Title: Children
1Children Adult Brain Injury OverviewImplicati
ons for Home, School and CommunityDRAFT
- Anastasia Edmonston MS CRC
- TBI Projects Director
- Maryland Mental Hygiene Administration
2Workshop Agenda
- Incidence and prevalence of brain injury
- Physical, cognitive and behavioral implications
of brain injury for children and adults - Rehabilitation and educational treatment and
support interventions - State, regional and national brain injury
resources
3Nationwide UPDATED 9/6/07
- 51,000 die
- 290,000 are hospitalized and
- 1,224,000 million are treated an released from an
emergency department Jean Langlois ScD,MPH
Centers for Disease Control, 2007
4Causes of TBI CDC 2006
5Annual Incidence of TBI with DisabilityAN
ESTIMATED 124,000 American civilians
- Cited by Jean Langlois ScD,MPH NASHIA Conference
2007 - Preliminary findings as analyzed by Selassie, et.
al
6For Children Nationwide Ages 0-14, TBI Results
in
- 2,685 deaths
- 37,000 hospitalizations
- 435,000 emergency department visits per year CDC
2006
7In Maryland..
- In 2000 there were 5,229 traumatic brain injuries
- 5 of all hospitalizations were TBI related
- 25 of all injury related deaths for ages 15-24
were TBI related - 11 of all injuries to children 14 and under were
TBI related CDC 2006
8Accidental vs. Inflicted Childhood Brain Injury
- One study found that children with inflicted
(abuse related) brain injuries, had a higher rate
of mortality, longer hospital stays, higher rates
of subdural, subarachnoid, and retinal
hemorrhages than children who incurred their
injuries accidentally - Reece, Sege (2000) In Archives of Pediatrics and
Adolescent Medicine
9American Academy of Pediatrics-Committee on Child
Abuse and Neglect Pediatrics 2001
- Physical Abuse is the leading cause of serious
head injury in infants - Head injuries are the leading cause of traumatic
death and the leading cause of child abuse
fatalities - 95 of serious intercranial injuries and 64 of
all head injuries in infants younger than 1 year
were attributable to child abuse
10Nationwide
- 5.3 million Americans with life-long or long-term
needs as a result of a brain injury - Direct medical costs and indirect costs such as
lost productivity of brain injury estimated was
estimated to be 60 billion in 2000. That is 6
times the net worth of Oprah Winfrey!!! CDC 2006
11Impact of Brain Injury
- TBI results in 1 1/2 times more deaths each year
then AIDS - More Americans died as a result of TBI between
1981 and 1993 then have been killed in all the
wars in our history combined - TBI is the signature wound of the current
conflicts in Iraq and Afghanistan - Each year 1.5 million people sustain a TBI, that
is 8 times the number of individuals diagnosed
with breast cancer
12Why are the Numbers so Big?
- 30 years ago, 50 of individuals with TBI died,
the number today is 22 - due to
- Improved medical technology and techniques
- Safety features such as car seatbelts, child
safety seats and airbags
13A Huge Public Health Issue...
- With Very Little Public Awareness
- or funding.
- Federal dollars spent per person with brain
injury per year, 2.55
14Simplified Brain Behavior Relationships
Frontal Lobe Initiation Problem solving
Judgment Inhibition of behavior
Planning/anticipation Self-monitoring Motor
planning Personality/emotions Awareness of
abilities/limitations Organization
Attention/concentration Mental flexibility
Speaking (expressive language)
Parietal Lobe Sense of touch
Differentiation size, shape, color Spatial
perception Visual perception
Occipital Lobe Vision
Cerebellum Balance Coordination Skilled
motor activity
Temporal Lobe Memory Hearing Understanding
language (receptive language) Organization
and sequencing
Brain Stem Breathing Heart rate
Arousal/consciousness Sleep/wake functions
Attention/concentration
15What happens in a TBI?
- Mechanism Acceleration/Deceleration
- Differential movement of partially tethered brain
within the skull - Results in
- Bruising of the brain surface
- against rough areas of the skull
- Stretching and twisting of nerve axons
16Primary Injuries
Coup-Contra Coup
17Primary Injuries
Diffuse Axonal Injuries
Rotational forces on the brain cause the
stretching, snapping and shearing of axons
18Primary Injuries, also include.
