Fiona Reddington

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Data Sharing Update

• Fiona Reddington
• NCRI Informatics Coordination Unit

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The NCRI Partnership
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NCRI Strategic Framework for the Development of
Cancer Research Informatics
2 key points
Common data standards should be adopted
Data sharing should be the norm
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Data Sharing Guiding Principles

• Joint approach across NCRI
• Consistent messages regarding policy
• Build on existing resources and standards
• Recognise this will be easier in some areas than
  others
• Phased implementation
• Empowering the research community
• Recognise resource requirements
• Flexibility
• International Compatibility EBI/NCI

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Data Sharing Background

• July 2003 - Strategic Framework approved
• Oct 2003 Data Sharing group established
• March 2004 Draft data sharing policy published
  online
• Summer 2004 pilots commence in collection of
  data sharing strategies

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Current Situation - Partners

• CR-UK have formally adopted the NCRI Data Sharing
  Policy
• DH have funded a demonstrator project to explore
  implementation of data sharing
• YCR to include data sharing section in new
  application forms (Aug 2005)

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Demonstration Projects

• Platform Reference Model
• Imaging and Pathology
• Data sharing is key to both these projects