Title: Cultural Competency and Coalitions In Action
1Cultural Competency and Coalitions In Action
- Cheza Garvin, PhD, MPH, MSW
- Program Director, Chronic Disease Prevention
Healthy Aging - Public Health - Seattle King County University
of Washington School of Public Health and
Community Medicine, - Social and Behavioral Sciences Program
- (2006)
2Acknowledgments
- Mike Smyser, MS, Epidemiologist
- James Krieger, MD, MPH, Chief Epidemiologist
- Epidemiology, Planning Evaluation
- Public Health Seattle King County
- Lois Watkins, REACH Program Manager
- Chronic Disease Prevention Healthy Aging
- Public Health Seattle King County
3OBJECTIVES
- Learn what we mean by health disparities.
- Learn which groups report experiences of
discrimination in health care settings. - Learn recommendations for cultural competence,
including the Culturally and Linguistically
Appropriate Services (CLAS) Standards - Learn about Seattle King County REACH community
interventions. - List one or more additional Public Health
activities with a focus on health disparities
4Definition of Health Disparities
- Inequalities in health status, access, care
and/or outcomes. - Health Disparities describe the disproportionate
burden of disease, disability and death among a
particular population or group when compared to
the proportion of the entire population. - SourceWashington State Board of Health
5NATIONAL HEALTH DISPARITIES DATA
- Disease Prevalence, Compared to White Americans
- Infant mortality 2½ times higher in African
Americans, 1½ times higher in Native Americans - Prostate Cancer 2 times higher among African
Americans
6NATIONAL HEALTH DISPARITIES DATA
- Disease Prevalence, Compared to White Americans
- Cervical Cancer 5 times higher in Vietnamese
Women, who are less likely to have had a pap test
in last three years - Stomach Cancer 2 to 3 times higher among Latinos
- Colorectal Cancer higher among African Americans
and increasing among African American men
7NATIONAL HEALTH DISPARITIES DATA
- Increasing rates of AIDS among African Americans,
Hispanics and women - Higher Prevalence among White Women
- Breast Cancer
- Higher Mortality from breast cancer among African
American women
8NATIONAL HEALTH DISPARITIES DATA
- Disease Prevalence, Compared to White Americans
- Heart Disease 2 times higher among African
American men - Hypertension higher among African Americans
- Stroke higher among African Americans
9NATIONAL HEALTH DISPARITIES DATA
- Disease Prevalence, Compared to White Americans
or to Average Rate - Diabetes Nearly 3 times higher among Native
Americans than the average rate 70 higher among
African Americans - Higher prevalence of end stage renal disease
related to diabetes, among same groups
10Understanding the Complexityof
HealthDisparities
Health Behaviors and Personal Risk Factors
Access to Health Services
Institutionalized biases (racism, sexism, etc.)
Mental Health and Social Support
Trust in Health System and Research
Economic Opportunity and Equity
Stress due to Social Factors
Education Background and Opportunity
Environmental Risk
Language and Other Cultural Factors
11A King County, WA. Case StudyRacial and
EthnicDiscriminationin Health Care Settings
12Sources of information
- Random surveys of King County residents
- Ethnicity and Health Survey
- Included 2,400 adults, 1995-1996
- Communities Count 2000 Survey
- Included 1,500 adults, late 1999
- Personal Interviews
- Interview Project
- Included 51 African Americans, Jul-Sep 1999
- Intended to describe range of experiences
13INDIVIDUAL EXPERIENCE of HEALTH CARE
DISCRIMINATION
14Adults who experienced discrimination in the past
year, most frequently cited types of
discrimination by race and ethnicity, King
County, 1999
All other types (language or accent, religion,
disability, sexual orientation were cited by
less than 10 of respondents.
Source Communities Count 2000
15What does discrimination in health care settings
look like?
16Example Interview Project Findings Experiences
Reported by 51 African Americans
- Experiences ranged from incidents of differential
treatment to rude behavior and racial slurs. - Most respondents were surprised by the incidents
they did not expect this type of treatment and
considered the personal impact to be very severe. - Many respondents had more than one story.
- Most of the events reported are recent.
