National Center for the Dissemination of Disability Research

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National Center for the Dissemination of
Disability Research

• Welcome to the New NCDDR
• May 31, 2006

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NIDRRs Long-Range Plan and Knowledge Translation
Program Art Sherwood, PhD Ellen Blasiotti NCDDR
Scope of Work John D. Westbrook, PhD NIDRR
Researcher Collaborators NCDDR Website Joann
Starks NCDDR Collaborating Partners An
Overview Frank Martin
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NIDRRs Long-Range Plan and Knowledge Translation
Program Art Sherwood, PhD Ellen
Blasiotti National Institute on
Disability and Rehabilitation
Research U.S. DEPARTMENT OF EDUCATION
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NIDRR Logic Model Planning for Research Outcomes
Situation Significant gaps exist in knowledge,
skills, policy, and practice and system capacity
that prevent people with disabilities from
having equal access to opportunities for
employment, health and function, and
participation.
Long-term Outcome Arenas Changes in Overall
Conditions
Short Term Outcome Arenas Advances in
Understanding, Knowledge, Skills, and Learning
Systems via
Intermediate Outcome Arenas Adoption and Use of
New Knowledge Leading to Changes/ improvements in
Major Domains of NIDRR Research
Intended Beneficiaries
Intermediate Beneficiaries
RD
C-B
KT

• Eliminate disparities between people with
  disabilities and the general population in
• employment,
• participation community living
• and
• health and function.

• Researchers
• Clinicians
• Service providers
• Educators
• Policy experts
• Federal non-
• federal partners
• Industry reps product developers
• Employers
• Media
• Consumer advocates
• People with disabilities family members

Research Development
Policy
Discoveries
Practice
Capacity Building
Theories, Measures, Methods
Knowledge Translation
Behavior
Interventions, Products, Devices, Environmental
Adaptations
System Capacity
Performance Assessment Outcomes Evaluation
05/05/05
Contextual Factors Variable funding scientific
and technological advancements societal
attitudes economic conditions changing public
policies coordination and cooperation with other
government entities.
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National Center for the Dissemination of
Disability Research Scope of Work John D.
Westbrook, PhD
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NCDDR Staff Members
Project Director John D. Westbrook, PhD Program
Associate Joann Starks Program Associate Frank
Martin Program Associate Kathleen Murphy,
PhD Information Specialist Lin Harris Web
Administrator John Middleton Web Production
Artist Magda Acuña
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Highlights of NCDDR Scope of Work

• Focusing on Services that Facilitate
• Building of capacity of NIDRR researchers to
  negotiate the knowledge translation (KT) process
• Increasing inclusion of NIDRR-sponsored research
  in systematic reviews
• Improving consumers' access to and use of
  disability and rehabilitation research

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Implications of New KT Paradigm

• Definition of KT
• KT is defined as the exchange, synthesis, and
  ethically-sound application of knowledge within
  a complex set of interactions among researchers
  and users to accelerate the capture of the
  benefits of research through improved health,
  more effective services and products, and a
  strengthened health care system.
• Adapted from the
• Canadian Institutes of Health Research (CIHR)

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NCDDR Service Areas

• Research Quality
• Development
• Dissemination
• Technical Assistance
• Utilization Effectiveness

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Research Quality Services

• Quality and Alignment of Research Design
• Research questions(s) and research design
  (assessment)
• Type of new knowledge to be developed
• Standards of Evidence
• Implications for existing research efforts and
  to-be-proposed work

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Research Quality Services (continued)

• Evidence-based Guidelines
• For use in conducting systematic reviews
• For use in clarifying roles, responsibilities,
  targets of NIDRR researchers
• Research Registration and Reporting
• Inclusion in registries
• Change in reporting
• Low Cost/No Cost Modifications

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Development Services

• Reporting Standards
• Research reports vs. journal articles
• CONSORT, STARD, QUORUM
• Disability Research Reporting Facilitator
• Web-based supports/guides

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Dissemination Services

• Information Resources
• Increase awareness/understanding about KT
• Library of KT Resources and Strategies
• Web-based resources
• Accessing Systematic Reviews
• Search assistance

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Dissemination Services (continued)