- Epidural hemotoma-when a blood clot forms on top
of the dura - Subdural hemotoma-when a blood clot forms under
the dura
19Secondary Injuries
Intracerebral Hemorrhage
Hydrocephalus (enlarged ventricles)
Edema (swollen brain tissue)
20The Developing Brain
- Childrens brains do not reach their adult weight
of 3 pounds until they are 12 years old - The brain, and most importantly, the brains
frontal lobe region does not reach its full
cognitive maturity till individuals reach their
mid twenties
21The Developing Brain
- The Frontal Lobe houses our executive skills,
these include judgement, problem solving, mental
flexibility, etc. - The Frontal Lobe is very vulnerable to injury
- Damage to the Frontal Lobe any where along the
developmental continuum can impact executive
skill functioning
22IDEA Definition of TBIFederal Public Law
101-476, 1990
- ..an acquired injury to the brain caused by an
external physical force resulting in total or
partial functional disability or psychosocial
impairment or both that adversely affects a
childs educational performance..
23According to the USDE, in Maryland.
- Only 324 students out of 98,811with identified
disabilities were receiving services under a TBI
diagnosis in 2006. U.S. Department of Education,
Office of Special Education Programs 7/17/06
httpt//www.ideadata.org/tables29th/ar_1-3.xls
24Why the Gaps in numbers?
- Not all children experience lasting effects
- The etiology of a students disability may be
unidentified or misunderstood - Student may be served under a 504 plan
- Effects of a early brain injury may not be
expressed until the student is older - When the effects do surface, they may diagnosed
as having a learning disability, emotional
disorder, or other disability - Adapted from TBI and Educators Guide by the MD
TBI Implementation Project and the BIAM 2003
25Types of TBI-Mild (concussion)
- Most common, 75-85 of all brain injuries are
mild - Individuals experience a brief (lt15 minutes)or NO
loss of consciousness - Post Traumatic Amnesia lt 1hour
- Normal neurological exam
- 90 of individuals recover within 6-8 weeks,
often within hours or days
26Concussion and Kids-Sports
- Football has the highest rate of concussions in
high school sports, girls soccer 2nd highest rate
(New York Times 10.2.07) - 29,167 concussions suffered by US high school
girl soccer players, 20,929 concussions suffered
by high school boy soccer players 2005-2006 (Time
Magazine 2008) - Female concussion rates in high school basketball
were almost 3xs higher than among boys. - In girls symptoms take longer to resolve (NYT
10.2.07)
27Quoted in TimeDr. Joseph MaroonU of Pittsburgh
Medical Center
- More-developed necks allow boys to better absorb
a blow to the head
28Implications for Children
- Concussion and repeated concussions can occur
from abuse - Concussion and repeated concussions can occur
from falls and sports injuries - April 2007 edition of Pediatrics cites research
suggesting children who suffer a brain injury are
more likely to incur a second one within 6 months
29Implications for Adults
- Concussion and repeat concussion can be the
result of childhood abuse, injury - Concussion and repeat concussion can be the
result of assaults, domestic violence, MVAs - Concussion and repeat concussion may contribute
to social failure
30NFL, Concussion Alzheimers Disease
(Guskiewicz et. al. 2005)
- 61 of the former players sustained at least one
concussion in their career - 24 sustained 3 or more concussions
- Retired players with 3 or more concussions had a
fivefold prevalence of reported significant
memory problems compared to players with no hx of
concussion - Researchers also observed an earlier onset of
Alzheimer's disease in retirees than in general
male population.
31Implications for Adults
- Adults with a history of abuse and/or traumatic
brain injury may have difficulty controlling
their impulses and emotions - Several studies have linked a history of a brain
injury to subsequent acts of domestic battering
and spousal aggression as well as other criminal
behavior
32Types of TBI-Moderate
- LOC/Coma between 20-30 minutes to 24 hours,
followed by a few days or weeks of confusion - Post Traumatic Amnesia 1-24 hours
- EEG/CAT/MRI are positive for brain injury
- 33-50 of individuals with moderate brain injury
have long term difficulties in one or more areas
of functioning
33Types of TBI-Severe
- Almost always results in prolonged consciousness
or coma of days,weeks, or longer - Post Traumatic Amnesia greater than 25 hours
- 80 of individuals with severe brain injury have
multiple impairments in functioning
34Brain Injurys Impact on Physical Functioning.