- All events were perceived to be racially
motivated. - The events reported occurred in 30 facilities,
both public and private, located all over King
County
17Examples of Reported Experiences
- He treated the Caucasian woman better and
differently. - The radiologist made a couple of crude remarks,
like I was dumb. - I was in the emergency room at the hospital and
I feel that I was ignored due to my race. - I know you shoot dope, a nurse was reported to
have accused one of the respondents. - You people accepted pain as part of slavery
because you tolerate pain so well, said a nurse
to a respondent who, before having a breast
biopsy, requested a sedative due to a low
tolerance for pain.
18What was the response to the reported event?
- About half made a complaint. Most were verbal
few were written or formal. - Many respondents mentioned actively avoiding
offending personnel and/or facilities where the
incident took place. - Some respondents reported delaying treatment due
to the negative experience. - Others reported avoiding the health care system.
19Comments from respondents
- I vowed never to take my child to ____
Hospital. - It was the last time my son would see Dr.
_____. - I was so ticked off when I went home that I cut
up my ____ card. - I have not sought surgery for my other leg. I
would like surgery but I guess that Ill find
someone else. Sometimes my leg hurts.
20Differential Treatment and Access to Medical Care
by Race and Ethnicity
- A review of many studies conducted in different
parts of King County indicated significant
differences in medical care received by persons
of different racial and ethnic backgrounds. - Differential treatment and access to care in most
studies could not be explained by such factors
as socioeconomic status, insurance coverage,
stage or severity of disease, co-morbidities,
type and availability of health care services,
and patient preferences. - (Mayberry et al., Med Care Res Rev 2000)
21Examples of Differential Treatment and Access
- Heart Disease
- With respect to by-pass operations, in five
studies African Americans were 32 to 80 less
likely to receive these operations compared to
whites with similar disease severity. - (Mayberry et al., Med Care Res Rev 2000)
22Examples of Differential Treatment and Access
- Cancer
- Several studies have documented differences with
respect to certain types of cancer (e.g., lung
and colon). African Americans were often less
likely to receive major therapeutic procedures. - One study of nursing homes found African
Americans with cancer to be 63 less likely to
receive any pain medication. - (Mayberry et al., Med Care Res Rev 2000)
23Have you ever experienced, seen or heard
discrimination against people of color in medical
or non-medical settings?
- Someone being passed over in a store (or other
service) line? - Someone being stopped, or even arrested for
driving while black, AKA Racial Profiling? - A race-based joke?
- Assumptions of addictions, criminal behavior,
subservience, low (or unusually high)
intelligence? - A racial slur or name calling?
- Exclusion from housing, clubs, etc.?
24What emotions did you experience?
- Anger
- Disgust
- Disappointment
- Fear
- Loathing
- Curiosity
- Sympathy
- Protectiveness
- Empathy
- Embarrassment
- Confusion
- Apathy
25ASSURING CULTURAL COMPETENCE
- Study Recommendations (Some of these are things
you may be able to do where you work.) - Health Care Staff Training
- physicians, nurses, PTs, dieticians, mental
health, front desk, all staff - Diverse Cultural Representation among Health Care
Staff - Self Awareness
- Change Institutional Policies
- Monitoring Progress
- Community Examples
26Study Recommendations
- Train all health care providers and support staff
in cultural competency - Incorporate cultural competency measures in
individual performance evaluations. - Periodically evaluate training to improve
effectiveness. - Providers should be able to respectfully obtain
cultural and ethnic heritage information of
clients when this information is a necessary
component of quality service.
27Study Recommendations
- Change institutional policies in order to
- Maintain a non-discriminatory workplace
- Assure a diverse workforce at all levels
- Promote awareness among consumers regarding
rights and grievance processes - Require subcontractors to report on racial and
ethnic background.
28Study Recommendations
- Continue studies that will contribute to
eliminating discrimination by - Collecting information routinely regarding race
and ethnic background - Monitoring and reporting differential treatment
- Examining and reporting experiences of other
racial and ethnic groups.
