Organ Donation

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Organ DonationThe Gift of Life

• University of Wisconsin Hospital and Clinics
• Organ Procurement Organization

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Organ Procurement OrganizationsUniversity of
Wisconsin Hospital and Clinics OPO (Madison)
RedWisconsin Donor Network (Milwaukee)
GreenLifeSource (Minneapolis) - Blue
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Recovery Agencies

• Organ Recovery Agencies
• UW Health OPO most of WI, UP of MI, Rockford,
  IL
• Wisconsin Donor Network Milwaukee SE
  Wisconsin
• LifeSource OPO Minnesota, N. S. Dakota, NW
  WI
• Tissue Agencies Have contracts with individual
  hospitals
• MTF
• Wisconsin Tissue Bank
• RTI Donor Services
• ATSF
• Lions Eye Bank of Wisconsin

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National Transplant Waiting List

• Type of Transplant Waiting Transplanted
  in 08 Kidney 79,252 16,514
• Liver 15,845 6,318
• Lung 1,954 1,478
• Heart 2,782 2,163
• Heart-lung 85
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• Kidney-pancreas 2,269 836
• Pancreas 1,535 437
• Intestines 220 185
• Totals 101,524 27,958
• Source Organ Procurement and Transplant Network
  - As of 4/14/2009

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Wisconsin Transplant Waiting List

• Type of Transplant Waiting Transplanted
  in 08
• Kidney 1,071 445
• Liver 218 155
• Lung 66 40
• Heart 82 29
• Heart-lung 0 1
• Kidney-pancreas 57 49
• Pancreas 11 15
• Intestines 2 0
• Total 1,470 734
• Source Organ Procurement and Transplant
  Network, As of 4/14/2009

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Illinois Transplant Waiting List

• Type of Transplant Waiting Transplanted
  in 08
• Kidney 3,707 726
• Liver 637 251
• Lung 65 60
• Heart 109 92
• Heart-lung 4 0
• Kidney-pancreas 155 41
• Pancreas 83 34
• Intestines 8 4
• Total 4,618 1,208
• Source Organ Procurement and Transplant
  Network, As of 4/13/2009

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Michigan Transplant Waiting List

• Type of Transplant Waiting Transplanted
  in 08
• Kidney 2,502 578
• Liver 307 209
• Lung 45 43
• Heart 84 52
• Heart-lung 0 0
• Kidney-pancreas 48 19
• Pancreas 25 7
• Intestines 0 0
• Total 2.959 908
• Source Organ Procurement and Transplant
  Network, As of 4/14/2009

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ORGAN DONATION STATISTICS

• There are more than 101,000 people currently
  waiting for an organ transplant in the United
  States, more than 2,500 are children.
• The list is growing at the rate of one person
  every 13 minutes, or more than 3,000 patients
  each month.
• Nearly 200 children and 6,300 adults died while
  waiting for an organ transplant last year.
• 17 people die every day waiting for transplants.
• More than 90 of Americans support organ
  donation, yet less than half say yes when
  approached at the time of donation.

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Organs That Can Be Transplanted Conditions
Causing The Need For Transplant

• Heart
• Cardiomyopathy, Coronary Artery Disease,
  Congenital Heart Disease, Valvular Heart Diseases
• Lungs
• Emphysema/COPD, Cystic Fibrosis, Pulmonary
  Fibrosis, Primary Pulmonary Hypertension,
  Congenital Pulmonary Defects
• Liver
• Hepatitis A,B,C, Cirrhosis, Biliary Disease,
  Metabolic, Neoplasms
• Pancreas
• Diabetes Type I without Renal Disease,
  Hypoglycemic Unawareness, Pancreas after Kidney
  Transplant
• Kidneys
• End Stage Renal Disease, Diabetes with Renal
  Disease
• Small Intestines
• Short Gut Syndrome, Severe Vascular Disease

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Tissue Eye Donation

• Skin
• Bone
• Connective tissue (ligaments tendons)
• Heart valves
• Veins
• Corneas

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The Gift of Tissue Eye Donation

• Skin is used for burn victims, and in
  reconstructive and cosmetic surgeries
• Bone and connective tissue are often used for
  sports injuries or trauma repair
• Veins are used for vascular surgeries
• Corneas are used for certain types of blindness

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The Differences.

