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Title: Robert A' Cummins1


1
The wellbeing of caregivers
Robert A. Cummins1 Anna L.D. Lau2 Jacqui
Woerner1 1Australian Centre on Quality of
Life Deakin University 2Hong Kong Polytechnic
University
http//www.deakin.edu.au/research/acqol
This manuscript contains notes below each slide.
To view these notes, open in Powerpoint , go to
View, and click on Notes Page
2
Quality of Life
Objective Conditions e.g. Poor Medical Health
Subjective Perceptions e.g. Low perceived
satisfaction with health
Objective QOL
Subjective Wellbeing
3
What is subjective wellbeing?
A normally positive state of mind that involves
the whole life experience
How satisfied are you with your life as a whole?
4
How satisfied are you with your life as a whole?
  • Standard of living
  • Health
  • Achieving in life
  • Relationships
  • Safety
  • Community connectedness
  • Future security

How satisfied are you with your-----?
( Personal Wellbeing Index )
5
The Australian Unity Wellbeing Index Surveys
  • Geographically representative sample
  • N 2,000
  • Telephone interview
  • 1 April 2001
  • ------------
  • 14 October 2005

6
How satisfied are you with your --------?
Jones and Thurstone ,1955 11-point, end-defined
scale
Completely Dissatisfied
Completely Satisfied
Mixed
7
(No Transcript)
8
Normative range using survey mean scores as data
(N13)
Very satisfied
Very dissatisfied
9
What causes subjective wellbeing to fall below
the normal range?
  • When the demands on the person greatly exceed
    their resources

10
The challenge of childrenvsPeople resources
11
The challenge of childrenvsPeople resources
12
The challenge of childrenvsPeople resources
13
The challenge of children vsFinancial resources
14
The challenge of childrenvsFinancial resources
15
The challenge of childrenvsFinancial resources
16
Survey 13Special topic The wellbeing of
home-based caregivers
  • Is there a person in your household who needs to
    be physically cared-for due to their age or
    disability?

17
Is there a person in your household who needs to
be physically cared-for due to their age or
disability?
18
Demands gt ResourcesNever married as caregivers
19
Demands Partner resourcesMarried caregivers
20
Demands defeat Partner resources
21
Time resources
22
Demands of the person being cared for
23
Characteristics of self-primary caregivers.
24
Person demands vs life domains
25
Person demands vs life domains
26
Person demands vs life domains
27
Are you the person who provides most of the
care?
28
Conclusions
  • Caregiving is a potential threat to the wellbeing
    of ALL household members.
  • That threat needs to be matched by resources
    (personal or financial)
  • Caregivers particularly at risk are
  • Caregivers of people who are elderly or disabled
  • Solo caregivers (either self or other)
  • Caregivers with low income

29
References
Andrews, F.M., Withey, S.B. (1976). Social
indicators of well-being American's perceptions
of life quality. Plenum Press, New York. Baxter,
C., Cummins, R.A., Polak, S. (1995). A
longitudinal study of parental stress and
support The influence of child disability from
diagnosis to leaving school. International
Journal of Disability, Development and Education,
42, 125-136. Baxter, C., Cummins, R.A.,
Yiolitis, L. (2000). Parental stress attributed
to disabled family members A longitudinal study.
Journal of Intellectual and Developmental
Disability, 25, 105-118. Bendo, A. A., Feldman,
H. (1974). A comparison of the self-concept of
low-income women with and without husbands
present. Cornell Journal of Social Relations,
9(1), 53-85. Cummins, R.A. (1995). On the trail
of the gold standard for life satisfaction.
Social Indicators Research, 35, 179-200. Cummins,
R.A. (1998). The second approximation to an
international standard of life satisfaction.
Social Indicators Research, 43, 307-334. Cummins,
R.A. (2003). Normative life satisfaction
Measurement issues and a homeostatic model.
Social Indicators Research, 64, 225-256. Cummins,
R.A. (2000). Objective and subjective quality of
life An interactive model. Social Indicators
Research, 52, 55-72. Cummins, R.A. (2000).
Personal income and subjective well-being A
review. Journal of Happiness Studies, 1,
133-158). Cummins, R.A. (2001). The subjective
well-being of people caring for a severely
disabled family member at home A review. Journal
of Intellectual and Developmental Disability, 26,
83-100. Cummins, R.A., Eckersley, R., Okerstrom,
E., Woerner, J. Tomyn, A.(2005). Australian
Unity Wellbeing Index Report 13.0 The
Wellbeing of Australians Caregiving at Home.
Melbourne Australian Centre on Quality of Life,
School of Psychology, Deakin University. ISBN 1
74156 014 4. http//www.deakin.edu.au/research/acq
ol/index_wellbeing/index.htm
30
References
Cummins, R.A., Eckersley, R. Pallant, J. Van
Vugt, J, Misajon, R. (2003). Developing a
national index of subjective wellbeing The
Australian Unity Wellbeing Index. Social
Indicators Research, 64, 159-190. Cummins, R.A.
Gullone, E. (2000). Why we should not use 5-point
Likert scales The case for subjective quality of
life measurement. Proceedings, Second
International Conference on Quality of Life in
Cities (pp. 74-93). Singapore National
University of Singapore. Cummins, R.A., Lau,
A.L.D. (2004) The motivation to maintain
subjective well-being A homeostatic model. In
H. Switzky (Ed.), International Review of
Research on Mental Retardation Personality and
Motivational Systems in Mental Retardation, 28,
(pp. 255-301). Amsterdam Elsevier. Cummins, R.A.
Lau, A.L.D. (in press). The relationship
between health and subjective wellbeing. Social
Policy Review. Cummins, R.A., Nistico, H.
(2002). Maintaining life satisfaction The role
of positive cognitive bias. Journal of Happiness
Studies, 3, 37-69. Gove, W.R., Geerken, M.
(1977). Response bias in surveys of mental
health An empirical investigation. American
Journal of Sociology, 82, 1289-1317. Jones, L.V.,
Thurstone, L.L. (1955). The psychophysics of
semantics An experimental investigation. The
Journal of Applied Psychology, 39(1), 31-36. Lee,
M.Y., Law, C.K., Tam, K.K. (1999). Parenthood
and life satisfaction A comparison of single-and
dual parent families in Hong Kong. International
Social Work, 42, 139-163. Shields, M., Wooden,
M. (2003). Marriage, children and subjective
well-being. Paper presented at the Australian
Institute of Family Studies Conference,
Melbourne, February 2003.
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