- Difficulty with walking, balance and movement
- Reduced fine and gross motor skills
- Speech impairments such as slow or slurred speech
- Seizure disorders
- Headaches or migraines
- Fatigue and/or pain
35Brain Injurys Impact on Thinking..
- Memory, especially short-term memory
- Reduced flexibility of thinking
- Attention and Concentration difficulties
- Inability to plan or prioritize
- Multi-tasking or splitting and dividing ones
attention can be very challenging
36Emotional and Behavioral Consequences...
- Impulsivity
- Depression and mood swings
- Lack of self awareness and judgement
- Agitation and aggression
- Difficulty exercising good social judgement
37Lack of Awareness A common and difficult to
remediate hallmark of a brain injury
38A memory deficit might look like trouble
remembering or it might look like (Capuco
Freeman-Woolpert)
- She frequently misses appointments-avoidance,
irresponsibility - He says hell do something but doesnt get around
to it - She talks about the same thing or asks the same
question over and over-annoying perservation - He invents plausible sounding answers so you
wont know he doesnt remember
39An attention deficit might look like trouble
paying attention or it might look like (Capuco
Freeman-Woolpert)
- He keeps changing the subject
- She doesnt complete tasks
- He has a million things going on and none of them
ever gets completed - When she tries to do two things at once she gets
confused and upset
40A deficit in executive skills might look like the
inability to plan and organize or it might look
like... (Capuco Freeman-Woolpert)
- Uncooperativeness, stubbornness
- Lack of follow through
- Laziness
- Irresponsibility
41Unawareness might look like (Capuco
Freeman-Woolpert)
- Insensitivity, rudeness
- Overconfidence
- Seems unconcerned about the extent of her
problems - Doesnt think she needs supports
- Covering up problems (everythings fine)
- Big difference in what he thinks and what
everyone else thinks about his behavior - Blaming others for problems, making excuses
42The Relationship Between Brain Injury and Mental
Health-Depression
- Depression is the most common Axis I psychiatric
disorder after TBI followed by alcohol abuse,
panic disorder, specific phobia and psychotic
disorders (Gordon et. al 2004) - Major depressive episodes occur in 20-30 of TBI
patients in the first year. Depressive symptoms
occur even more commonly.
43Other Mental Health Disorders Related to TBI
- Anxiety, seems to go hand in hand with
depression. Those with depression or anxiety
perceive their injury and cognitive impairment as
more severe then nondepressed individuals with
TBI (Fann et.al 1995) - Oquendo and colleagues (2004) found that males
with mild TBI with a hx of substance abuse
coupled problems of aggression and hostility were
more likely to attempt suicide then non injured
males
44Other Mental Health Disorders Related to TBI
- PTSD is noted in some individuals following TBI
even if there is no memory of the incidence
(Klein, Caspi 2003) - Rapid cycling bipolar is rare but noted in the
literature for individuals with temporal lobe
damage (Murai, Fujimoto 2003) - Psychotic syndromes occur more frequently in
individuals who have had a TBI than in the
general population (McAllister, Ferrell 2002)
45TBI Suicide
- The risk of attempted or completed suicide in
neurological illness is strongly related to
depression, feelings of hopelessness or
helplessness, and social isolation (Arciniegas
Anderson, 2002) - Simpson and Tate (2002) screened 172 individuals
for suicidal ideation and hopelessness. Findings
using the Beck Suicide Ideation and Hopelessness
Scales found 35felt hopeless and 23expressed
suicide ideation. 18 had attempted suicide post
injury
46Alcohol Use TBI-IncidenceAnalysis of the
Literature (Corrigan 1995)
- Alcohol, the drug of choice-Corrigan and his
colleagues report that for 70 of the
individuals they work with who use substances,
alcohol is the preferred substance - Intoxication at time of injury-7 studies looked
at incidence of intoxication (BAL equal or
exceeding 100mg.dL)at time of injury.