29Guidelines for Cross-Cultural Practice
Physician Toolkit To Implement Cross-Cultural
Practice Guidelines for Medicaid Practitioners
30Culturally and Linguistically Appropriate
Services (CLAS) Standards
- Standard 1Health care organizations should
ensure that patients/consumers receive from all
staff member's effective, understandable, and
respectful care that is provided in a manner
compatible with their cultural health beliefs and
practices and preferred language. - Standard 2Health care organizations should
implement strategies to recruit, retain, and
promote at all levels of the organization a
diverse staff and leadership that are
representative of the demographic characteristics
of the service area. - Standard 3Health care organizations should
ensure that staff at all levels and across all
disciplines receive ongoing education and
training in culturally and linguistically
appropriate service delivery.
http//www.omhrc.gov/templates/content.aspx?ID87
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31CLAS Standards
- Standard 4Health care organizations must offer
and provide language assistance services,
including bilingual staff and interpreter
services, at no cost to each patient/consumer
with limited English proficiency at all points of
contact, in a timely manner during all hours of
operation. - Standard 5Health care organizations must provide
to patients/consumers in their preferred language
both verbal offers and written notices informing
them of their right to receive language
assistance services. - Standard 6Health care organizations must assure
the competence of language assistance provided to
limited English proficient patients/consumers by
interpreters and bilingual staff. Family and
friends should not be used to provide
interpretation services (except on request by the
patient/consumer). - Standard 7 Health care organizations must make
available easily understood patient-related
materials and post signage in the languages of
the commonly encountered groups and/or groups
represented in the service area.
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32CLAS Standards
- Standard 8 Health care organizations should
develop, implement, and promote a written
strategic plan that outlines clear goals,
policies, operational plans, and management
accountability/oversight mechanisms to provide
culturally and linguistically appropriate
services. - Standard 9Health care organizations should
conduct initial and ongoing organizational
self-assessments of CLAS-related activities and
are encouraged to integrate cultural and
linguistic competence-related measures into their
internal audits, performance improvement
programs, patient satisfaction assessments, and
outcomes-based evaluations. - Standard 10Health care organizations should
ensure that data on the individual
patient's/consumer's race, ethnicity, and spoken
and written language are collected in health
records, integrated into the organization's
management information systems, and periodically
updated. - Standard 11Health care organizations should
maintain a current demographic, cultural, and
epidemiological profile of the community as well
as a needs assessment to accurately plan for and
implement services that respond to the cultural
and linguistic characteristics of the service
area.
http//www.omhrc.gov/templates/content.aspx?ID87
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33CLAS Standards
- Standard 12Health care organizations should
develop participatory, collaborative partnerships
with communities and utilize a variety of formal
and informal mechanisms to facilitate community
and patient/consumer involvement in designing and
implementing CLAS-related activities. - Standard 13Health care organizations should
ensure that conflict and grievance resolution
processes are culturally and linguistically
sensitive and capable o f identifying,
preventing, and resolving cross-cultural
conflicts or complaints by patients/consumers. - Standard 14Health care organizations are
encouraged to regularly make available to the
public information about their progress and
successful innovations in implementing the CLAS
standards and to provide public notice in their
communities about the availability of this
information.
http//www.omhrc.gov/templates/content.aspx?ID87
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34Eliminating HealthDisparitiesWhat will it Take?
Freedom from Discrimination
Promotion of Healthy Behaviors
Access to Health Services
Trust in Health System and Research
Mental Health and Social Support
Reduced Stress due to Social Factors
Economic Opportunity and Equity
Lower Environmental Risks
Educational Opportunity
Respect for Language and Other Cultural Factors
35What is the Government/County/Public Health Role
in Addressing Health Disparities?
