Userled Organisations Steve Strong

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User-led OrganisationsSteve Strong
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• National Policy Drivers
• Improving the Life chances of Disabled People
• Putting People First
• Transforming Adult Social Care
• Local Government and Public Involvement in
  Health Act 2007

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Improving Life Chances ULO Project
Background In January 2005 the Government
published Improving the Life Chances of Disabled
People. A key recommendation in this report
states that By 2010, each locality (defined as
that area covered by a Council with social
services responsibilities) should have a User-led
Organisation modelled on existing CILs (Centres
for Independent Living).
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Improving Life Chances ULO Project Putting
People First Objective Support for at least one
local user led organisation and mainstream
mechanisms to develop networks which ensure
people using services and their families have a
collective voice, influencing policy and
provision

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Improving Life Chances ULO Project Transforming
Social Care core component An enabling
framework to ensure people can exercise
choice and control with accessible advocacy,
peer support and brokerage systems with strong
links to user led organisations. Where ULOs do
not exist, a strategy to foster, stimulate
and develop user led organisations locally.
(LAC (DH) (2008) 1
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Improving Life Chances ULO Project What is
meant by User-led Organisation A User-led
Organisation is one where the people the
organisation represents, or provides services to,
have a majority on the Management Committee or
Board, and where there is clear accountability to
members and/or service users.
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Improving Life Chances ULO Project ULO Minimum
Services
Information and Advice
Advocacy and Peer Support
Assistance with self-assessment
Support in using direct payments and/or
Individual Budgets
User-led Organisations
Disability Equality Training
Support to recruit and employ Personal Assistants
Support the implementation of the Disability
Equality Duty by public sector organisations in
the locality (includes consumer audits)
Note the Disability Equality Duty has come into
force since 2006 and was not within the ULO
services defined in improving Life Chances.
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• Improving Life Chances ULO Project
• ULO Project Objectives
• Increasing the capability and capacity of
  existing user-led organisations
• Enabling existing third sector organisations to
  become user-led
• Enabling the establishment of user-led
  organisations in localities where none exist

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• We want to understand the costs, benefits and
  timescales needed to set up a ULO from scratch
• Understand how to develop different models of ULO
  and the benefits of each
• To build an evidence base for changing
  commissioning practice and the impact on Local
  Authoritys
• Define success criteria and how to measure
  success
• Understand the pitfalls and challenges

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Examples of Products from WAVE 1
Sites

• Training resources for trustees
• Human rights training packs
• Be business ready resource pack
• How to include diverse groups
• Full cost recovery
• And many others

• Accessible Policies
• Resource pack on funding options and tendering
  processes
• Carers involvement resources
• Maps of local networks
• ULO models

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• Why should Local Authoritys invest in Centres
  for Independent Living / User-Led Organisations?
• Key to delivering choice and control and
  promoting independent living
• Councils can empower people to shape their own
  lives and services
• To deliver real user involvement strategically
  and individually
• ULOs can support councils to deliver on key
  priorities and therefore improve their
  performance e.g. individual budgets, carers
  strategy, promoting health

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• Which Performance Indicators could the
  development of ULOs impact upon?
• NI 3 Civic participation in the local area PSA
  15
• NI 4 - of people who feel they can influence
  decisions in their locality PSA 21
• NI 7 Environment for a thriving third sector CO
  DSO PSA 21
• NI 136 People supported to live independently
  through social services (all ages) PSA 18
• NI 139 People over 65 who say that they receive
  the information assistance and support needed to
  exercise choice and control to live independently
  PSA 17
• NI 140 Fair treatment by local services PSA 15

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User-Led Organisation Design Criteria Summary