Intoxication ranged from 36 to 50 - History of Substance Abuse-Findings suggest that
for adolescents and adults in rehabilitation
following a TBI, as much as 60 of this
population have histories of alcohol use or
dependence.
47Recommended Supports and Services-The Ideal
Pathway Following Concussion or Mild Brain
Injury-Childhood Injury
- Family and child is educated about the possible
symptoms of concussion - If symptoms emerge or persist following a
concussion, appropriate referrals are made to a
neurologist, pediatric neuropsychologist.
Appropriate interventions and supports including
outpatient speech, occupational and physical
therapy are provided and coordinated with school
personnel - Exposure to situations where a second impact is a
possibility is minimized
48Less than Ideal Pathway Following Concussion/Mild
TBI
- Hit on the head while playing, or riding a bike,
horse, playing football, soccer, cheerleading,
etc. - May or may not experience a loss of consciousness
lt15 minutes, PTA, post traumatic amnesia - Return to normal activities without being
evaluated by a health professional
49Less than Ideal Pathway Following Concussion/Mild
TBI
- Feel tired, lethargic, experience headaches
- Teachers and family may notice irritability
- Schoolwork suffers
- Behaviors attributed to factors other than the
brain injury (family/peer problems, adolescence) - Child continues to experience problems, becomes
depressed/may begin to act out - Is at risk for academic/social difficulties
- Is at risk for a subsequent brain injury,
exacerbating the above
50Recommended Supports and Services-The Ideal
Pathway For Childhood Moderate to Severe TBI
- Specialized TBI medical rehabilitation services
- Neuropsychological evaluation and follow-up
- IEP that reflects recommendations of therapists
and neuropsychologist and teachers - A transition plan is written by age 14, DORS and
DDA referrals in place - Individual and family therapy
- TBI Support group
- Case management and resource coordination
51Common and Less than Ideal Pathway-Mod to Severe
TBI
- Go through ideal pathway through outpatient
rehabilitation - Return to school, behind peers
- Struggle academically
- Act out behaviorally, if the injury several
grades back, not recognized as TBI related
52Common and Less than Ideal Pathway-Mod to Severe
TBI
- Trouble making the transition to post graduation
roles and responsibilities - Get in with the wrong crowd
- At risk for mental health issues, substance
abuse, criminal activity, burn out families and
supports
53Ideal Rehabilitation Pathway for Mild TBI-Adults
- Diagnosed after injury and provided with
education and follow-up - If they are of the approximately 10 of mild TBI
sufferers who continue to experience difficulty
functioning, the individual is referred to
appropriate treatment,(neurological/neuropsychiatr
ic/ neuropsychological treatment or consultation)
54Common and Less than Ideal Pathway-Mild TBI-Adult
- Discharged and released from ER or not even seen
in ER - Memory, emotional lability, visual, vertigo,
headaches and or fatigue symptoms do not resolve
after the first few weeks following injury - If subsequently seen by GP or in the ER often
told to justtake it easy
55Common and Less than Ideal Pathway-Mild TBI,
cont..
- Cant function at work or home
- Spiral into depression and anxiety
- Family, friends and co-workers loose patience
- If seen by a GP or neurologist may be viewed as
having a psychosomatic reaction or be labeled a
malinger-inappropriately medicated
56Common and Less than Ideal Pathway-Mild TBI,
cont..
- Job loss
- Mental Health Problems
- Relationships and supports erode
- At risk for Substance Abuse
- At risk for entry into the criminal justice system
57Ideal Medical/Rehabilitation Pathway-Moderate to
Severe TBI-Adult
- Acute care delivered at a trauma center (Shock
Trauma, Johns Hopkins) - Inpatient rehabilitation at a CARF accredited
brain injury rehabilitation hospital(Sinai,
Kernan, Maryland General) - Outpatient rehabilitation at a CARF accredited
brain injury rehabilitation center offering a
community re-entry program and individual
therapies (Sinai, Kernan, Humanim, Total Rehab
Care, Sky Neurorehabilitation)
58Moderate to Severe TBI Pathway cont.....