- Prepared for Disparities Town Hall, February 27,
2006
36National Trends to Reduce Disparities
- Institute of Medicine, 2002 Publication Unequal
Treatment brought attention to health disparities - Department of Health and Human Services Office of
Minority Health changing name to Office of
Minority Health and Health Disparities - Centers for Disease Control and Prevention (CDC)
REACH Program - National Minority Health and Health Disparities
Institute for disparities research
37(No Transcript)
38Multiple Levels of Local Action at Public Health
- Environment
- Policy and Social Justice
- Medical Care
- Community Prevention Interventions
- Working in Partnership with others
- Collaboration and Coordination
- Awareness and Education
- Prevention and Management
- Research and Demonstration Programs
39Environment
- Environmental Health Community Assessment Team
- Multi-disciplinary team approach to planning
- Focus on the built environment and accessibility
- Indoor air quality
- Outdoor air, noise, waste pollution
40Policy and Social Justice
- Diversity and Social Justice Group
- Public Health Against Institutionalized Racism
(PHAIR) - Creating an environment free of discrimination
and racism - Assisting in, or supporting development of
equitable legislation
41Medical Care
- Public Health Centers
- Low cost medical care
- Locations accessible to diverse communities
- Interpreter availability
- Collaborations with community clinics and
hospitals - Supporting the integration of culturally relevant
approaches to communication and care
42Community Prevention
- Chronic Disease Prevention and Healthy Aging
- Nutrition for low income older adults
- Diabetes focus on reducing disparities
- Asthma focus on low income
- Overweight Prevention newly developing program
with opportunity to focus on disparities - Healthy Aging messaging through Healthy Aging
Partnership, link to African American Elders
Program
43Community Prevention
- Steps to a Healthier US
- Asthma
- Diabetes
- Tobacco
- Overweight
- Nutrition and Physical Activity
- Community Health Workers
- Clinic-based Champions
- English, Spanish, Vietnamese
44Community Prevention
- Washington Breast and Cervical Health Program
(WBCHP) a population-based program to reduce
mortality and morbidity from breast and cervical
cancer - In 2004, 5446 were screened, 12.8 of 42,388
eligible women, 53 women of color - early detection of cancer through regular
mammogram and Pap tests, diagnostic services and
prompt access to cancer treatment. - WBCHP is dedicated to eliminating health
disparities among under-served populations,
including women of color, women living in rural
communities, lesbians and women aged 50 and
older. - WBCHP serves women with low incomes and no health
insurance who are age 40 to 64. - Administered by Public Health Seattle King
County in King, Kitsap, Jefferson and Clallam
counties.
45Community Prevention
- Colorectal Cancer Screening 3-year demonstration
project funded by the Centers for Disease Control
and Prevention (CDC). - Piloting a comprehensive colorectal cancer (CRC)
community recruitment, education and screening
program - Treatment access is linked to the WA State Breast
and Cervical Health Program (WBCHP) and
Comprehensive Cancer Control Plan (CCCP). - Primary goal is to develop a replicable clinic
and community-based system to increase CRC
screening among priority populations, - Support the CCCP efforts to increase CRC
screening among the general population. - Priority populations African American and
American Indian
46Community Prevention
- Reducing Racial Disparities In Birth Outcomes
- Infant Mortality Prevention Network (IMPN)
- Providing outreach, education and linkage
services to high-risk women and young families - General Public Health activities
- Public Health Nursing services
- First Steps/Maternity Support Services
- WIC
- Best Beginnings
- Support seek funding for community
mobilization - Native American Womens Dialog on Infant
Mortality (NAWDIM) - African American Womens Dialog on Infant
Mortality (IntraAfrikan Konnection)
47Community Prevention
- Access Outreach Team for Public Health (Seattle
South County) - Focusing on African American Latino communities
- Promoting health minimizing health disparities
by increasing access to health care and other
public benefit programs. - Last year the Seattle team contacted 14,405
individuals enrolled 841 individual into
medical programs. - South King County team contacted 8,128
individuals enrolled 562 individuals into
medical programs.
