Consumer priorities for depression

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Depression Anxiety Consumer Research Unit

• Consumer-focused research
• Depression Anxiety Consumer Research Unit (CRU)
  consumer register
• BrolgaNet
• What Works for Us
• BlueBoard online depression support board

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Priorities for depression bipolar disorder
research A consumer perspective

• Michelle Banfield BA(Hons) BSc
• Australian Rotary Health Ian Scott PhD scholar
• Depression Anxiety Consumer Research Unit
• Centre for Mental Health Research

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• Why consumer involvement in research?

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Encouraging Consumer Participation

• National Health Medical Research Council and
  Consumers Health Forum of Australia Statement on
  Consumer and Community Participation in Health
  and Medical Research 2002
• ARHRF symposia 2003, 2006 recommending
  partnerships in research between stakeholders
  including consumers/carers

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Research Priorities in Mental Health report
Factors influencing setting research
priorities Involvement of consumers in planning
research
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• P1 Can I just ask, do you have a who should be
  doing the research question? Because I think
  thats the most important question.
• P2 Who gets the money, thats who gets to do the
  research!
• P1 No, I just believe in consumer-led research.

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My Study Consumer Research Priorities

• Aim
• To identify and prioritise areas for
  depression and bipolar disorder research from a
  consumer perspective.

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Structure
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Phase 1 - Qualitative Research

• Five topics for brainstorming
• Research area priorities
• Priority groups
• Settings for research
• Factors influencing priority decision-making
• Sources of information on mental health research
• Priorities report categories
• Top three priorities noted

Feedback of results to participants
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Phase 2 Quantitative Research

• Survey developed from results of qualitative
  research
• Delivered online - beyondblues blueVoices
  network
• Survey also offered to Australian researchers
• Content analysis of Australian literature from
  past 10 years

Results to consumers community in addition to
research journals
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P1 I wonder if anyone is really listening to us
able-minded consumersthere is lots of research
into research but nothing ever gets
implemented. P2 I wonder that sometimes tooIs
this research actually going anywhere? Will it be
implemented and used in real life? Or is it just
another research paper?
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Where to?
Priorities identified by consumers used to
provide framework for researchers funding
bodies for research relevant to consumer needs
with practical benefits for improving
Australians mental health.
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Acknowledgements

• Australian Rotary Health Ian Scott PhD
  Scholarship
• Associate Professor Kathy Griffiths Director,
  Depression Anxiety Consumer Research Unit,
  Centre for Mental Health Research, ANU (PhD
  supervisor)
• Professor Helen Christensen - Director, Centre
  for Mental Health Research (PhD supervisor)
• Dr Rod Lamberts (PhD advisor and focus group
  facilitator)
• Ms Lisa Barney (focus group facilitator)