Phase I

1
Health Information Security and Privacy (HISPC)

• Phase I 2006, 34 states (not SD)
• Phase II 2007, implementation of Phase I (not
  SD)
• Phase III 2008 to March 2009, 42
  states/territories, 7 collaborative groups

2
Health Information Security and Privacy (HISPC)

• Phase III
• Interstate Disclosure and Patient Consent
  Requirements
• Interstate and Intrastate Consent Policy Options
• Harmonizing State Privacy Laws
• Consumer Education and Engagement (CEE)
• Adoption of Standard Policies for Authentication
  and Audit
• Inter-Organizational Agreements (IOA)
• SD, AK, IA, Guam, NC, NJ
• Provider Education (PET)

3
Health Information Security and Privacy (HISPC)

• Phase IV Extension and Implementation (April 1
  July 31)
• Task 1-5 -- Administrative
• Task 6-7 90-minute webinar
• Task 8 Challenge 1 and 2
• CEE
• PET
• Task 9 IOA innovations

4
Health Information Security and Privacy (HISPC)

• Task 8 Challenge 1
• South Dakota will identify at least 3
  consumer-oriented stakeholder associations/organiz
  ations within the state (including any HIOs), and
  adapt several of the Consumer Education and
  Engagement Collaborative Deliverables Available
  for Distribution through the following steps
• approach the organizations,
• review and determine which consumer education
  tools are appropriate,
• work with the organization to adapt and
  disseminate the materials.
•  

• American Association of Retired Persons, Sam
  Wilson
• Community Healthcare Association of the Dakotas,
  Scot Graff
• South Dakota foundation for Medical Care, Nancy
  Beaumont

5
Health Information Security and Privacy (HISPC)

• Task 8 Challenge 2
• South Dakota will identify and partner with at
  least 2 provider associations within the state to
  promote the PET toolkit, including dissemination
  of the website and additional tools created for
  hard copy distribution as appropriate. South
  Dakota will accomplish the following objectives
•   Gain support of the association to distribute
  an announcement via its listserv regarding the
  tools and resources available.
•   Identify a Physician Champion within the
  association who is willing and able to
  effectively support word-of-mouth dissemination
  of the toolkit materials.
•   Secure a speaking arrangement for at least one
  regular meeting of association members to present
  the toolkit materials.
•   Distribute press release and journal articles
  in the leading local newspapers, medical trade
  press and associations journals and newsletters,
  or any other association printed or web-based
  member communications.

• South Dakota Association of Healthcare
  Organizations, Rebekah Cradduck
• South Dakota Health Information Management
  Association, Linda Maas
• South Dakota State Medical Association, Mark
  East
• South Dakota Foundation for Medical Care,
  Nancy Beaumont
• Community Healthcare Association of the
  Dakotas, Scot Graff

6
Health Information Security and Privacy (HISPC)

• IOA Collaborative
• Development of public-public agreement and pilots
• Iowa and South Dakota
• Iowa, South Dakota, New Jersey, Quam
• Development of private-private agreement and
  pilot
• Alaska
• North Carolina
• Task 9..

7
Public to Public Pilot
South Dakota Iowa New Jersey Guam
8
Just up the Road
9
Demonstrate

• That parties will sign a cross-state/territory
  data-sharing agreement developed by a national
  Privacy and Security project workgroup and
• The feasibility of cross-state/territory data
  exchange, in light of the distinctiveness of the
  registry systems.

10
Technical Details

• Iowa/South Dakota
• Age 0-25
• Iowa Counties Lyon, Plymouth, Sioux, Woodbury
• South Dakota Lincoln, Minnehaha, Union
• 151,000 patient records
• 2.03 million vaccine records

• South Dakota/Iowa New Jersey/Guam
• Age 18 (Jan 1, 1990-Dec 31, 1990)
• 37,607 patient records (SD/IA/GUAM)
• 502,779 vaccine records (SD/IA/GUAM)

11
Signing of Agreements
Iowa Deputy Director, Department of Public
Health South Dakota Secretary of Health New
Jersey Chief Epidemiologist, NJ Dept of Health
Senior Services Guam Lieutenant Governor
12
Shrinking the Worldfor the patients