CAREGIVER RECIPIENTS

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INFORMAL CAREGIVERS AND GRANDPARENT CAREGIVERS
PRELIMINARY RESULTS FROM A COLLABORATIVE
STATEWIDE SURVEY
2003 Outreach/Case Managers Conference Building
Skills"
March 28, 2003
Richard L. Ludtke, Ph.D.

Website http//medicine.nodak.edu/crh
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Caring for North Dakotas Indian Elderly
Results From a Statewide Research and Service
Collaborative

• Collaborators
• North Dakota Data Center, North Dakota State
  University
• Center for Rural Health, University of North
  Dakota School of Medicine and Health Sciences
• Department of Child Development and Family
  Science, North Dakota State University

Funded by the North Dakota Department of Human
Services
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THE CAREGIVERS
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CAREGIVERS CONT.
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CAREGIVER RECIPIENTS
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MAIN REASONS FOR CARE
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LOCATION OF CARE
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AMOUNT OF CARE REQUIRED
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AVAILABILITY SERVICES FOR RECIPIENT
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AVAILABILITY SERVICES FOR RECIPIENT cont.
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SERVICE WANTS FOR ELDERS AMONG THOSE LACKING THEM

• STATEWIDE
• 1 Outreach
• 2 Visiting nurse
• 3 Day centers
• 4 Homemaker
• 5 Transportation
• 6 Congregate meals

• RESERVATION AREAS
• 1 Visiting nurse
• 2 Homemaker
• 3 Outreach
• 4 Transportation
• 5 Congregate meals
• 6 Shopping asst.

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Use rates for available services
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AVAILABILITY OF SERVICES FOR CAREGIVER
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SERVICE WANTS FOR CAREGIVERS AMONG THOSE LACKING
THEM

• RESERVATION AREAS
• Information 69.1
• Education 66.7
• Asst. w/access 58.9
• Respite care 47.1
• Counseling 36.9
• Support groups 35.9

• STATEWIDE
• Information - 68.5
• Respite care 51.1
• Asst. w/access 48.4
• Support groups 38.2
• Education 33.7
• Counseling 30.1

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USE OF AVAILABLE SERVICES BY CAREGIVERS
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INFORMATION CONSIDERED VALUABLE
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VALUABLE INFORMATION CONT.
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IMPACTS OF CAREGIVING
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IMPACTS OF CAREGIVING CONT.
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GRANDPARENT CAREGIVERS

• Grandparent or older relative
• Lives with and is primary caregiver
• May have legal custody

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TOP FIVE REASONS FOR GRANDPARENT CAREGIVING

• Statewide
• Substance abuse
• Lack of maturity
• Emotional issues
• Lack of parenting skills
• Parents cant afford

• Reservations
• Substance abuse
• Lack of parenting skills
• Parent doesnt want to be bothered
• Parent never involved
• Parents cant afford

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MAIN SPECIAL NEEDS PRESENT IN CHILDREN

• Statewide
• Emotional issues(18.9)
• Learning Disabilities (15.1)
• Hyperactivity disorder (11.3)
• Physical disabilities (7.5)
• Mental health issues (7.5)
• Fetal alcohol (4.7)

• Reservations
• Emotional issues(13.5)
• Learning Disabilities (9.9)
• Hyperactivity disorder (12.8)
• Fetal alcohol (6.6)
• Substance abuse (5.1)

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Marital Status of Grandparents
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Employment Status of Grandparents
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Caregiver tasks
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Caregiver tasks cont.
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SERVICE AVAILABILITY Proportions with access
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PROPORTION USING AVAILABLE SERVICES
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CHILD SERVICE WANTS GRANDPARENT CAREGIVERS
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SERVICES AVAILABLE FOR CAREGIVERS
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SERVICES AVAILABLE FOR CAREGIVERS CONT.
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PROPORTION USING AVAILABLE SERVICES
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PROPORTION USING AVAILABLE SERVICES CONT.
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SERVICE WANTS FOR GRANDPARENT CAREGIVERS
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SERVICE WANTS FOR GRANDPARENT CAREGIVERS
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KINDS OF INFORMATION/SERVICES VALUED BY
GRANDPARENTS

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KINDS OF INFORMATION/SERVICES VALUED BY
GRANDPARENTS cont.

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KINDS OF INFORMATION VALUED BY GRANDPARENT
CAREGIVERS cont.

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Most Common Changes for Grandparents
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Caring for North Dakotas Elderly Results From
a Statewide Research and Service
Telephone [phone] Website
http//medicine.nodak.edu/crh