Empowering Patients Information when, what and how much

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Empowering PatientsInformation - when, what and
how much
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Knowledge

• It aint what you dont know thats the problem
  its what you do know. But dont!
• Mark Twain

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Knowledge

• Knowledge is power.
• Karl Marx

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Getting and making use of knowledge

• Information
• ?
• Knowledge
• ?
• Wisdom
• ?
• Power

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Literature

• 4 major concepts- Integrated
• Model of Information Giving
• Lazaruss theory of stress coping
• Antonovskys theory of salutogenesis -sense of
  coherence
• Coping style
• Components of effective information giving

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Lazaruss theory of stress and coping

• Lazarus 1966, Lazarus Folkman1984
• Cognitive, phenomenological and transactional
• Primary and secondary appraisal
• Problem emotion focused coping

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Antonovskys theory of salutogenesis

• Antonovsky 1979, 1987
• Whence comes the health
• Sense of coherence
• Resources to aid coping
• General Resistance Resources
• Specific Resistance Resources

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Coping Style

• Miller and Mangan 1983
• Information avoiders
• Information seekers
• Anxiety increased if information does not match
  coping style

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Components of effective information

• Ridgeway Mathews 1982,
• Mathews Ridgeway 1984
• Procedural/factual information
• Sensory Information
• Reassuring Information
• Coping information
• All required to reduce anxiety

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A Potential Model for General Clinical Practice
Assessment of Patients/ Clients Anxiety
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General Principles

• Written Information
• Based on what patients have indicated they want
  to know and how
• Evidence-based (i.e from literature)
• content - procedural, factual, sensory, coping
  and reassuring information
• presentation - font size and type, white space,
  graphics, colour
• Take as much as you want, when you want, how you
  want type format
• Professional and patient tested and refined (A4)
  format
• Professionally designed and printed
• Evaluated and regular review

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Where we are at

• Soft, A5, ring binder folders
• Add-on sections
• Generic information
• Core information
• Individual specific information
• Sign-posting- further sources, websites,
  voluntary bodies
• Readability
• Discern
• Cancer MCNs West of Scotland
• Similar model for people
• with dementia