THE DISABILITY LEGAL ADVOCACY NETWORK

1
THE DISABILITY LEGAL ADVOCACY NETWORK

• Also Known As
• The Protection and Advocacy System
• David T. Hutt, National Disability Rights Network
  (NDRN)
• Lillie Lowe-Reid, New Jersey Protection and
  Advocacy, Inc.

2

• WHATS PROTECTION AND ADVOCACY?(PA)
• A network of legally based advocacy available in
  every state and territory.
• Collectively, the PA agencies are the largest
  provider of legally based services to people with
  disabilities in the United States .
• Each program is funded separately and has its
  own criteria for eligibility and services.

3

• Principles of Protection Advocacy Systems

CLIENT-DIRECTED
LEGALLY BASED
INDEPENDENT ADVOCACY
CONSUMER-MANAGED
4

• Structure of Protection Advocacy Systems

• Governors Designation
• Formula Grant
• Continuum of Remedies
• Authority
• Priority Setting
• Fiscal Accountability
• Data Collection
• Grievance Procedure

5

• Governors Designation

• Ongoing Nature
• Re-designation for Good Cause Only
• Not pursing mandates
• Not aggressive advocates
• 5 Monitoring/Administrative
• No Supplanting of State Funds

6

• Formula Grant

• Eight Programs
• Different Formulas
• Minimums
• All Boats Rise Together
• Benefits
• Stability
• Build Capacity

7

• Continuum of Remedies

• Information and Referrals
• Training Consumers Professional
• Self Advocacy Skills
• Counseling and Advice
• Negotiation and Mediation
• Administrative Action
• Individual Litigation
• Monitoring
• Interaction with Policymakers
• Class Action
• Legislative Advocacy

8

• Authority

• Pursue legal, administrative other appropriate
  remedies
• Range of Issues
• Ranges of Remedies
• Ability to Respond
• Access Persons, Records, Facilities

9

• Protection Advocacy (PA) Programs

• PADD Developmental Disabilities
• CAP Client Assistance Program
• PAIMI Individuals with Mental Illness
• PAIR Individual Rights
• PAAT Assistive Technology
• PABSS Beneficiaries of Social Security
• PATBI Traumatic Brain Injury
• PAVA Voting Accessibility

10

• Limitations

• CAP No Class Action
• No Physician-Assisted Suicide Cases
• HAVA No Litigation

11

• Priority Setting

• Consumer Involvement
• How to Say NO
• Flexibility

12

• Fiscal Accountability

• Applications
• Federal Agency Oversight
• A-133
• Private Audits
• OIG Oversight
• Board Oversight

13

• Grievance Procedure

• Individual Grievance
• Third-Party Grievance (PAIMI Only)

14

• History of Disability Legal Advocacy Network

• 1975- Developmental Disabilities Assistance Act
  and Bill of Rights Act
• 1980 National Association of Protection
  Advocacy Systems, Inc. (NAPAS) formed
• 1981 Dues collected

15

• History of Disability Legal Advocacy Network

• 1994 Native American PA established
• 2005 Changed name to NATIONAL DISABILITY RIGHTS
  NETWORK
• 2005 Katrina Aid Today - 5.4 million

16
(No Transcript)
17
PADD

• 1975 Developmental Disabilities Assistance and
  Bill of Rights Act includes Protection Advocacy
• 1977 Planning grants to State (20,000)
• 1978 Protection Advocacy agencies begin
  operations with State Designations

18
PAIMI

• 1984 Client Assistant Program (CAP)
  reauthorized as formula grant program

19
CAP

• 1986 Protection Advocacy for Mentally Ill
  Individuals (PAIMI) program enacted (Institutions
  90 days)
• 2001 Expansion of PAIMI to community

20
PAIR

• 1989 Protection Advocacy for Individuals
  Rights (PAIR) demos
• 1991 PAIR program reauthorized to formula grant
• 1993 PAIR trigger reached

21
PAAT

• 1993 Assistive Technology subcontracts
• 1998 Protection Advocacy for Assistive
  Technology (PAAT) funded
• 2004 PAAT Reauthorized

22
PABSS

• 1999 Ticket To Work/Work Incentives Act
  (TTWWIA) passes
• 2001 Protection Advocacy for Beneficiaries of
  Social Security (PABSS) funded

23
PATBI

• 2001 Protection and Advocacy for Individuals
  with Traumatic Brain Injury (PATBI) Authorized
• 2002 PATBI Competitive Grants - 1.5 million
  33 Awards
• 2003 PATBI moves to formula

24
PAVA

• 2003 PAVA funded at 2 Million
• 2004 PAVA funding raised to 5 Million

25
PADD 38.7M
PATBI 2.97 M
CAP 11.7M
PAVA 4.72 M
PAIMI 34.0M
PAIR 16.489 M
PABSS 7 M
PAAT 4.45 M
26

• FY06 Primary Disability Data

• of Served of Served
• Other Intellectual 995 1.33
• Heart and other circulatory cond. 1,082
  1.45
• Muscular /Skeletal Impairments 1,223 1.64
• Other Emotional/Behavioral 1,522 2.04
• Blind / Visual Impairments 2,174 2.91
• Cerebral Palsy 2,233 2.99
• Other 2,319 3.10
• Hard of Hearing / Deaf 2,423 3.24
• Neurological Disorders 2,744 3.67
• Traumatic Brain Injury 3,006 4.02
• All Other Disabilities (lt 1) 3,448 4.61
• Autism 4,683 6.26
• Specific Learning Disabilities 6,186 8.27
• Mental Retardation 8,019 10.72
• Orthopedic Impairments 8,764 11.72
• Mental Illness 23,949 32.03

27

• Federal Government

DOE
DHHS
SSA
OSERS
HRSA
SAMHSA
ACF
OESP
ADD
RSA
CMHS
PABSS
PAIMI
PATBI
PAVA
PADD
PAIR
CAP
PAAT
28

• Data Collection

• Current Status
• Separate PPR forms by funding source
• OMB approved
• PADD, PAIMI, PAIR, CAP, PAAT
• Not approved
• PATBI, PABSS, PAVA
• Future
• Universal Data Collection Objects and Definitions

29

• PABSS Program Activities

• Investigate Complaints and Provide Legal
  Consultation and Representation on
• Vocational Rehabilitation
• Employment Networks
• Employment Discrimination
• Transition services from school to work
• Post-Secondary education
• Supported employment

30

• Medicaid/Medicare services, including personal
  assistant services

PABSS Program Activities
Medicaid/Medicare services, including
personal assistant services Assistive
Technology Housing (when it poses a barrier)
Transportation (work-related) Information
and Referral to Benefits Planners Disputes
with SSA Information and Referral to other
agencies.

31

• Programs can be found at
• www.ndrn/org/aboutus/PA_CAP.html
• Questions??
• David T. Hutt, Ph.D.
• David.Hutt_at_ndrn.org
• Cheryl Bates-Harris
• 900 2nd Street, NE, Suite 211
• Washington, DC 20002
• Cheryl.Bates-Harris_at_ndrn.org