• Registry of NIDRR-Sponsored Research
• Heighten profile of NIDRR-supported research
  results
• Online Instructional Modules
• Useful in planning or reviewing new research
  designs
• Registry of Syntheses and Evidence-based
  Systematic Reviews
• Produced by NIDRR grantees

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Dissemination Services (continued)

• Community of Practice on Research Quality
• Community of Practice on Outreach to Diverse
  Audiences
• FOCUS Publications
• Web Site
• Webcasts

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Technical Assistance Services

• On-site technical assistance
• Off-site technical assistance
• Toll-free telephone
• Workshops

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Technical Assistance Services (continued)

• Proposal reviewer resources
• Characteristics of research quality
• Module
• Systematic review training
• Campbell Collaboration electronic and
  teleconference

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Utilization Effectiveness Services

• Support for Conducting Systematic Reviews and
  Evidence-based Systems
• Direct assistance to those conducting systematic
  reviews
• Evidence/Product Grading System
• Disclosure for public dissemination and
  utilization

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Utilization Effectiveness Services (continued)

• Consumer Resources
• Most effective communication and resource systems
• Evidence-Based Technology
• Merging evidence-based information in technology
  engineering and transfer

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Consensus Building Strategies with NIDRR Grantees

• Knowledge Translation Planning Committee
• Standards and Research Review Board

Joann Starks
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National Center for the Dissemination of
Disability Research (NCDDR) Organizational Chart
for Major Responsibilities
Southwest Educational Development Laboratory
(SEDL) Wesley Hoover, President and CEO
Disability Research To Practice Program John D.
Westbrook, Program Manager
NCDDR Standards and Research Review Board John D.
Westbrook, Facilitator
Knowledge Translation Planning Committee John D.
Westbrook, Facilitator
Task Force on Systematic Review and
Guidelines Marcel Dijkers, Facilitator Joann
Starks, NCDDR Liaison
Task Force on Knowledge Translation
and Knowledge Value Mapping Juan Rogers,
Facilitator Frank Martin, NCDDR Liaison
Task Force on Standards of Evidence and
Methods Mark Johnston, Facilitator John
Westbrook, NCDDR Liaison
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Knowledge Translation Planning Committee

• Will provide guidance to the NCDDR and NIDRR
  staff regarding supports and services to
  strengthen the quality of NIDRRs KT Program.
• NCDDR staff will work closely with NIDRR-funded
  KDU and KT projects to incorporate their work
  into larger scale efforts in guideline
  production.

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The KT Planning Committee will draft position
statements

• To help in identifying needs
• Suggesting transition resources and supports
• Describing information dissemination and
  utilization conduits appropriate for the
  development of NIDRRs KT Program

