European Parliament rapporteur: MEP Miroslav Mikolasik (Slovaquia, EPP) & key ... Adoption by European Parliament at first reading in Plenary session (vote 403 ...
Directorate General for Research = European public research funding body ... Reflexion workshop April 2005 (DG RTD) Received position papers (e.g. EURORDIS) ...
Vice Chair, Committee for Orphan Medicinal Products, COMP/EMEA. ICORD February 2005 ... Doctor Robert/Autonomous University of Barcelona Carlos III Feder; ...
European Clinical Trial Directive 1998/1999 Concerns expressed by European Patient Organisations Recommendation: ... Voor Glaxo Wellcome gelden iets andere cijfers: ...
As the organisation representing 30 million EU patients affected by rare ... field (the AFM -French Muscular Dystrophy Association and the Italian Telethon, for ex. ...
Rare Diseases and neonatal screening. listening to the opinion of patient support groups ... 6/ RAPSODY (Rare Disease Patient Solidarity - http://www. ...
Conferencia Europea de Gen tica Humana (Amsterdam, 6-9 Mayo 2006) Conferencia EPPOSI (Madrid, 26-27 Octubre 2006) COMITES EUROPEOS CON REPRESENTANTES ...
A korai fejleszt s fontoss ga a Ritka Betegs gek eset n A betegszervezetek szerepe - RIROSZ. Pog ny G bor Ph.D. www.rirosz.hu Ritka s Velesz letett ...
Five years with the Orphan Drug Directive in the EU ... SWAG. Development phase. CHMP. MA application (designated as orphan) Therapeutic indication ...
Rare diseases are defined as affecting ... Primary myoblast culture from fresh human muscle biopsy ... Freezing and thawing of vital muscle biopsy for culture ...
To propose recommendations for future action at national and European level ... Balance benefice / malefice. Positive. Improving access for EU citizens ...
Five years with the Orphan Drug Directive in the EU. Achievements by the COMP ... issue for ensuring long-term sustainability by national competent authorities ...
Alzheimer's Disease International. Multiple Sclerosis International Federation ... Cancer Patients Association of Slovenia. American Diabetes Association ...
La federaci n continua avanzando (crecimiento asociados): Dic 1999 7. Ene 2000 24. Jun 2001 36 ... (European Organization of Rare Disorders) Eventos: ...
5 000 to 8 000 ER. 1 300 medicamente bien descriptas ( 2000) ... Profesionales de Rosario y Hosp. Italiano Bs As. Talleres de internet y consultas. ...
Dr. Erik Tambuyzer. 2005 Industry White Paper. Plovdiv, May 2005 ... EuropaBio is the European Biotechnology Industry Association representing over ...
with erythema nodosum leprosum (ENL), a painful complication of leprosy. ... leprosy complication: the skin manifestations of erythema nodosum leprosum. ...
Bloqueantes de receptores tipo II de bradicinina. C1 ... dise ado a partir de un dominio Kunitz proteico ... (Committee on Orphan Medicinal Products): 21 ...
Erik Tambuyzer - Genzyme Europe. Chair Healthcare Council, EuropaBio. What is EuropaBio ? ... It aims to be a promoting force for biotechnology and makes proposals to ...
To a national plan ( strategy ) for Rare Diseases. in Belgium. Herwig Jansen ... Ibuprofen is used to treat Patent ductus arteriosus in neonates (RD) ...
Experiences of a Hungarian NGO from an EU project ... H-1095 Budapest, Viola u. 19., Hungary, ... To help all individuals with Williams syndrome and those with similar ...
Title: Terapia G nica Author: Pos-Graduacao Genetica Last modified by: user Created Date: 7/24/2000 1:49:14 PM Document presentation format: Apresenta o na tela
2 years if Paediatrics Investigational Plan (PIP) results included in the MA and ... PDCO Paediatric Committee - CAT Committee for Advanced Therapies ...
Definici n de Enfermedad Rara en la Uni n Europea: 5 casos /10.000 habitantes y ... epidemiol gicos y terap uticos, a la vez que nos proporcione una orientaci n m s ...
Key Line. An EU health information system, with indicators on health-related behaviour, ... Being developed on the basis of Public Health Programme projects and ...
Centro de Investigaci n sobre el S ndrome del Aceite T xico y Enfermedades Raras ... Se incentiva el desarrollo de Medicamentos Hu rfanos (Orphan Drug Act. USA, 1983) ...