• Organ Donation
• The patient must be maintained by a mechanical
  ventilator
• Organs must be properly preserved and
  transplanted quickly
• Life-saving procedure

• Tissue/Eye Donation
• Occurs in the first 24 hours after the heart has
  stopped beating
• The tissues can be preserved and used at a later
  date
• Life-enhancing procedure

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Organ Preservation Time Limits

• Heart 4 to 6 hours
• Lungs 4 to 6 hours
• Liver 12 hours
• Pancreas 12 to 18 hours
• Kidneys up to 72 hours
• Small Intestines 4 to 6 hours

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• Current Criteria for Organ Donation
• Patients who have been declared brain dead
• OR
• Patients with severe neurological injury and
  family and MD are discussing withdrawing
  ventilator support
• Up to age 75 flexible there was a 96 y.o.
  donor last summer
• HIV (at this time)
• No active malignancy
• Exception Primary CNS tumors
• Note Only the OPO can determine
• donor suitability

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If I want to be a donor.
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Say Yes to Donation

• In Wisconsin you can legally consent to donation
  by signing the Anatomical Gift Statement on the
  back of your drivers license or state issued ID
  card.
• You can indicate your support of donation by
  attaching an orange donor dot to the front of
  your license or ID card.
• You can also include your donation decision in
  writing in your living will or healthcare POA
  documents.
• BUT

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The Most Important Step

• Tell your family or legal next of kin your
  wishes. Hospital staff will ask them about your
  wishes as they relate to donation.

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Who is my Legal Next of Kin ?

• Healthcare Agent/POA
• (if enabled to do so)
• Spouse
• Adult Child
• Parent
• Adult Sibling
• Grandparent
• Grandchildren
• Legal Guardian
• Coroner or ME

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Can Your Family Go Against Your Wishes ?

• If you havent legally documented your decision
  in writing, your legal next of kin has the right
  to make the decision, even if its not the
  decision that you wanted.
• Its important to make sure that you have
  properly documented your decision and that they
  know your wishes about donation.

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Through Organ Tissue Donation

• One donor can
• Save up to eight lives through organ donation
• Give sight to up to two people
• Enhance the lives of 40 or more people through
  tissue donation

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State Donation Data - DMV

• Wisconsin Organ Tissue Donor Program
• https//apps.dhfs.state.wi.us/OrganDonor/public
  /Home

• Website query capabilities on organ donation
  according to
• Age range, ethnicity, county, dates, etc.

• Allows you to view/print intent map

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Organ Donation Websites

• United Network of Organ Sharing -
  UNOS www.unos.org
• US Dept. Of Health and Human Services - HHS
  www.organdonor.gov
• Donate Life America
• www.shareyourlife.org or www.donatelife.net
• Wisconsin Dept. of Health Services dhs.wisconsin.
  gov/health/donatelife/index.htm
• University of Wisconsin OPO www.uwhcopo.org
• Donate Life Wisconsin
• www.donatelifewisconsin.org

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Volunteer Opportunities

• Sharing your personal story
• Churches, civic groups, media, hospital
• staff who work with donors/recipients, etc.
• Staffing a booth on organ donation
• Educating others Drivers ed classes, friends,
  community at large
• Be a Dottie the Dot mascot/escort

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Tips for Staffing a Booth

• Display or Table Set Up
• Keep it simple. Group materials neatly.
• Stand or sit at different ends of the table.
• Talking Points
• Phrases to break the ice
• Hello would you like a donor dot?
• Hi have you made a decision about organ
• donation?

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Tips for Staffing a Booth

• If they answer YES to either question
• Offer a giveaway item (if available)
• Ask if they have discussed their decision with
  their family.
• If they answer NO
• Offer the one-page info sheet
• You can say This is a good reference with
  information and common questions about
  donation.

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Tips for Staffing a Booth

• If you are asked questions you dont know the
  answers
• Be honest. Say you dont know but would be
  happy to have someone from the OPO follow up
  with them. Offer the websites on the one page
  info sheet.
• If they would like OPO follow up
• Forward their contact info question to Trey
  Schwab

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Tips for Staffing a Booth

• If someone is on the fence about donation
  you may say something like If you arent sure
  about donation, ask yourself this If you or one
  of your loved ones needed a transplant to live,
  would you accept it? If so, I would certainly
  hope that you would be willing to give that
  opportunity to another person.
• Offer them a Got Your Dot flyer to take with
  them. Show them the web site on the back, where
  they can go to learn more.

