LOOKING TO THE FUTURE

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LOOKING TO THE FUTURE
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COUNCIL OF INTELLECTUAL DISABILITY
AGENCIES WWW.CIDA.ORG.AU
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• Peak body representing non-government,
  not-for-profit agencies which provide services to
  Victorians with intellectual disabilities.

• 100 members throughout Victoria

• Established in 1954

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The services we establish both reflect and
confirm societys belief at the time about what
they need and deserve.
Managing for Inclusion, Scottish Human Services
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• SHIFT FROM EMPHASIS ON NEEDS TO EMPHASIS ON
  RIGHTS AND REQUIREMENTS FOR EXERCISING RIGHTS.
  HUMAN RIGHTS NOT SPECIAL NEEDS 
• SHIFT TO EMPHASIS ON CHANGING SOCIETY NOT SIMPLY
  ADAPTING/ADJUSTING THE INDIVIDUAL
• FROM COMMUNITY PRESENCE TO COMMUNITY INCLUSION

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• ACCESS TO GENERIC SERVICES, FACILITIES,
  ENTITLEMENTS
• RE-SHAPE GENERIC SERVICES / FACILITIES TO REFLECT
  COMMUNITY DIVERSITY
• WHOLE OF GOVERNMENT / WHOLE OF COMMUNITY APPROACH

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(No Transcript)
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• SHIFT MINDSET FROM PROVISION OF SERVICES TO
  PROVISION OF SUPPORT TO LIVE REAL LIVES
• CHOICE ABOUT THE KIND OF LIFE A PERSON WANTS AND
  THE KINDS OF SUPPORT THEY WANT

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REAL LIVES INCLUDE

• Living in a house in a street, being known by
  the neighbours or the person in the corner shop,
  having people visit, going to concerts, taking a
  trip on a canal boat, visiting restaurants.
• Kellaway and Burton

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IMPORTANCE OF COMMUNITY

• Reciprocity, belonging and being important to
  someone are perhaps the things that help us to be
  fully human. It is difficult to see how these
  can exist if people are isolated and segregated.
  Our workemphasises the centrality of assisting
  people to lead real lives in real communities.
• Kellaway and Burton.

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SOCIAL NETWORKS

• Information on 500 adults with intellectual
  disability receiving different types of
  residential support
• Median size of social networks (excluding staff)
  - 2
• Professor Eric Emerson and colleagues, UK

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CHANGING ROLE FOR SPECIALIST SERVICES

• From programs to person centred planning and
  individualised suites of support
• From overcoming individual deficits to supporting
  quality of life and inclusion
• From providers of programs to agents of social
  change and community developers / connectors /
  bridge builders
• More flexible
• Changes in funding

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FROM MAKE BELIEVE TO THE REAL WORLD

• We are on a journey from the artificial world
  we have created for people with learning
  intellectual disabilities towards the real
  world where we dream of supporting them in
  ordinary lives in inclusive communities.
• Changing Days Project

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We have become quite sophisticated in helping
people with daily living skills but have given a
great deal more attention to bed making and
budgeting than befriending. We are helping
people to be competent but they are still
alone. Changing Days Project
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From tourists to participants in community We
need to create opportunities for relationships
not just activities. Shopping malls are great
places to observe people but not great places for
meeting people Changing Days Project
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Where are we now?

• Most people go to a day centre
• Centres have changed over the years they now
  support people to do things in the community but
  people still spend a lot of time in centres and
  travelling to them.

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PRESENT
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FUTURE
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What would we expect in a modern day service?

• Small, local bases
• More work opportunities
• More one to one support for joining in community
  activities
• Ways for people of all
• ages to get into learning and training

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Things to get good at...

• Building social supports around people
• Planning with people not for them
• Identifying and developing natural supports
• Working with other people in the community

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10 flats, each in walking distance of the others.
Each person is the ordinary tenant of their own
flat may choose to share with friends.
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Kim, a KeyRing Network resident, welcomes
visitors to her flat in Bristol.
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The new direction

• NOW
• People often required to fit their lives into
  services
• Prescriptive, service driven planning processes
• Focus on s as solution to peoples needs
• Accountability based on inputs and outputs

• FUTURE
• People choose and develop supports
• Person-directed planning
• Focus on personal networks and community
• Accountability also based on personal outcomes

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Growth funding IPS Process Diagram Stages 1-3
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INTERNATIONAL SHIFT

• UK VALUING PEOPLE WHITE PAPER
• USA
• CANADA
• BRITISH COLUMBIA

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DAY SERVICES MODERNISATION TOOL KIT PART ONE
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Vision

• Children and adults with developmental
  disabilities, supportedby family members and
  friends, willhave the opportunities and supports
  needed to pursue their goals and participate as
  full and valuedcitizens in their communities.

Community Living British Columbia Interim
Authority
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Community Living Centres and Facilitators will
provide information, advice, and practical
assistance to families of children with special
needs and to adults who have a developmental
disability, their families and friends.
Facilitators will collaborate with, but work
independently from, providers and those making
funding decisions.

