Title: SILC-NET Presents
1SILC-NET PresentsA National Teleconference
Webinar
- Disability Statistics Part 2
- Using Statistics about People with Disabilities
to Inform the SPIL - August 23, 2012
- 300 PM 430 PM EDT
- Presenters
- Andrew Houtenville, Eric Lauer, and Tony Ruiz
- University of New Hampshire
0
2SILC-NET PresentsA National Teleconference
Webinar
- Disability Statistics Part 2
- Using Statistics about People with Disabilities
to Inform the SPIL - August 23, 2012
- 300 PM 430 PM EDT
- Presenters
- Andrew Houtenville, Eric Lauer, and Tony Ruiz
- University of New Hampshire
1
3SECTION 6Overview of Major Disability Data
Sources
4Overview of Major Disability Data Sources
- Current Population Survey (CPS)
- American Community Survey (ACS)
- Survey of Income and Program Participation (SIPP)
5Current Population Survey (CPS)
- Conducted by the Census Bureau on behalf of the
Bureau of Labor Statistics - A survey of (currently) approximately 100,000
households - Basic Monthly Survey (BMS) primary source of
employment and labor force statistics in the
United States - March CPS (a.k.a., Annual Social and Economic
Supplement (ASEC), March Supplement, Income
Supplement) collects income and demographic
information as well as disability data - March CPS is the primary source of poverty and
health insurance information - CPS data are used extensively by government
agencies, researchers, policy makers, and
journalists to evaluate employment, government
programs, and the economic well-being of the
population in the U.S.
6CPS Strengths and Limitations
- Strengths
- Provides annual national and state level
statistics - Long Time Trends (effectively since 1968 work
limitation question collected since 1981) - A large set of variables (very detailed income
information) - New six question sequence added in 2008.
- Limitations
- No specific health conditions
- Does not address population living in
institutions - Does not directly address external factors
related to disablement
7Work Limitation Question
- Does anyone in this household have a health
problem or disability which prevents them from
working or which limits the kind or amount of
work they can do? If yes, who is that? (Anyone
else?) - Purpose is to identify people receiving
disability-related income. - Work limitation was in part the basis for many
government disability programs (SSDI, DI, Workers
Compensation).
8Prevalence of Work Limitation (percentage) (CPS
1981-2011, ages 16-64)
9Employment Rate for People with Work
Limitation(CPS 1981-2011, ages 16-64)
10Additional Questions since September 2008 (Same
as ACS)
- Hearing Difficulty Is this person deaf or does
he/she have serious difficulty hearing? (all
ages) - Vision Difficulty Is this person blind or does
he/she have serious difficulty seeing even when
wearing glasses? (all ages) - Cognitive Difficulty Because of a physical,
mental, or emotional condition, does this person
have serious difficulty concentrating,
remembering, or making decisions? (ages 5 or
older)
11Additional Questions since September 2008 (Same
as ACS), contd.
- Ambulatory Difficulty Does this person have
serious difficulty walking or climbing stairs?
(ages 5 or older) - Self-Care Difficulty Does this person have
difficulty dressing or bathing? (ages 5 or older) - Independent Living Difficulty Because of a
physical, mental, or emotional condition, does
this person have difficulty doing errands alone
such as visiting a doctors office or shopping?
(ages 15 or older)
12Other Topics of Interest
- Individual, Family, and Household level data
- Extensive Information on Health Insurance
- Employment
- Industry (at the three digit levels)
- Occupation (at the three digit levels)
- Annual Wages/Salary
- Hours Worked per Week, Weeks Worked per Year
- Educational Attainment
- Income from multiple sources
- Government Program Participation
- Poverty Status
13Accessing Data and Statistics
- Raw Data Public Use Files
- http//cps.ipums.org/cps/
- Summary Tables Census Bureaus Disability Data
web site - http//www.census.gov/hhes/www/disability/disabcps
.html - Other Summary Statistics UNH Web Site
- http//www.disabilitycompendium.org/
- Hire consultants
14Further Information
- A Guide to Disability Statistics from the Current
Population Survey - By Richard V. Burkhauser and Andrew J.
