Involving children and young people in healthcare - PowerPoint PPT Presentation

1 / 12
About This Presentation
Title:

Involving children and young people in healthcare

Description:

enter into an activity or process with the best available evidence to hand; ... decisions about their lives and in public decisions about service development. ... – PowerPoint PPT presentation

Number of Views:38
Avg rating:3.0/5.0
Slides: 13
Provided by: Pis54
Category:

less

Transcript and Presenter's Notes

Title: Involving children and young people in healthcare


1
Involving children and young people in healthcare
2
  • Why is involvement of children and young people
    different?
  • Enabling greater engagement and participation
    does present particular challenges for those
    commissioning and delivering services for
    children and young people. We have come to
    realise at last that if we want to know what
    children and young people think we must ask them.
    We can not assume that as adults we can ever see
    things from the perspective of a child or young
    person and nor should we expect parents and other
    carers to be able to give an accurate proxy view
    of a child. This is not to say that they do not
    also hold views that we should also listen to,
    but rather that the two viewpoints are not
    interchangeable. What this means is that we have
    to put in place sustainable and robust structures
    and systems to engage with the children and young
    people who use, or potentially will use, our
    services.

3
Map existing activity
  • Undertake a brief audit of involvement activity.
  • PPI covers a spectrum of activity, including
  • user participation in decisions about treatment
    and care
  • user involvement in service development e.g.
    planning and design of services, commissioning
    and
  • user evaluation of services.
  • Gaps in your PPI activity.

4
Define the aims and goals of new activity
  • Key questions you need to consider in this phase
    are
  • Why are you involving people?
  • What do you want to change, evaluate or develop?
  • Is this a continuous and proactive involvement
    activity to support key decision making, or
    ongoing decisions about service redesign?
  • Is this an activity which is responding to a
    particular issue identified through audit or
    raised, for example, by the Local Involvement
    Network (LINk)?

5
Identify existing information
  • This is an essential part of the involvement
    process in order to
  • avoid undertaking activities that are already
    taking place elsewhere
  • enter into an activity or process with the best
    available evidence to hand
  • identify what sorts of activities have been
    successful in the past and
  • identify the staff who have experience and
    expertise in involvement, who can help identify
    what has been done before as well as advising on
    appropriate approaches.
  • A good starting point is to make sure you are
    aware of legal and policy information that relate
    to the activity, large scale relevant research
    and any relevant public health or demographic
    data.

6
Identify available resources
  • Identify what you already have and what you need.
  • You need to consider including
  • staff time
  • fitting the methods to the available resources
  • reimbursement of peoples expenses/reward and
    recognition for their time and
  • support for staff and people you involve.
  • A dedicated and realistic budget is crucial to
    support involvement activities across an
    organisation.

7
Identify people
  • In the first instance, those you wish to involve
    are likely to
  • be in one or more of the following
    categories
  • patients or carers/advocates and former carers
  • potential patients and carers including either
    specific groups of people who are consider to be
    excluded or hard to reach
  • the general public
  • members of local voluntary and community
    organisations
  • commissioners of services and
  • service providers.
  • You can then segment these groups into smaller
    subsets by characteristics such as age, gender,
    known illness, occupation and so on. You will
    then need to decide on how many of each
    category or groups you will involve.

8
Identify methods
  • The method or methods must fit the activity.
  • Consider all of those questions identified in
    earlier phases
  • Why are you involving people?
  • What are your aims and goals?
  • What have you done before in this area? What has
    worked and what has not worked?
  • What resources (money, people, time) do you have
    at your disposal?
  • Which segments of the community do you need to
    involve?
  • There are, of course, many times when a single
    method of involvement will not be sufficient and
    the nature of activity requires a mix of methods
    in order to maximise involvement.

9
Work out how you will evaluate the activity
  • Evaluation is a crucial aspect of PPI.
  • You must choose an evaluation process that
    reflects
  • why you are involving people (who)
  • what the focus is (what) and
  • and using which methods (how).
  • You must evaluate your work to see if it has had
    an impact and whether that impact is an
    improvement.
  • This not only helps you in your current work but
    will inform future activity.

10
Identify how you will feed back
  • Prompt feedback is especially important in the
    area of
  • end of life care.
  • All who participate in PPI activities, i.e.
    patients, carers, members of the public and
    staff, should routinely receive feedback about
    initiatives in which they involved, explaining
    the outcome, impact and if necessary explaining
    why it was not possible to implement their
    suggestions.

11
For more information
www.actionforsickchildren.org
www.nhscentreforinvolvement.nhs.uk
12
Reading list
  • Action for Sick Children (1998) Pictures of
    Healthcare - A childs eye view. Action for
  • Sick Children, London.
  • Action for Sick Children (2006) Principles of
    Involving Children and Young People in the
    Service Planning and Delivery Processes for
    Hospital Services. Action for Sick Children,
    London.
  • Alderson P Montgomery J (1996) Health Care
    Choices making decisions with children. London
    Institute for Public Policy Research (IPPR)
  • Badham B Wade H (2005) Hear by Right. Standards
    for the active involvement of children and young
    people (revised edition). National Youth
    Agency/Local Government Association.
  • Boyden J Ennew J (Eds) (1997). Children in Focus
    a manual for participatory research with
    children, Rädda Barnen, Stockholm.
  • Cavet J Sloper P. (2004a) The participation of
    children and young people in decisions about UK
    service development. Child Care, Health and
    Development (30) pp 613-621.
  • Cavet J Sloper P. (2004b) Participation of
    disabled children in individual decisions about
    their lives and in public decisions about service
    development. Children and Society (18) pp
    278-290.
  • Coad, J (2007) Using art based techniques in
    engaging children and young people in health care
    consultations audit and/or research, Journal of
    Research in Nursing. September. Vol 12 (5)
    p567-583.
  • Coad, J Houston, R (2007) Involving children and
    young people in the decision-making processes of
    healthcare services. Action for Sick Children.
    London
Write a Comment
User Comments (0)
About PowerShow.com