Working with Trusts and Cancer Networks

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Working with Trusts and Cancer Networks
Sameena Qureshi
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Background

• April 2000 - Review of Cancer Registration in
  England led by Professor Charles Gillis
• 2001 - Action Programme for Cancer Registration
• a shift in data collection from cancer registries
  to trusts

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Evolution of cancer registries

• Collation and quality assurance of data
• Analysis and research
• Dissemination of this information

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How will the shift take place?
Over the next 3-5 years responsibility for
collecting data for cancer registries will shift
to provider trusts. Where cancer registries
currently collect data manually, existing
arrangements should continue in the meantime.
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Current situation

• We currently collect data manually from most
  trusts
• We are working with networks / trusts to obtain
  electronic cancer information from multiple
  sources

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How does TCR interact with the networks?

• Angela Newnham
• Sameena Qureshi

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Primary contacts for networks

• Angela Newnham
• West London Cancer Network
• South East London Cancer Network
• South West London Cancer Network
• Kent and Medway Cancer Network
• Surrey, West Sussex and Hampshire Cancer Network

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Primary contacts for networks

• Sameena Qureshi
• North London Cancer Network
• North East London Cancer Network
• South Essex Cancer Network
• Sussex Cancer Network
• Mount Vernon Cancer Network

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How do TCR and the networks work together?

• Cancer Networks Advisory Group
• TCR Cancer Network Liaison Group
• TCR Co-ordinators meetings

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How do TCR and the networks work together?

• Liaison with East Anglian Cancer Registry
• Liaison with primary care trusts
• Provision of information
• Provide advice on cancer registration and quality
  assurance of data
• Quality Assurance Team
• Computing Services
• Information and Research Team

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Key areas for the future for TCR

• Strengthen liaison between TCR and networks
• Identify electronic data sources
• Samples for quality assurance and feedback
• pathology or pharmacy systems
• trust systems where in place
• network-wide systems where in place

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Key areas for the future for TCR

• Strengthen information provision
• Regular reports for networks and primary care
  trusts
• Cancer Information Service
• Plan for the future based on changing role
• Increased quality assurance and data analysis

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Working with Trusts and Cancer Networks
Sameena Qureshi sameena.qureshi_at_kcl.ac.uk