Board of Directors Community Living British
Columbia
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Independent Planning Support A key element of
change

• Facilitators will provide information, advice and
  practical assistance to eligible individuals and
  families, independent from service providers and
  funding decisions, to assist them to develop and
  implement personal support plans.

Community Living British Columbia Interim
Authority
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Community Living Centres and Community-based Staff
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Its my life!
Person centred means doing things in a way that
the person wants and which helps them to be part
of their community. If someone is in the centre
of something, they are the most important person.
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What does person centred planning mean? It means
putting the person at the centre of planning for
their lives.
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• Person centred planning is about
• Listening to and learning about what people want
  from their lives
• Helping people to think about what they want now
  and in the future
• Family, friends, professionals and services
  working together with the person to make this
  happen

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Person centred planning means that I get to plan
my life the way I want. It doesnt mean that I
have to do it on my own. It means that other
people who I like and trust help me on my terms
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CIRCLE OF SUPPORT

• A group of people who meet together on a regular
  basis to help a friend or family member who needs
  some extra support to accomplish their personal
  goals in life.

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• an informal network of associates, friends and
  family
• acts as a community around the 'focus person'
• pools skills and resources and shares ideas and
  tasks to achieve a set of objectives derived from
  what the focus person perceives as progression
  towards a fuller life

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BUILDING INCLUSIVE AND SUPPORTIVE COMMUNITIES

•     EDUCATION AND INFORMATION
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•     CAPACITY BUILDING
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• COMMUNITY DEVELOPMENT AND BRIDGE BUILDING

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Is there room in your workplace for someone like
me? When I was young they put people like me in
institutions not in jobsToday I have a job that
I really love and my boss is happy too because I
am good at my work. People called mentally
handicapped can do a lot of jobs really well when
someone gives them a chance. Barry Smith, Usher
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Her Disability shouldnt exclude her!
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You wouldnt want to be held back by an outdated
label. Neither did we.
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INVOLVING ALL NEIGHBORS Building inclusive
communities in Seattle Project of the City of
Seattle Department of Neighbourhoods
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People who know a lot about their neighbourhood
and / or are involved in civic associations -
assist in connecting a person with an
intellectual disability with associations or
activities that match their interests.
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Implications for staff role and identity

• Staff can expect to work with more autonomy and
  flexibility, but less comfort
• Staff expected to work in other peoples homes
  and workplaces - loss of territory
• Staff expected to be on tap, not on top -
  developing adultadult relationships
• Staff practice open to view by the public - more
  ambiguity and risk to manage
• Staff role more about connecting, less about
  correcting

Managing for Inclusion, Scottish Human Services
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Community Support FacilitatorJob Profile
Job Purpose To enable men and women with learning
disabilities to have more control over their
lives through person centred approaches, which
maximise community inclusion and participation
and are responsive to the needs and wishes of the
individual. To act on behalf of the Social
Services Department in fulfilling statutory
obligations under relevant legislation, providing
a safe, flexible and responsive service, when and
where needed by service users and their carers.
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• Giving practical, personal and emotional support
  to enable service users and their carers to meet
  their assessed need by maintaining and promoting
  their health, physical and mental well being and
  social development.
• Adopting a service co-ordination role, working in
  partnership with wider systems, to ensure a
  person centred approach, whilst enabling the
  delivery of a flexible and responsive care plan
  based on outcomes.
• Enabling people to lead full lives and develop a
  range of relations through community networking
  and community building to promote individual
  inclusion and participation, whilst ensuring that
  men and women with learning disabilities lead
  lives that are safe from harm and abuse.

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• Maximising the involvement of men and women with
  learning disabilities and their carers in
  evaluating, monitoring and reviewing the services
  they receive.
• Seeking clarity about the responses needed to
  promote independence, identifying and minimising
  any risk through the process of Risk Assessment
  and Risk Management.
• Working as part of a team or as an individual in
  a range of community and domiciliary settings,
  involving a good knowledge of Health and Safety
  and personal safety issues.

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• Keeping abreast of practice development and
  demonstrating a commitment to personal
  development through formal and informal training
  opportunities.
• Administering medications in keeping with the
  xxxxx County Council Administration of Medication
  and Related Tasks policy.
• Taking responsibility for and dealing
  appropriately with any emergencies that may
  arise, including adherence to the Protection of
  Vulnerable Adults from Abuse policy.
• Developing relevant strategies to facilitate
  wider communication skills and opportunities for
  men and women with learning disabilities, e.g.
  Total Communication systems.

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2005 CIDA CONFERENCE TOOLS FOR THE
TWENTY-FIRST CENTURY Modernising supports for
people with disabilities Thursday, 12th and
Friday, 13th May Melbourne Park Function Centre
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[phone] cida_at_cida.org.au www.cida.org.au