- Referral to a state vocational services
counselor with a TBI caseload - Vocational services as appropriate can include
vocational evaluation, work adjustment training,
vocational training, job placement and job
coaching - Support services in the community-case management
and individual/family therapy
59Common and Less than Ideal Pathway-Mod to Severe
TBI
- Discharged from Trauma or Acute due to good
physical recovery - Referrals not made for continuing rehabilitation
(cognitive therapy) - Impulse control, memory problems affect home,
community, work and school - Family is strained
- At risk for mental health problems, substance
abuse, criminal behavior, entry into a state
hospital
60Without Appropriate Services, Individuals with
TBI are at Risk for...
- Long-Term Unemployment
- Alcohol and or Drug Use and Abuse
- Social Isolation
- Higher risk of subsequent brain injuries than
individuals who have never incurred a brain injury
61Why Screen?
- What other TBI Screening efforts have found
62Findings from the LiteratureCriminal Justice
System
- Researchers at Indiana State University found
that 83 of felons studied reported a head injury
that predated their first encounter with the law
(1998) - Adults who had frontal lobe damage prior to age 8
exhibited recurrent impulsive and aggressive
behavior - 14 of the subjects in the Vietnam Head Injury
Project with frontal lobe lesions engaged in
fights or damaged property compared to 4 of
controls without TBI
63Domestic Violence TBI Findings
- Batterers fared worse on three neuropsychological
indicators of cognitive functioning then a
nonbatterer control group (Cohen et. Al 1999) - Corrigan et.al., (2003) found that of 167
individuals treated for domestic violence related
health issues, 30 experienced a loss of
consciousness on at least one occasion, 67
reported residual problems that were potentially
TBI related - Valera and Berenbaum, (2003) assessed 99 battered
women. Of these, 57 had brain injured related
symptomatology
64TBI Among Individuals with Persistent Mental
Illness
- Kathleen Torsney (2004) found in one mental
health treatment setting 13 of individuals
served had a history of TBI - These same individuals had been treated in
various mental health settings but not received
specific brain injury treatment
652000 Epidemiological Study of Mild TBI J. Silver
of NYU, cited in WSJ by Thomas Burton 1.29.08
http//online.wsj.com/article/SB120156672297223803
.html?modgooglenews_ wsj
- 5,000 interviewed
- 7.2 recalled a blow to the head
w/unconsciousness or period of confusion - Follow up testing found 2x rate of depression,
drug and alcohol abuse - Elevated rates of panic and and
obsessive-compulsive DO
66In Maryland- Screening Results from the MD TBI
Post Demo II Project-2005
- Summary of TBI Incidence Among all Screened at 7
public mental health agencies in Frederick and
Anne Arundel counties - N190
- 39 no reported history of TBI (78)
- 58.94 of individuals with a history of TBI
(112) - 35.78 of individuals with a history of a single
incidence of TBI (68) - 23 of individuals with a history of 2 or more
TBIs (44)
67TBI Screening, Adapted From
- Ohio Valley Center for Brain Injury Prevention
and Rehabilitation John Corrigan
Ph.D
68Have you ever been injured following a blow to
the head?
- As a child?
- Playing sports?
- From a fall?
69Have you ever been hospitalized or treated in an
emergency room following an injury?
- Treated and released?
- Evaluated by a neurologist?
- Had a CAT scan, MRI or EEG done while in the
emergency room?
70Have you ever been unconscious following an
accident or injury?
- Have no memory for the event?
- Felt dazed or confused?
- Experienced a head ache, fatigue, dizziness, or
changes in vision?
71Have you ever been injured in a fight?
- Taken a direct blow to the head
- Experienced a violent shaking of the head and
neck?
72Have you ever been injured by a spouse or family
member?
- Pushed
- Punched
- Shaken
- Choked
73Have you ever had any major surgeries?
- Heart Bypass
- Transplant
- Brain surgery to treat a tumor, aneurysm, stroke
74Illnesses?