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Logistics
John Westbrook, PhD, will serve as
facilitator Electronic discussion
list exists Committee will meet in person
annually Committee will meet via
teleconference monthly/ bimonthly
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Members of KT Planning Committee
Katherine Belknap ABLEDATA ORC Macro Marianne
Farkas, ScD, Innovative KDU for Disability and
Professional Organizations and Stakeholders,
Boston University/Sargent College Mark X. Odum,
National Rehabilitation Information Center
(NARIC), HeiTech Services
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Members (continued)
Joe Lane RERC on Technology Transfer
(T2RERC) University at Buffalo, The State
University of New York John H. Stone, PhD,
Center for International Rehabilitation Research
Information and Exchange (CIRRIE-2), University
at Buffalo, The State University of New York
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Standards and Research Review Board
Will provide guidance and review in
establishing standards of evidence for
research Uses a consensus-building approach to
ensure the rigor and quality of standards as well
as the buy-in necessary for their actual use.
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Three Task Forces
Standards of Evidence and Methods
Systematic Review and Guidelines Knowledge
Translation and Knowledge Value Mapping
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Logistics
John Westbrook, PhD, will serve as
facilitator Electronic discussion list will
be established Board will meet in person
annually Board will meet periodically via
teleconference
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Board Members include NIDRR-funded researchers
representing
3 RERCs 6 RRTCs 2 TBI Model Systems
1 each SCI Model Systems, Burn Model
Systems, Field Initiated Projects, Advanced
Rehabilitation Training, and ADA/IT Centers
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Members of the Standards and Research Review Board
Matthew H. Bakke, PhD, RERC on Hearing
Enhancement, Gallaudet University Marcel
Dijkers, PhD, Mt. Sinai SCI Model System and a
Longitudinal Study of Psychosocial Outcomes and
Subjective Quality of Life Many Years After
Traumatic Brain Injury Mount Sinai School of
Medicine Charles Drum, PhD, Northwest ADA/IT
Center (Disability Business Technical Assistance
Center - Region X), Oregon Institute on
Disability and Development, Oregon Health
Science University Steve Gard, PhD, RERC on
Prosthetics and Orthotics, Northwestern University
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Members (continued)
Wayne A. Gordon, PhD, RTC on TBI Interventions
and New York TBI Model System, Department of
Rehabilitation Medicine, Mount Sinai School of
Medicine Allen W. Heinemann, PhD, ABPP, RRTC on
Measuring Rehabilitation Outcomes and
Effectiveness, Rehabilitation Institute of
Chicago, Northwestern University Mark V.
Johnston, PhD, Advanced Rehabilitation
Effectiveness Research Training Center on
Outcomes and Intervention, and TBI National Data
Center, Kessler Medical Rehabilitation Research
Education Corp.
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Members (continued)
Dennis C. Lezotte, PhD, UCHSC Burn Model System
Data Coordination Center (BMS/DCC), University of
Colorado Health Sciences Center Craig M.
McDonald, MD, RRTC in Neuromuscular Diseases
(RRTC/NMD), University of California-Davis Dennis
C. Moore, EdD, RRTC on Substance Abuse,
Disability, and Employment, Substance Abuse
Resources and Disability Issues (SARDI), Wright
State University, School of Medicine
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Members (continued)
Juan Rogers, PhD, Director, Research Value
Mapping Program, Georgia Institute of Technology
RERCs on Mobile Wireless Technologies for Persons
with Disabilities, Wheeled Mobility and Workplace
Accommodations Dave Vandergoot, PhD, RRTC on
Improving Employment Outcomes, Hunter College of
CUNY Gregg C. Vanderheiden, PhD, RERC on
Telecommunications Access, RERC on Universal
Interface and Information Technology Access,
University of Wisconsin-Madison, and Glen W.
White, PhD, RRTC on Full Participation in
Independent Living, Schiefelbusch Institute for
Life Span Studies, University of Kansas
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Task Force on Standards of Evidence and
Methods Mark V. Johnston, PhD, Facilitator John
Westbrook, PhD, NCDDR Liaison
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The task force on standards of evidence and
methods will develop and present to the Board
draft consensus/position statements regarding

• Standards of quality for research addressing each
  of the three stages of knowledge development
  identified by NIDRR
• Standards of evidence for the systematic review
  of disability and rehabilitation research

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The task force on standards and methods will
address
Activity 1.1 Establish collaborative mechanisms
for developing standards of evidence and other
supports for developing evidence-based
knowledge. Activity 1.2 Identify existing
standards of evidence and assess their
applicability to NIDRR-sponsored
research. Activity 1.3 Facilitate the
development and refinement of standards of
evidence for NIDRR-sponsored research.
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Task Force on Systematic Review and
Guidelines Marcel Dijkers, PhD,
Facilitator Joann Starks, NCDDR Liaison
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The task force on systematic review and
guidelines will

• Develop and present to the Board draft
  consensus/position statements regarding
  recommended strategies for conducting systematic
  reviews in disability and rehabilitation research
  
• Review examples and components of guidelines
  produced in disability-related areas in order to
  suggest structures and components for developing
  additional guidelines derived from disability and
  rehabilitation research.

