WEARYELLOW LIVESTRONG

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2005 Program Directors/National Cancer Prevention
and Control Annual Meeting May 2-6, 2005
In the battle against cancer, unity is
strength,knowledge is power,and attitude is
everything.
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The Diagnosis

• In 1996, Lance was ranked the 1 cyclist in the
  world.
• In October 1996, doctors diagnosed Lance with
  advanced testicular cancer.
• Going untreated, the cancer had spread to his
  lungs, abdomen and brain.

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The Will to Win

• Lance declared himself a cancer survivor, not a
  cancer victim.
• He took an active role in educating himself about
  his disease and his treatment.
• Just five months after his diagnosis, Lance began
  riding again.
• If I had to choose between winning the Tour de
  France or having cancer, Id choose cancer. -
  Lance Armstrong

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Beating the Disease

• During treatment, before his recovery, before he
  even knew his own fate, Lance created the Lance
  Armstrong Foundation.
• In 1997, doctors declared Lance cancer-free.
• In 1998, Lance returned to professional cycling.

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Lance Armstrong Foundation
Mission To enhance the quality of life for
those living with, through and beyond
cancer. The LAF believes that in the battle with
cancer, knowledge is power and attitude is
everything.  From the moment of diagnosis, we
provide the practical information and tools you
need to live strong. Cancer Survivor An
individual from the time of diagnosis for the
balance of his/her life (includes family members
and loved ones).
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Lances View of the LAF

• Too many people still lose their life to cancer,
  but far more people are also surviving and
  facing a lot of practical, physical, and
  emotional challenges that accompany a cancer
  diagnosis.
• We stand with more than 10 million Americans who
  are living with cancer today. We advocate for
  their dreams and collaborate with their
  caretakers.
• Cancer Survivors guide our mission and inspire
  our vision.

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Significance of the LAF

• More than 10 million cancer survivors today
• More than 1.3 million people will be diagnosed
  this year
• 3 out of 4 families will help care for a family
  member with cancer
• 63 of adults and 70 of children diagnosed with
  cancer today will be alive 5 years from now
• 1 in 3 people will be diagnosed with cancer
  during their lifetime

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The LAFs Focus
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Public Health

• The LAF is focused on establishing a
  public health framework to serve the
  physical, emotional and practical needs of cancer
  survivors
• 104 Community Program partners
• More than 2,000,000 in funding to community
  non-profit organizations across the country since
  1999
• National Action Plan for Cancer Survivorship A
  guide for the public to on how to effectively
  address cancer survivorship

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National Advocacy Initiatives

• The LAF works to ensure that the voice of the
  cancer community will be heard in Washington
• The National Cancer Act (S.1899) would establish
  the Office of Cancer Survivorship within the NCI
• The Cancer Survivorship Research and Quality of
  Life Act (H.R. 2986/S.1496) would expand research
  and quality of life programs for cancer survivors
  
• LAF also supports increased federal funding for
  the CDCs National Comprehensive Cancer Control
  Program

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Scientific and Clinical Research

• The LAF supports research that is not readily
  funded by traditional sources
• More than 9.6 million in grants given since 1998
• Young Investigator Research Awards and Research
  Awards granted annually
• Major support grants awarded to survivor care
  programs

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LIVESTRONG- Resource for Cancer Survivors

• Live Strong provides information and tools to
  help people living with cancer understand the
  physical, emotional and practical aspects of
  being a cancer survivor.
• This resource was created to educate survivors
  and their friends, families and caregivers about
  cancer survivorship.
• Live Strong offers survivors a complete approach
  to the survivorship experience.

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What is LIVESTRONG?

• LIVESTRONG offers a variety of features
  exploring the full range of physical, practical
  and emotional information including
• Survivorship Stories
• Survivorship Topics
• Survivorship Tools

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Survivorship Stories

• Through research we learned that survivors feel
  the most honest and credible information about
  the cancer experience comes from other survivors.
• Video (and text) stories allow survivors to share
  their cancer experience in their own words.
• Over 100 stories cover different diagnoses,
  cancer stages, ages and backgrounds

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LIVESTRONG- Resource for Cancer Survivors

• Captures essential knowledge and collective
  wisdom from survivors.
• Presents information from health care providers
  and other experts in familiar and
  easy-to-understand format.
• Provides survivors a way to take ownership and
  control of their own survivorship experience

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Survivorship Topics

• Physical, emotional and practical issues
  presented through high-level overviews that link
  to more detailed information
• Examples of Survivorship Topics
• Aftereffects of Cancer Treatment
• Emotional Effects of Cancer
• Health Insurance
• Communicate with Your Health Care Team
• Employment Discrimination

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Survivorship Tools

• Tools to help survivors prepare for doctor
  appointments, track medications and treatments,
  communicate effectively with their health care
  team, and keep track of practical information,
  including estate, will and insurance information.
• Survivorship Tools
• Medical Treatment Summary
• Health Journal
• Practical Information Summary

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LIVESTRONG TODAY
There are three ways for survivors to use the
tools and information LIVESTRONG provides

• Go online at www.livestrong.org
• Order a LIVESTRONG Survivorship Notebook
• Call LIVESTRONG SurvivorCare toll free at
• 1-866-235-7205

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Claire Schmidt, MPHPublic Health Program
ManagerLance Armstrong Foundationclaire.schmidt_at_
laf.org512-236-8820 x161