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Tips for Staffing a Booth

• Please Remember.
• A certain percentage of people will say No.
• Organ donation is a very personal decision.
• Our goal is to ask everyone to make an educated
  decision about donation and to share their
  decision with their family.
• We arent trying to coerce people into being
  donors and we must respect personal decisions.
• You are representing UW Health OPO.

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Tips For Working With The Media

• Per UW Policies UW Health Public Affairs
  needs to be notified of ANY media request for an
  interview or data.
• Contact Kathy Schultz in Public Affairs
• kschultz3_at_uwhealth.org
• 608.262.9374 or 719-9086 or pager 4016

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Tips For Working With The Media

• Before the Interview
• Kathy will follow-up with the reporter to get a
  feel for the type of story they are interested
  in. She will educate the reporter and/or share
  current data and facts, and will determine who to
  ask to do the interview.
• She will then follow-up with the appropriate
  person and help them prepare for the interview.
• Once she does that please respond to reporters
  quickly.
• Ask Kathy or the reporter for a list of questions
  or topics.
• Make sure you have consent before discussing any
  patient information.
• CHECK WITH KATHY IF YOU ARE UNSURE OF ANYTHING !

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Tips For Working With The Media

• During an Interview
• Message, Message, Message!
• Speak clearly and use regular language (Avoid
  abbreviations and acronyms that are unfamiliar to
  people who havent experienced donation or
  transplantation.)
• Dont lie or try to fudge the truth. If you dont
  know the answer, just say so. A good reporter
  will follow-up to find the answer elsewhere,
  and/or the question will not be included in the
  edited interview.
• Stay on the record. There is no off the
  record with the media. If you say it, they can
  use it.
• Use brief examples. Think quotable sound bite
  gt20 seconds.
• Use good posture and retain eye contact with the
  reporter.
• Mind your facial expressions and gestures. Body
  language speaks loudly.
• Dress appropriately. Look professional, tidy and
  prepared. This raised the audiences perception
  that you are important and know what youre
  talking about.

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Sensitive Terminology
Please Use
Harvest or harvesting of organs
Recover or recovery of organs
Instead of
Deceased donor orDeceased donation
Cadaver or Caderveric donor
Instead of
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Common Questions in Regards to Donation
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Will the doctors do everything they can to try
and save me if they know my wishes to be a donor?

• Absolutely
• The OPO team is separate from the medical team
  treating the patient. This ensures that there is
  no conflict of interest.
• Donation is only considered after all efforts to
  save a patients life have been pursued by the
  medical team.

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How does religion relate to organ donation?

• The majority of religions support organ donation.
• Most religions view organ and tissue donation as
  a charitable act.
• Talk to your religious leader about donation.

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Will donation disfigure the body?

• No
• Organs are removed through surgical incisions.
• Areas affected by tissue donation are
  reconstructed and concealed by clothing.
• A family is able to have an open casket funeral.

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Does donation cost a family money?

• No
• Individual recovering agencies pay for all
  expenses associated with the recovery.
• Those costs are passed on to the recipients and
  their insurance companies.
• The donors family is responsible for the typical
  funeral expenses.

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Will donation cause any delays with funeral
arrangements?

• No
• The recovering agency will make certain the body
  is released to the funeral home on time.
• No extra planning is required by families of
  organ and tissue donors.

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Can you pay to get an organ?

• No
• Allocation Criteria

• Blood type
• Medical urgency
• Tissue match
• Waiting time
• Organ size
• Immune status
• Geographic distance

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Will the organs be transplanted locally?

• Yes, If.
• There are local recipients for the organ.
• There are no status-one patients in our region.
• (livers only)
• There are no recipients in the U.S. who are a
  perfect tissue-typing match.
• (kidneys only)
• Approximately 85-90 of all organs donated here
  are
• used for transplants here.

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Introducing Dottie the Dot!

• Dottie is Wisconsins very own organ donation
  mascot.
• She is designed to look like the orange donor
  dot (organ donation sticker) that Wisconsin
  residents place on their drivers license if they
  wish to be listed as a donor.
• She was made possible by a generous donation from
  WPS Insurance. The Dottie program is managed by
  UW Health.

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Dotties Mission

• To increase the number of Wisconsin residents
  who declare their wish to be a donor.

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Dotties Goals

• Currently, 2.2 million (52 percent) of Wisconsin
  residents have already declared their intent to
  donate.
• The Dottie program, along with several other
  state-wide initiatives, is working to raise that
  figure to over three million people, (75 percent)
  of Wisconsin residents.
• That figure would put Wisconsin at the top of
  donation rates throughout the nation.