48Community Prevention
- Eastside Refugee and Immigrant Coalition (ERIC)
- Resource guides for health and community services
- Cultural Broker program beginning soon to
advocate for services for diverse populations - Korean, Russian, Chinese, Vietnamese and Spanish
49Community Prevention
- Cardiovascular Disease efforts specific to
reducing health disparities include - Support of community blood pressure screening in
African American community - Participation on American Heart Associations
Cultural Health Initiatives program
50Community Prevention
- Racial and Ethnic Approaches to Community Health
(REACH) 2010 - National Goal By the year 2010, eliminate
disparities in health status experienced by
racial and ethnic minority populations - Funding through the Centers for Disease Control
and Prevention - Diverse Coalition addressing diabetes disparities
through provision of culturally appropriate
services and community/systems change work - Interventions conducted by contracting community
agencies
51REACH 2010
- REACH Diabetes Program
- Focus on African American, Asian/Pacific Islander
American, Latino/Hispanic communities - Diabetes Education Classes
- Glucose testing, nutrition, physical activity,
- Self Management of Chronic Illness Classes
- Support Groups
- Case Coordination
- Diabetes Registry
- Referrals to Classes
- Systems Change
- Community Awareness
- English, Spanish, Cantonese, Mandarin, Korean,
Vietnamese, Filipino (Tagalog), Khmer (Cambodian)
526 National REACH Priority Areas
- Cardiovascular Health
- HIV/AIDS
- Immunizations
- Infant Mortality
- Breast and Cervical Health
- Diabetes
42 REACH 2010 Communities Nationally
53WASHINGTON STATE DIABETES DEATH RATES BY RACE AND
AGE
Rates are per 100,000 population Source
Washington Center for Health Statistics
54Diabetes Death Rate in King County by
Race/Ethnicity, Three-Year Rolling Averages,
1994-2003
55REACH 2010 SEATTLE KING COUNTY
- MISSION
- The mission of the REACH Coalition is to reduce
diabetes health disparities experienced by
communities of color. Through strong
partnerships, we will support the empowerment of
individuals, families, and communities, and
create sustainable long-term approaches to
prevention and control of diabetes utilizing all
appropriate community resources in King County.
56REACH STAFFING
- REACH Coalition Members
- Principal Investigator (PI)
- Program Manager
- Health Educator
- Certified Diabetes Educator, Nutritionist
- Community Liaisons
- Peer Educators
- Evaluation Manager
- Evaluator Interviewers
- Researchers
- Case Coordinators
- Administrators and Administrative Support
57Diabetes Education Classes
- Diabetes education
- Physical activity
- Nutrition
- Healthy eating
- Weight management
- Glucose testing
- Psychosocial issues
- Medications
Physical Activity
Nutrition Education in Spanish
58Culturally appropriate Diabetes Food Guide
Pyramids in 9 Languages
Tagalog Chinese Korean Vietnamese Japanese Somali
Samoan Khmer Spanish
59Support Groups
- Emotional support
- Common experiences
- Share resources
- Manage experiences of discrimination
- Tips for talking about diabetes with
- -Family
- -Providers
- -Friends each other
60Chronic Illness Self- Management Classes
- Increase ability to personally manage chronic
disease - Increase self-efficacy
- Develop and follow personal action plan
- Improve communication between patient and
provider - Curriculum Developed at Stanford University by
Kate Lorig, EdD.
61ENHANCED DIABETES REGISTRY USE
- Tracking of
- HbA1c
- blood pressure
- eye exams
- foot exams
- urine tests
- referrals
62CASE COORDINATION
- Complete diabetes registry
- Communicate with providers
- Communicate with patients about recommended
procedures for them - Inform patients of community activities and
resources
63COMMUNITY CAMPAIGNS
- Grocery Stores
- Restaurants
- Pharmacies
- Work Sites
- Media
64RESEARCH DEMONSTRATION REQUIRES EVALUATION
- Coalition Member Interviews
- Participant Survey - pre/post
- Focus Groups
- Key Informant Interviews
- Systems Change Interviews
- Community Documentation
65Participant Demographics
66REACH Participant Results (n 655)
- Significant improvements in
- Diabetes knowledge
- HbA1c testing, 47.9 to 64.2, (p lt .05)
- proper foot care, (p lt .05 for L/H)
- Healthy behavior change
- Increased ability to control blood sugar and
weight - Better management of complex feelings related to
living with diabetes - Self-efficacy
- Improved confidence in maintaining a healthy diet
and exercising 30 minutes a day
67Health Behavior
68Self Efficacy
69REACH CULTURAL COMPETENCE
- Coalition Membership
- Staffing
- Listening to Participants
- Language Capacity
- Literature and Training
- Community Feedback
70REACH LIMITATIONS
- Only King County
