capturing, sharing and celebrating Patient Focus and Public Involvement

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capturing, sharing and celebrating Patient Focus
and Public Involvement
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Programme

• Background to the project
• Features of the site
• Case Study 1 Borders Youth Health Forum
• Case Study 2 Community Consultation Day
• Case Study 3 Your VOICE
• Questions

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Background

• Scottish Health Council
• Assessment of NHS Boards
• Development role
• Project initiated July 2007
• Launched January 2008

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Features

• Online database
• Free to register
• Electronic form save and come back
• Delayed submissions process

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Capture

• Easily evidence your portfolio of work
• Attach more information
• Recommend useful resources

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Share

• Build on the experiences of others
• Join a network of Patient Focus and Public
  Involvement enthusiasts
• Contact the authors

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Celebrate

• Demonstrate the difference you are making
• Post comments
• Whats in a name?

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Borders Youth Health Forum

• Gillian Jardine Holly Finlayson
• Dialogue Youth Workers

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Borders Youth Health Forum

• Changing the way health services are delivered
  for young people in the Borders

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BYHF

• Setting up of Borders Youth Health Forum
• The BYHF was set up in 2006 following the health
  conference Sex, Drugs and What You Know
• Recommendations from the conference are being
  taken forward by the BYHF
• Funding from various partners

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BYHF

• BYHF and Health Services
• The BYHF have meet with local health service
  providers, delivering presentations and holding
  workshops
• BYHF have been invited to sit on key strategic
  health groups

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BYHF

• Communication with young people
• The BYHF use a number of methods to communicate
  with young people, including
• Wired
• YOB
• Stay Healthy
• Newsletters - online
• Schools and the Borders College

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BYHF

• Work of the BYHF so far.
• Health Exchange with Finland
• Mind Yer Heid
• Mental Health Resource Packs
• DVDs
• Sub-Groups

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Borders Youth Health Forum

• www.youngscot.org/scotborders
• dialogueyouth_at_scotborders.gov.uk
• Holly Finlayson hfinlayson_at_scotborders.gov.uk
• Gillian Jardine gjardine_at_scotborders.gov.uk

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Community Consultation Day

• Maggie Emslie
• Senior Communications Officer- Public Involvement
  
• NHS Grampian

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Community Consultation Day

• Background
• Why it was held
• Aims of the day
• Practical matters
• Feedback

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Aberdeenshire Community Health Partnership

• Large geographical area skirting city of Aberdeen
  mix of urban centres and rural communities with
  9 community hospitals.
• 2005 embarked on a programme of re-alignment of
  services to meet various challenges
• Package of service change
• frail elderly services enhanced community
  services
• maternity services re-design and closure of
  Maternity Units
• New diagnostic and treatment services at
  community hospitals.
• Consistent with NHS Grampian Health Plan

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Fraserburgh
Banff
Turriff
Peterhead
Key- Dermatology Minor Surgery
Orthopaedics Modernised Elderly Care Svs
Diabetes INR Testing ENT Endoscopy
Ultrasound Cardiac Assessment
Huntly
Insch
Ellon
Inverurie
Aboyne
Westhill
Banchory
Stonehaven
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Public Consultation 2005 - 06

• 12 months extensive consultation
• 13 public/community meetings in main centres
• Survey of citizens panel members (1000)
• Consultation paper with feedback
• Engagement with community groups, councils
• Focus groups
• Staff consultation
• 10 recommendations to NHS Grampian Board in June
  2006

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Major Service Change

• Scottish Health Council newly established
• SHC report on Public Consultation recommended
  further consultation
• June 2006 NHS Grampian Board decision
• Formal consultation for 6 weeks

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Formal consultation

• Consultation Paper distributed (1600 copies)
• Community Consultation Day Event (80 delegates)
• To bring all parties with an interest together
• To debate the 10 recommendations
• To express preferences and reach a common
  understanding
• Aims agreed with Scottish Health Council
• Planning Group

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Consultation Day methods

• Workshop groups
• Speakers and presentations
• Facilitated group discussions
• Each group two questions or points to raise in
  plenary sessions
• Final session to discuss the re-design
  proposals
• Before and after survey to gauge support for the
  re-design package
• Comments sheets

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Practical support

• Location in Inverurie Town Hall Friday 7th July
  2006
• Expenses travel, carer costs
• Crèche and breastfeeding facilities
• Hearing loop
• Information table
• Petitions and Save Aboyne Maternity Business Case
• Refreshments, buffet lunch