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Understanding the Job and the Rules
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Doing your job as a Dottie mascot and/or escort

• You will appear at public and private events in
  communities throughout Wisconsin to promote
  organ, eye and tissue donation.
• You will promote the Got your Dot? campaign
  encouraging residents to place an orange donor
  dot on their drivers license or state ID.
• You will ask people if theyve Got their dot?
  and answer their questions about how to be listed
  as an organ, eye and tissue donor.
• You will direct people to donatelifewisconsin.org
  to learn more and share their wishes.

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Dotties escorts are

• Champions for the cause.
• Able to answer basic questions about organ
  donation.
• Always directing people to the Donate Life
  Wisconsins Web site to learn more.
• Responsible for ensuring Dotties safety and
  comfort level at all times.
• Clean, neat, respectful and appropriate.

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How Do I Become a Mascot/Escort?

• Email dottiedot_at_uwhealth.org or complete a
  volunteer form today.
• Anyone can be a Dottie escort, however mascots
  must meet specific height, size and physical
  requirements towear the costume.
• Join the team of more than 75 people who are
  volunteering their time and energy to the Dottie
  the Dot program.
• Dottie will be a big part of the Transplant Games
  in 2010, so dont miss your chance to join the
  fun!

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An Overview Madison 2010
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What are the U.S. Transplant Games?

• Olympic-style competition that is held every two
  years.
• Competitors have all received organ transplants.
• 12 sports with 41 different events.
• Ages - 18 months to 80 years.
• Programs, ceremonies and workshops.
• Organized by the National Kidney Foundation and
  the Wisconsin Local Organizing Committee

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Competitions

• Badminton
• Basketball
• Bowling
• Cycling
• Golf
• Racquetball

• Road Race
• Swimming
• Table Tennis
• Tennis
• Track Field
• Volleyball

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Additional Activities

• Games Expo/Athlete Village
• Opening Closing Ceremonies
• Kids Time Activities
• 5K Public Road Race
• Nightly Social Lounge
• Donor/Recipient Golf Outing
• Professional Conference

• Giving, Grieving, Growing Workshop for Donor
  Families
• Donor Recognition Ceremony
• Living Donor Recognition Event
• Workshops for Living Donors
• Donor Quilt Pinning Ceremony
• Coffee House
• Family Fun Night

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Program Objectives

• Demonstrate success of transplantation.
• Call public attention to need for more donors.
• Rehabilitation of transplant recipients.
• Honor both living and non-living donors.
• Involve the transplant community and the local
  community as a whole.

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Who Attends?

• Transplant recipients
• Donor families
• Living donors
• Transplant professionals
• Family and friends
• Local community

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Games Growth
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Games Locations

• 1990 IUPUI (Indianapolis, IN)
• 1992 UCLA (Los Angeles, CA)
• 1994 Emory (Atlanta, GA)
• 1996 U of Utah (Salt Lake City, UT)
• 1998 Ohio State (Columbus, OH)
• 2000/2 Disney World (Orlando, FL)
• 2004 U of Minn. (Minneapolis, MN)
• 2006 Conv. Ctr./U of L (Louisville, KY)
• 2008 UPMC/Pittsburgh, PA
• 2010 Madison, WI (Statewide LOC)

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Coming Soon

• Complete information will be released to the
  public and the media. This communication will
  include the following areas
• Volunteering Opportunities and How to sign-up.
• Participation information for transplant
  recipients who want to compete for Team
  Wisconsin.
• Participation information for donor families
  and/or living donors who wish to attend and take
  part in the 2010 Games.
• Information for companies and corporations that
  would like to get involved.
• A list of contacts for people who are looking for
  more information, someone to speak to their
  group, etc.

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How Can You Help?

• Let your employer, community groups, etc. know
  that the Transplant Games are coming and see if
  they would like to get involved.
• We will need donations both cash and in-kind
  (printing services, professional assistance,
  etc.)
• Spread the word to your friends and families.
• Identify any contacts that you have that would be
  of assistance to Trey Schwab.
• VOLUNTEER we will need approximately 3,000
  volunteer days to make the Games a success.

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To Get Involved

• Contact Trey Schwab at the UW Health OPO - (608)
  890-9451 or via e-mail at rschwab_at_uwhealth.org

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http//www.dot.wisconsin.gov/drivers/vehicles/p
ersonal/special/donatelife.htm Proceeds go to
Donate Life WI to help support a WI State Donor
Registry
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Questions?