- Only Diabetes
- Native Americans Not Participating
- Limited Language Capacity
- Limited Geographic Scope
71SUSTAINABILITY and SYSTEMS CHANGE
- Integrate activities into existing service system
- Sea Mar example - Registry
- Groups and Classes
- Train peer educators and encourage continued work
- Community network establishment
- Seek additional funding
72SUSTAINABILITY HOPES AND PLANS
- Continue Diabetes Work
- Expand to Other Chronic Disease Prevention
- Expand to Primary Prevention
- Convince Funding Agencies and Legislators to
Support Efforts - Establish the REACH Alliance
- Reduce/Eliminate Health Disparities over Time
73REACH Coalition Working At Sustainability
74REACH Coalition Members
- Aging Disability Services
- Center for MultiCultural Health
- Harborview Medical Center
- International Community Health Services
- Sea Mar Community Health Centers
- University of Washington Schools of Nursing
Public Health, Nutritional Sciences and HPRC - Pacific Northwest Research Institute
- American Diabetes Association
- American Heart Association
- Qualis Health
- State Department of Health
- And Others
75REACH COALITION DEVELOPMENT
- Multi-Cultural Focus
- Attention to membership
- Over 50 agencies and individuals
- Training
- Bi-Monthly Meetings
- Sub-Committees
- Coalition Structure
76Coalition Challenges and Solutions
- 7 Languages, Hire Bilingual/Bicultural Staff,
Listen and Learn - Consensus Decision Making Bring Concerns back to
the Coalition - (Ops) - Coalition Selection Committee
- Process Discussion Take Backseat
- Multiple Cultures and Languages
- Differences of Opinion - Managing Conflict
- Distribution of Funds
- Authority Hierarchy
77Keys to Coalition Success
- Goal Setting - Implementation, Achievements
- Communication - Clear, Cultural, Guiding
Principles, Methods that work - Roles - Clearly Defined
- Infrastructure in Place
- Inclusiveness - Stakeholders, Outreach
- Cultural Competence - Race, Isms, Bias,
Generalizations - Conflict Management
- Change Takes Time (especially systems, smoking
example) - Celebrate Successes!
78WHAT MIGHT YOU DO TO INCREASE YOUR CULTURAL
COMPETENCE AND HELP TO ELIMINATE HEALTH
DISPARITIES?
- Open your empathetic heart to humans of other
hues - Recognize power differences and how they affect
you - Learn what your own biases are and channel them
in a positive direction - Discuss racism with friends/family, how to
prevent discrimination
- Speak out against discrimination when you see it
- Make your health/wellness practice one that
welcomes all and/or targets the disenfranchised - Join a local coalition or community group with
relevant goals - Be willing to learn
79Reducing DisparitiesNeeded Environmental
Strategies
- Social environment
- Jobs
- Income
- Education
- Early childhood education
- Discrimination
- Increasing availability of healthy food
- Physical environment
- Environmental exposures
- Residential segregation
- Built environment
- Healthy and affordable housing
80Reducing DisparitiesMedical Care System Changes
- Increase access to mental health and medical
care - Universal health insurance
- Remove organizational access barriers
- Locating facilities in areas of need
- Monitor disparities within organizations
- Enhance provider communication skills
- Increase cultural competence provider and
institutional
81Reducing DisparitiesMedical Care System Changes
- Offer culturally tailored health services (e.g.
community health workers, classes, outreach) - Employ more people of color as providers and
managers - Implement focused quality improvement programs
and resources for providers serving disparity
populations - Link to and support culturally relevant
community-based resources for education,
management, support and advocacy
82Reducing DisparitiesPublic Health System Needs
- Monitor disparities
- Increase access to medical and mental health care
- Support clinical quality improvement
- Screen for risk factors
- Educate community to promote healthy behaviors
- Provide self-management educations support
- Offer outreach and care coordination
- Generate social support
- Implement policy and environmental change
83Resources
Institute of Medicine. Unequal Treatment
Confronting Racial and Ethnic Disparities in
Health Care. 2002. (http//www.iom.edu/?id4475re
direct0)
84Resources
- Data
- http//www.kff.org/minorityhealth/index.cfm
- Community interventions
- http//www.preventioninstitute.org/healthdis.html
- Medical system interventions
- Evidence report/technology assessment number 90
- Strategies for improving minority healthcare
quality http//www.ahrq.gov/clinic/epcsums/minqus
um.htm - IHI quality improvement tools
- http//healthdisparities.net
- CDC disparities website
- http//www.cdc.gov/omh/aboutus/disparities.htm