Lori Butterworth and Devon Dabbs,

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• Lori Butterworth and Devon Dabbs,
• Founders and Executive Directors
• Gay Walker, RN
• Benefit Education Support and Training
• BEST in Pediatrics
• Southern California
• Collaborative for Pediatric Palliative Care
  Network
• June 27, 2008

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Regional Collaboratives

• Northern California Collaborative for Pediatric
  Palliative Care (NCCPPC)
• The Northern California Collaborative for
  Pediatric Palliative Care (NCCPPC) is a
  collaborative professional group aimed at
  improving services by providing education and
  increasing awareness and advocacy for children
  with life threatening conditions and their
  families. We share information and resources
  related to providing excellent care for children
  with life-threatening conditions and have
  membership from throughout Northern California.

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Regional Collaboratives

• Central California Collaborative for Pediatric
  Palliative Care
• The Central California Collaborative for
  Pediatric Palliative Care is a diverse and
  dedicate group of individuals who have come
  together in response to a healthcare crisis
  facing children living in Central California.
  Together we offer support in opening access to
  options for family-centered, compassionate care
  for children with life threatening conditions and
  their families.

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Regional Collaboratives

• Southern California Pediatric Palliative Care
  Network (SCPPN)
• The Southern California Pediatric Palliative Care
  Network (SCPPN) is a collaborative network
  dedicated to improving the quality of life and
  quality of care for children with
  life-threatening conditions by promoting
  excellence in compassionate, family-centered
  palliative care. We meet every other month at
  various locations around Southern California
  working together to ensure that children have
  access to outstanding medical care that meets the
  needs of the entire family.

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AB 1745 - The Nick Snow Childrens Hospice and
Palliative Care Act

• AB 1745 (the Nick Snow Hospice Palliative Care
  Act) was passed by the legislature and signed by
  the Governor last fall. The legislation requires
  the Department of Health Care Services (DHCS) to
  submit a hospice eligibility waiver request that
  would expand eligibility for children and add
  specific palliative care services not currently
  available under the state plan.
• The waiver was submitted to Federal CMS on May 21

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Pediatric Palliative Care Waiver 1915c

• Demonstration project to show a better way to
  care for seriously ill children that is fiscally
  responsible and humane
• 13 counties
• Year 1 - Santa Cruz, Monterey, Alameda, Santa
  Clara, San Diego (300)
• Year 2 - Humboldt, Marin, Orange, Sacramento,
  San Francisco and Sonoma (800)
• Year 3 - Los Angeles and Fresno (1802)

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Benefit Education Support and TrainingBEST in
Pediatrics

• IPPC, ELNEC, Regional Support through
  Collaboratives, Conference Calls, Online
  Resources (other needs)
• Goal of this project is to establish operational
  capacity for community providers to referral
  children appropriately for palliative care, for
  CCS to provide case management and for hospice
  providers to provide the necessary services.

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Family Centered Action PlanF-CAP

• Tracks Services
• Referrals
• Etc.
• What do we want to follow, what do we need to
  know at the end of the 3 year pilot?

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Payment Structure - Fee for Service

• August 11 in Watsonville billing meeting -
  single license hospices
• Opportunity to give questions and feedback to
  state CCS about best way to structure the
  billing.

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Create Flow Chart

• Opportunity to recommend how children are
  referred and how they move through the waiver
  process
• Discussion