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Different viewpoints

• Broadly, people in favour of proposals around
  frail elderly services and DT services
• Strong opinions about maternity proposals
• CHP view - package of recommendations
  interlinked

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Before and After survey

• 10 recommendations closure of two community
  hospitals, re-design of community maternity
  units, new diagnostic and treatment services and
  enhanced services in community hospitals, frail
  elderly support services
• Taken together, please give us your opinion
  on the OVERALL
• set of recommendations.
• Colour-coded response forms repeated at the
  end of the day
• Outcome
• Public opinion more in favour
• Clinicians and managers views unchanged

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What people said about the day

• Gold star ratings for organisation
• Venue issues
• Perception that maternity issues dominated
• Not everyone equally briefed
• Insufficient time to raise all issues
• Perception that decisions already taken
• Good exchange and interaction of views public,
  managers, clinicians
• Board members presence welcomed
• Peoples knowledge and understanding increased
• General support for the set of recommendations

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Feedback

• All participants sent detailed report of
  Community Consultation day with results of
  voting
• Invited to register interest for continuing
  involvement in the re-design of services in
  Aberdeenshire
• Kept informed about developments and Ministerial
  decision

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you have the choice to use
Your VOICE

• Alice Paul Kimberley Ramsay
• Development Workers with ICCF

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I dont have the confidence

• 2006 - many service users and carers identified
  that they lacked the confidence to participate in
  their communities due to low self esteem, lack of
  confidence and not knowing how to get their
  point across

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• ICCF - Enable service users and carers to
  exercise their right to have a say in decisions
  which affect their lives
• Ten National Standards for Community Engagement
  -
• We will develop actively the skills, knowledge
  and confidence of all participants

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Coping with lifes basic challenges
confidence in our right to be successful and
happy entitled to assert our needs and
wants achieve our values
worthy and deserving
Branden 1969
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Your VOICE

• Building on the skills and knowledge that
  participants already have so that they can play
  an active part in decisions that affect their
  lives we are all teachers and learners
• Getting to know you
• Communicating with confidence negotiating
  skills
• Case studies and scenarios/stories (subject
  matter)
• Getting our point across - POWERFUL PEOPLE

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Who, what, where, when why?

• From its inception over 150 local people, from a
  diversity of backgrounds, have participated in
  Your VOICE including
• Carers (young carers)
• Mental health
• Homeless
• Alcohol and drug-related problems
• Older people
• Learning disability (young people with special
  needs 16/17)
• Physical disabilities
• Sensory impairment
• The broader community

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Has it made a difference?

• Participants have gone on to join various
  community groups e.g. Carers Councils and
  Community Councils
• Kidney Dialysis Support Group
• Inverclyde Homeless Forum now partners in the
  Inverclyde Housing Strategy and have presented to
  Church Groups, Local Authority and Health
  Agencies
• Tenants Association overseeing the stock
  transfer from LA to Riverclyde Homes Housing
  Association
• Mental Health - presentations to Care Managers
  and Mental Health Support Group
• Challenging structures to help retain services
• Monthly Open House sessions local and
  national topical issues

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Empowerment

• Empowerment means the restoration to
  individuals of a sense of their own value and
  strength and their own capacity to handle lifes
  problems.
• Bush and Folger (1994)

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True? Necessary? Kind?
Trust is the core of all meaningful
relationships. Without trust there can be no
giving, no bonding, no risk taking Terry
Mizrahi President, National Association of Social
Workers
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Power to the People

• Conscious belief in the possibility of change
  personal - group community
• Understanding of how to use power for the
  benefits of the community
• Understanding of policy frameworks and political
  systems

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Power to the People

• In November 2007 Your VOICE celebrated its
  first anniversary Jamboree, attended by just
  under 40 past participants
• The focus - Community Health Partnerships (CHP)
• Through fun based activities and active
  participation we explored the structure and
  process of the CHP ultimately the goal was to
  show how local people can become involved as a
  member of the Public Partnership Forum to have a
  say in shaping and improving local services in
  their community
• The effectiveness of Your VOICE has been
  recognised nationally - Scottish Health Council,
  Scottish Community Care Forum and we have
  submitted a nomination for the Community Care
  Database of Good Practice

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Questions
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Richard McCreaInformation OfficerScottish
Health Council

• richard.mccrea_at_scottishhealthcouncil.org
• 0141 225 5556

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The evolved way to capture and share good practice