Houtenville - Census Bureaus Disability Data Web Site
- http//www.census.gov/hhes/www/disability/disabili
ty.html
15Questions Answers
16American Community Survey
- Purpose To provide national and local level data
on demographic, social, economic and housing
characteristics - Replacement for Decennial Census Long Form
- Annual Survey (2000) but change disability
definitions in 2004 and 2008. - Pooling together 3 years of data and 5 years of
data to get local small area estimates. - Contains a sample of people living in
institutions.
17ACS Questions 2008 and Onward
- Hearing Difficulty Is this person deaf or does
he/she have serious difficulty hearing? (all
ages) - Vision Difficulty Is this person blind or does
he/she have serious difficulty seeing even when
wearing glasses? (all ages) - Cognitive Difficulty Because of a physical,
mental, or emotional condition, does this person
have serious difficulty concentrating,
remembering, or making decisions? (ages 5 or
older) - Ambulatory Difficulty Does this person have
serious difficulty walking or climbing stairs?
(ages 5 or older) - Self-Care Difficulty Does this person have
difficulty dressing or bathing? (ages 5 or older) - Independent Living Difficulty Because of a
physical, mental, or emotional condition, does
this person have difficulty doing errands alone
such as visiting a doctors office or shopping?
(ages 15 or older)
18ACS Strengths and Limitations
- Strengths
- Annual data used widely in public policy
discussions. - Includes persons living in institutions.
- Provides annual at local level statistics
- Trend data collected in a consistent manner over
time (change in 2004 and 2008) - Limitations
- No work limitation question to identify
potential VR and SSDI/SSI participants. - No specific health conditions.
- Does not directly address external factors
related to disablement - Response error issue (2000-2002) for
Go-Outside-Home Disability and Employment
Disability
19Prevalence Rate, by Type of Disability (ACS
2011, ages 18-64)
20Example of Local Statistics
2010 Total and Hispanic Populations (Civilian Ages 18 and older) based on 5-Year Pooled ACS 2010 Total and Hispanic Populations (Civilian Ages 18 and older) based on 5-Year Pooled ACS 2010 Total and Hispanic Populations (Civilian Ages 18 and older) based on 5-Year Pooled ACS 2010 Total and Hispanic Populations (Civilian Ages 18 and older) based on 5-Year Pooled ACS
Location Total Hispanic Pct.
United States 228,808,831 31270,834 13.7
New York 14,819,772 2332,365 15.7
Tompkins County, New York 83,739 3,209 3.8
Ithaca city, New York 27,219 1,920 7.1
Census Tract 7, Tompkins County 3,517 N/A N/A
Syracuse city, New York MSA 503,357 12,810 2.5
21Other Topics of Interest
- Individual and Household level data
- Employment
- Industry (291 industries)
- Occupation (565 occupations)
- Earnings
- Hours Worked per Week, Weeks Worked per Year
- Educational Attainment
- Housing
- Transportation
- Income
- Supplemental Security Income (SSI) payments
- Poverty Status
22Accessing Data and Statistics
- Raw Data Public Use Microdata Sample (PUMS)
Files - http//www.factfinder2.census.gov/faces/nav/jsf/pa
ges/index.xhtml (ACS) - Summary Tables American FactFinder
- ACS (and Decennial Census)
- http//factfinder2.census.gov/faces/nav/jsf/pages/
index.xhtml - Census Bureaus Disability Data web site
- http//www.census.gov/hhes/www/disability/disabcps
.html - Other Summary Statistics Web Site,
http//www.disabilitycompendium.org - Annual Disability Statistics Compendium
- Currently Based on 2009-2011 ACS data (state
national level)
23U.S. Census Bureaus American Factfinder
- Go to U. S. Census Bureau American Factfinder 2
website - http//factfinder2.census.gov/
24U.S. Census Bureau American Fact Finder
25American Fact Finder Search
26American Fact Finder Results
27Further Information
- A Guide to Disability Statistics from the
American Community Survey - By Robert R. Weathers II
- http//digitalcommons.ilr.cornell.edu/edicollect/1
23 - Census Bureaus Disability Data Web Site
- http//www.census.gov/hhes/www/disability/disabili
ty.html
28Survey of Income and Program Participation (SIPP)
- Conducted by the U.S. Census Bureau.
