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Disability Disclosure Lou Ruccolo Presenter

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Title: Disability Disclosure Lou Ruccolo Presenter


1
Disability Disclosure Lou
Ruccolo - Presenter
2
Presentation Objectives
  • Explain terminology connected with disability
    disclosure
  • List environments where accommodations may be
    needed
  • Explain when, what, why, and how to disclose
  • Assist stakeholders/students in understanding
    disability disclosure

3
One of the most personal decisions a student with
a disability will make is whether or not to tell
someone about their disability.
4
Terminology
  • Disability definition changes from IDEA (used
    through grade 12) to ADA (used in post-secondary
    education and employment)
  • Individual must meet at least 1 of these 3 ADA
    conditions
  • A physical or mental impairment that
    substantially limits 1 or more major life
    activities,
  • A record of such impairment, or
  • A perception by others as having an impairment

5
Terminology
  • Self-determination the desire, ability, and
    practice of directing ones own life
  • Purpose of self-determination includes
  • Setting short- and long-term goals and achieving
    them
  • Understanding individual strengths and describing
    them to others
  • Knowing when to seek help and who to ask
  • Knowing what accommodations are most effective at
    school and at work

6
Terminology
  • Informed choice the process of making a decision
    after considering relevant facts and weighing the
    pros and cons of the decision
  • Decision making process
  • Where to find the relevant facts
  • Pros and Cons of each choice

7
Terminology
  • Proactive
  • Includes a positive attitude
  • Know what you want to ask for and what you want
    the outcome to be
  • Be prepareddont get caught being asked for
    information that you havent thought about

8
Terminology
  • Disclosure intentionally releasing personal
    information about yourself for a specific purpose
  • Specific personal information about ones
    disability is not essentialwhat is needed
  • How ones disability affects their capacity to
    learn and perform effectively
  • The environment, supports, and services needed
    for an individual to access, participate, and
    excel

9
Needs/Strengths
  • Self-determination should empower individuals to
    seek assistance when needed
  • No requirements that an individual disclose their
    disability
  • No need for accommodations?No need to disclose

10
Self-Determination is
  • the process of taking control and making
    decisions that affect ones life.

11
Self-Determination helps students
  • make their own decisions
  • set their own goals
  • manage their own lives
  • participate in decision making

12
Research
  • A study conducted with more than 1500 successful
    people from business, science, sports and the
    arts reveal that successful people in any field
    excel at making decisions, self-managing their
    behavior and adapting to changing circumstances.
  • Garfield, 1986

13
Self-Determination Constructs
  • Self-advocacy
  • Decision-making
  • Self-evaluation
  • Adjustment
  • Independent performance
  • Self-awareness

14
Self-Determination Constructs
  • Knowing oneself
  • Valuing oneself
  • Developing a plan
  • Taking action
  • Experiencing outcomes

15
Self-Advocacy
  • is defined as the ability to speak and act on
    behalf of ones self and is an important skill
    for students in school settings, including
    Transition IEP meetings and in post-school adult
    life.

16
Self-Advocacy
  • IDEA - Entitlement
  • ADA/504 - Eligibility
  • Students must self-identify, prove services are
    needed and self-advocate for necessary
    accommodations. A comprehensive Summary of
    Performance will assist a student with meeting
    requirements to receive services in postsecondary
    institutions.
  • Employment
  • Students should request feedback,
    self-evaluate/self-monitor.

17
Use Your Abilities!
18
Postsecondary School Disclosure
  • Contact the campus Office of Disability Services
  • Be prepared to
  • Disclose the disability
  • Request accommodations
  • Provide documentation

19
Benefits of Disclosure at a College
or University
  • Find out about available supports and services
  • Identify adjustments needed in a study
    environment
  • Discuss academic requirements for chosen course
    of study

20
Benefits of Disclosure at a College or
University
  • Receive assistance for needed training or
    awareness from faculty members and other staff
  • Ensure that faculty members are familiar with and
    implement the accommodations that are required

21
When To Disclose In
Postsecondary Education
  • Prior to enrollment
  • At the time of enrollment
  • During the semesterbut beware, this may be too
    late and accommodations may not be available in
    time!
  • Never

22
What To Disclose in
Postsecondary Education
  • General information about the disabilitynot all
    medical or personnel information
  • Why chose to disclosehow it will benefit
    academic performance
  • Accommodations that have worked in the past

23
What To Disclose in
Postsecondary Education
  • Anticipated academic accommodations in
    post-secondary education
  • Positive results that the disability and other
    life experiences have had on studies
  • Focus on abilities!

24
To Whom To Disclose in
Postsecondary Education
  • Disability Support Services staff
  • Admissions Officer (this may not be necessary and
    depends on the schoolcheck with the Disability
    Support Services staff at the school)
  • Faculty
  • Academic Advisor

25
How To Disclose
  • Be assertive and forthrightnever aggressive or
    confrontational
  • Maintain eye contact
  • Stay on topic
  • Be honest and speak clearly
  • Show respectbe polite
  • Be willing to compromise

26
Rights and Responsibilities
  • Rights include
  • Fair treatment without discrimination
  • Discuss academic needs, supports, and
    accommodations in a non-judgmental setting
  • Disclosure treated confidentially and
    respectfully
  • Know what happens to shared information
  • Obtain information about disability support
    services
  • Be self-determined and proactive

27
Rights and Responsibilities
  • Responsibilities include
  • Understand whats required for chosen course of
    study
  • Following up with Disability Support Services and
    faculty after disclosure
  • Advise faculty and staff in a timely mannergive
    them time to respond

28
Employment Disclosure
  • Job applicants have the right to ask for a
    reasonable accommodation at any time during the
    application process.
  • Under the ADA, potential employers cannot ask
    questions that would cause an applicant to
    disclose information about a disability in a job
    interview

29
Illegal Questions At A Job
Interview
  • Do you have a disability or medical condition?
  • Have you ever been hospitalized?
  • Do you take prescription drugs?
  • Have you ever been treated for a drug or alcohol
    problem?
  • Did you receive workers compensation from your
    last job?