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The task force on systematic review and
guidelines will address
Activity 4.1 Facilitate the identification,
development, and dissemination of guidelines for
disability and rehabilitation practices and
programs drawn from evidence produced through
systematic reviews.
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Task Force on Knowledge Translation and
Knowledge Value Mapping Juan Rogers, PhD,
Facilitator Frank Martin, NCDDR Liaison
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The task force on knowledge translation (KT) and
knowledge value mapping (KVM) will develop and
present to the Board draft consensus/position
statements and recommendations regarding

• KVM in relation to moving scientific evidence
  into policy and practice
• Use of the concept of knowledge value communities
  (KVC) in dissemination and utilization of
  systematic reviews

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• Considerations of driving and restraining
  forces in moving NIDRR-sponsored research results
  into public policy
• Needs for evidence grading to be responsive to
  NIDRRs desire to address end-users with limited
  scientific training
• Knowledge mapping standards appropriate for each
  of NIDRRs targeted stages of knowledge
  development

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NCDDR Web Site and Resource Highlights
Joann Starks
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www.ncddr.org
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NCDDR will develop and maintain several Web-based
resources and services

• Library of Knowledge Translation Resources and
  Strategies
• Multi-media
• Evidence-based materials
• NCDDR FOCUS/Updates

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• Registry of Systematic Reviews
• Searchable
• NIDRR researcher authorships
• Summaries, digests, reports also included
• Registry of NIDRR-Sponsored Research
• NIDRR Research Studies
• Searchable by relevant components for example
  research questions, research design, sample
  characteristics

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• Evidence-based Registries and Databases
• Portal to variety of resources
• Communities of Practice
• Forums, Online meetings
• Teleconferences and Webcast events
• Archives
• Needs Sensing Activities and Reports
• Restricted access as needed
• Data gathering for specific audiences

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• Research Report Facilitator
• Based on type of research design, suggestion for
  report components/content
• Tools and Guides
• Research Instrumentation
• Guides and Guidelines

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• Webcasts
• Calendar
• Archives
• Workshops
• Registration
• Archives
• Technical Assistance Services
• Request
• Online TA and Training Events

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NCDDR Collaborating Partners An Overview
Frank Martin
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Campbell Collaboration (C2)

• What is Campbell Collaboration?
• C2 Goals and Activities
• Anticipated Partnership Roles Contribution
• Disability Research Collaborating Group
• Online training
• Onsite training
• Involve NIDRR researchers in Campbell reviews
• Key Personnel
• Brian Cobb, PhD
• Chad Nye, PhD

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Cochrane Collaboration

• What is Cochrane Collaboration?
• Cochrane Activities - Cochrane Library
• Anticipated Partnership Roles Contribution
• Disability Rehabilitation Field Group
• Involve NIDRR investigators in Cochrane reviews
• Training for Health and Function research area
• Key Personnel
• Rob de Bie, PhD
• Kay Dickersin, PhD
• Lisa Bero, PhD

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National Guideline Clearinghouse

• Rationale for the NGC
• Role of Evidence-based Practice Guidelines
• Anticipated Partnership Roles Contribution
• Registry development
• Expertise on KT and guideline development
• Key Personnel
• Mary P. Nix

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National Rehabilitation Information Center

• NARIC Structure and Function
• Anticipated Partnership Roles Contribution
• Evidence grading system for products
• Key Personnel
• Mark Odum

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Independent Living Research Utilization

• What is ILRU?
• ILRU and the Disability Community
• Anticipated Partnership Roles Contribution
• Webcasts
• Key Personnel
• Lex Frieden

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RTC on Traumatic Brain Injury Interventions

• RTCs Scope of Work
• Systematic Review Project
• Anticipated Partnership Roles Contribution
• Identify research design modifications
• Key Personnel
• Wayne Gordon, PhD

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Pimjai Sudsawad, PhD

• Mary E. Switzer Fellow
• Assistant Professor, University of Wisconsin,
  Madison
• Research Focus Knowledge Utilization Process and
  Strategies
• Social Validation Model
• Anticipated Partnership Roles Contribution
• Identify and test knowledge dissemination and
  utilization strategies
• Effectiveness of plain language summaries

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Ralf Schlosser, PhD

• Mary E. Switzer Fellow
• Associate Professor, Northeastern University,
  Boston
• Augmentative and Alternative Communication
• Systematic review experience
• Conceptual framework for systematic review
• Anticipated Partnership Roles Contribution
• Translating the EB on assistive/adaptive devices
• Bridging the gap Systematic reviews and
  rehabilitation engineering research

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