- Toxic Shock Syndrome
- Meningitis
- Encephalitis
- Hydrocephalous
- Seizure disorder
- Lead poisoning
75Additional comments and observations of the
interviewer
- Any visible scars?
- Walks with a limp?
- Uses a cane or walker?
- Has a foot brace?
- Limited use of one hand?
- Appears to have difficulty focusing vision?
- Difficulty answering questions?
- Answers are unorganized and/or rambling
- Becomes easily distracted, agitated or is
emotionally labile
76What you are looking for..
- Any reported or suspected functional difficulties
that are interfering with home, work or community
activities
77Strategies-Physical-for Children
- Visual aides (large print, screen adapters,
scanning aides) - Tutoring in one handed typing techniques
(especially for middle and high school students) - Built in rest periods in daily schedule
- Anticipate accommodations (classrooms accessible,
augmentative devices obtained, etc.) Adapted from
TBI and Educators Guide by the MD TBI
Implementation Project and the BIAM 2003
78Strategies-Physical-for
- Return to work gradually, part-time adjust
medications as needed (adults) - Rest periods as needed
- Accommodations for visual perceptual deficits,
red highlighter etc. - Modify home and work to accommodate mobility and
coordination limitations
79Strategies-Cognitive-Adults Children
- Calendar/keep schedule predictable
- Planner vs. loose paper
- Laptop/computer
- Tape recorder
- Timer/timer watches
- Untimed testing
- Alternative testing
- Use of a reader or note taker (buddy)
- Highlighter
- Books on tape/film adaptation
- Strategic scheduling
- Break tasks/assignments into steps
80Strategies Continued
- Encourage active listening strategies e.g
paraphrasing back to speaker the information,
especially when it is novel - Place visual cues in environment (labels,
emergency contacts, calendars)
- Retention in long term memory is enhanced by the
three Rs Repeat, Rehearse, and Review - Safety checklist for use of stove etc.
- Checklists
- Alarm watch
81Resources
- Brain Injury Association of America
- 1-800-444-06443
- www.biausa.org
82Resources
- Brain Injury Association of Maryland
- 410-448-2924
- www.biamd.org
83Resources continued...
- National Safe Kids Campaign
- www.safekids.org
- 1301 Pennsylvania Ave., N. W.
- Washington D.C. 20004-1707
- 202-662-0600
84Resources continued...
- Kids in Safety Seats
- Kiss_at_dhmh.state.md.us
- 1-800-370-SEAT, call for information as well as
for a car seat safety check
85Resources continued...
- The Safe Concussion Outcome Recovery Education
Program(SCORE) - At the Childrens National Medical Center
- Washington DC
- 202-884-2429
86National Center on Secondary Education and
Transition
87Resources
- Specialized Health Needs Interagency
Collaboration (SHNIC) - Kennedy Krieger Institute
- 410-502-8419
88Lash and Associates Publishing/Training
www.lapublishing.com
- Information and ReferralBrain Injury in Children
and Adults - Books, pamphlets and tip sheets on various
aspects of brain injury can be purchased, the
website also offers many articles that can be
downloaded for free
89National Dissemination Center for Children with
Disabilities
- www.nichcy.org/pubs/factshe/fs18txt.htm
90Publications Available from Lash Associates
- Pay Attention! Attention Training for Children
Ages 4-10. 2nd edition, Jennifer Thomson and
Kimberly Kerns. Resource for professionals and
families working with children following TBI,
brain tumors, and ADHD - Getting A-Head of Concussion. Phil Hossler and
Ron Savage. For school nurses, parents,
pediatricians, and coaches. Discusses the signs
of concussion and how to monitor at home and in
the classroom
91Resources
- Catherine Rinehart Mello 301-682-6017
- The Project provides free resource coordination
services to individuals with brain injury (18 and
older).
92Brain Injury Training
- Available free of charge for human service
professionals and agencies in - Frederick
- Washington
- Montgomery
- Baltimore
- Howard
- Anne Arundel County
- All counties on Marylands Eastern Shore
- Contact Anastasia Edmonston 410-402-8478
93Contact Information
- Anastasia Edmonston
- 410-402-8478
- aedmonston_at_dhmh.state.md.us