30
Allowable Questions At A Job
Interview
  • Can you perform the essential duties of the job,
    with or without reasonable accommodations?
  • Can you tell (or demonstrate) how you will
    perform these duties?
  • Can you meet the attendance requirements of the
    job?

31
Medical Examinations
  • Cannot be required BEFORE a job has been offered
  • Can only be required after a job has been offered
    if thats required of ALL new employees
  • Tests for current illegal drug use are not
    covered under the ADA and are allowed as long as
    all applicants have this requirement

32
Why To Disclose At Work
  • Accommodations at the workplace are only provided
    when the disability is disclosed and
    accommodations are requested
  • Can the person self-accommodate or do they need
    assistance
  • Be prepared to provide creative and practical
    suggestions for needed accommodations

33
Why Disclose At Work
  • To develop a career plan that addresses possible
    barriers and accommodations
  • To identify services and supports
  • To determine if the requirements of a position
    can be met, with or without reasonable
    accommodation
  • To develop mentoring and peer support with other
    employees and employers with disabilities

34
When To Disclose At Work
  • Flexibility
  • Before Could be an asset when applying at
    organizations that serve persons with
    disabilities
  • During If the disability is apparent it could
    serve as a way to explain how it will not be a
    barrier to performance
  • After If performance is affected or new
    responsibilities are assigned
  • Never Performance is not an issue

35
What to Disclose At Work
  • General information about the disability
  • Reason to disclose
  • Impact on job performance
  • Types of accommodations that have worked in the
    past
  • Types of accommodations needed
  • How disability and life experiences can
    positively impact employees work performance

36
Rights and Responsibilities
  • Rights include
  • Disability information treated with
    confidentiality and respect
  • Seek information about hiring practices from any
    organization
  • Choose to disclose disability information at any
    time during the employment process
  • Receive appropriate accommodations

37
Rights (cont.)
  • Be considered for a position based on skill and
    merit
  • Be respectfully questioned about the disability
    and the purpose of accommodation
  • Be self-determined and proactive

38
Rights and Responsibilities
  • Responsibilities include
  • Disclosing need for accommodations if the
    employee desires any work-related adjustments
  • Search for jobs that require employees skills
    and abilities
  • Inform the manager or interview panel about need
    for appropriate interview accommodations ahead of
    time

39
Responsibilities (cont.)
  • Negotiate reasonable accommodation(s) with an
    employer when a job is offered and later as
    needed
  • Make sure the interviewer knows about perspective
    employees skills and meritswhy they would
    benefit from having them as an employee
  • Be truthful, self-determined, and proactive

40
Other Times To Disclose
  • Social events and community settings
  • Going to a concert with friends
  • Planning a date
  • Meeting someone for lunch or dinner
  • Meeting people for the first time
  • Joining clubs or taking part in community or
    volunteer activities

41
To Whom To Disclose In Social and Community
Settings
  • Friends and acquaintances
  • Relatives
  • Business owners or their staff
  • Public transportation staff
  • Parks and recreation staff
  • Events coordinator
  • Mentors and role models

42
Summary of Performance (SOP)Transition Exit
Summary
43
Summary of Performance
  • The Summary of Performance / Transition Exit
    Summary, with accompanying documentation, is
    critical as a student transitions from high
    school to higher education, training and/or
    employment. This information is necessary under
    Section 504 of the Rehabilitation Act and the
    Americans with Disabilities Act to establish a
    students eligibility for reasonable
    accommodations and supports in postsecondary
    settings.

44
Summary of Performance
  • Information about students current level of
    functioning is intended to help postsecondary
    institutions consider accommodations for access.
    These recommendations do not imply that students
    who qualified for special education in high
    school will automatically qualify for services in
    the postsecondary education or employment setting
    eligibility decisions are made on a
    case-by-case basis

45
Summary of Performance
  • Summary of Performance (SOP)
  • Academic achievement and functional performance
  • Recommendations on how to assist the student in
    meeting postsecondary goals

46
Summary of Performance
  • Required for students exiting school with a
    Standard Diploma or aging out of program
  • Recommended practice for all students exiting
    school (e.g., Special Diploma prior to age 22

47
Summary of Performance
  • Education or Training/Employment/Independent
    Living
  • Describes
  • Accommodation needs
  • Assistive technology needs
  • Support needs
  • Academic and functional performance summary
  • Transition assessments
  • Report cards, grades, etc.

48
SOP Model Template
  • Part 1 Background Information
  • Part 2 Students Postsecondary Goals
  • Part 3 Summary of Performance
  • Part 4 Recommendations meeting PS Goals
  • Part 5 Student Input

49
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