    programme design, implementation and evaluation.

10
Role contd
  • Respect for the individual patient, their wants,
    preferences, values, needs and rights by
  • CHAIN works in partnership with other patients
    organisations like Uganda National Health
    Consumer/user s Organisation (UNHCO), Coalition
    for access to essential medicines, among others
    to raise awareness on healthcare issues through
    workshops, discussions
  • CHAIN resource centre gives patients an
    opportunity to meet counselors,and fellow
    patients for support
  • We use a Rights based approach in all our
    programmes.
  • Outcome Awareness in health issues raised
  • Challenge Activities still limited by resources

11
Role contd
  • Access to the health care service
  • Advocate and lobby for access to healthcare
    services by engaging government and other key
    stakeholders.
  • CHAIN links patients to appropriate healthcare
    services and doctors through its scientific
    committee and partners.
  • Counseling sessions are offered at the resource
    centre.

12
Role contd
  • Information that is accurate, relevant and
    comprehensive
  • CHAIN provides up to date information on
    HIV/AIDS,TB and malaria prevention,care and
    treatment.
  • Production of easy to read treatment guides
    such as the Great Lakes positive handbook A
    guide to anti-retroviral therapy, leaflets,
    posters and other tailor made information,
    Education and Communication (IEC) materials.
  • Information is disseminated through CHAIN
    resource center and treatment literacy workshops
    organised at the community, national and regional
    level.
  • Outcome people are informed and are responsible
    for their healthcare.
  • Challenge limited resources to produce adequate
    material and also translate it into different
    local languages for wider circulation and use

13
CHAINs role contd
  • Empowerment patients should be empowered so
    that they are able to make informed decisions
    about their healthcare and should also be
    encouraged to take leadership roles.
  • CHAIN builds capacity of patients networks
    ,healthcare proffessionals and community based
    organisations through trainings/workshops and
    Bi-annual conferences in the GL region in
    HIVAids prevention,treatment and care,
    leadership, advocacy ,IT, project management and
    planning, providing life skills and income
    generating activities (IGAs)

14
Promoting patient-centred healthcare around the
world
Conclusion
  • Need for health literacy,involvement and
    empowerment of patients
  • Patients need to be responsible for their health
    care
  • Health professionals and patients should work in
    partnership
  • All stakeholders in healthcare should be
    involved so as to achieve patient-centred
    healthcare

15
Promoting patient-centred healthcare around the
world
Contact us
Uganda Office Community House, Plot No 809
Kanyanya, Gayaza Road P.O. Box 16051 Kampala
Uganda Tel 00256 41 568 786 Email
chainproject_at_infocom.co.ug Registration No
S5914/4865  
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