- Collects information on the income and program
participation of a nationally representative
sample of households and individuals in U.S. - Sample usually consists of about 36,000
households, usually fielded every 3-4 years. - Each new fielding of SIPP is called a panel, -
each panel includes several re-interviews of the
sample conducted every four months, usually over
a 36-month period. - Re-interviews allow researchers to track changes
over time (i.e., longitudinal analysis).
29Survey of Income and Program Participation
(SIPP), contd.
- Disability measures.
- Each interview asks questions regarding presence
of a work limitation. - Disability questions in special topical module
included in certain interviews. Include specific
health conditions, impairments, functional
limitation status ADLs/IADLs. - Other topics include chronic health history,
employment, poverty, medical history/expenditures,
federal program participation, use of assistive
devices.
30SIPP Strengths
- Source of the 54 million number
- Wide variety of disability and health related
data. - Re-interviews allow researchers track changes
over time (i.e., longitudinal). - Linked files to Social Security Administrative
records.
31SIPP Limitations
- Relatively small sample sizes-cannot support
state level estimates. - Some measurement issues with the disability
questions (Maag and Wittenburg, 2003). - Sample attrition across re-interviews. Some
sample members drop out of survey. Sample
weights do account for attrition to some extent. - Over the course of SIPP panels, there have been
some changes to the structure and placement of
disability questions. May be difficult to
construct consistent measures across panels.
32SIPP Disability Questions Sensory
- Do you have any difficulties seeing the words and
letters in ordinary newspaper print even when
wearing glasses or contact lenses if you usually
wear them? Note, includes blindness - Are you able to see the words and letters in
ordinary newspaper print at all? - Do you have difficulty hearing what is said in a
normal conversation with another person even when
wearing your hearing aid? - Are you able to hear what is said in a normal
conversation at all? - Do you have any difficulty having your speech
understood? - In general, are people able to understand your
speech at all?
33SIPP Disability Questions Physical Impairment
- Do you have any difficulty lifting and carrying
something as heavy as 10 pounds- such s a bag of
groceries? - Are you able to lift and carry a 10 pound bag of
groceries at all? - Do you have any difficulty pushing or pulling
large objects such as a living room chair? - Are you able to push or pull such large objects
at all? - Do you have any difficulty...
- a. Standing or being on your feet for one hour?
- b. Sitting for one hour?
- c. Stooping, crouching, or kneeling?
- d. Reaching over your head?
34SIPP Disability Question Physical Impairment,
contd.
- Do you have difficulty using your hands and
fingers to do things such as picking up a glass
or grasping a pencil? - Are you able to use your hands and fingers to
grasp and handle at all? - Do you have any difficulty walking up a flight of
10 stairs? - Are you able to walk up a flight of 10 stairs at
all? - Do you have any difficulty walking a quarter of a
mile - about 3 city blocks? - Are you able to walk a quarter of a mile at all?
- Do you have any difficulty using an ordinary
telephone? - Are you able to use an ordinary telephone at all?
35SIPP Disability Mental Impairment
- Do you have
- A learning disability such as dyslexia?
- Mental retardation?
- A developmental disability such as autism or
cerebral palsy? - Alzheimer's disease or any other serious problem
with confusion or forgetfulness? - Any other mental or emotional condition?
- Note This is for the working-age population. The
SIPP includes additional questions for children.
36SIPP Disability Activities of Daily Living
- Because of a physical or mental health condition,
do you have difficulty doing any of the following
by yourself? - a. Getting around INSIDE the home?
- b. Getting in and out of bed or a chair?
- c. Taking a bath or shower?
- d. Dressing?
- g. Eating?
- f. Using or getting to the toilet?
37SIPP Instrumental Activities of Daily Living
- Because of a physical or mental health condition,
do you have difficulty doing any of the following
by yourself? - Going OUTSIDE the home, for example, to shop or
visit a doctor's office? - Keeping track of money or bills?
- Doing light housework such as washing dishes or
sweeping a floor? - Taking the right amount of prescribed medicine at
the right time?
38SIPP Disability Work Limitation
- Do you have a physical, mental or health
condition that limits the kind and amount of work
you can do?
39Prevalence Rate, by Type of Disability (SIPP
2002, ages 25-61)
40Further Information
- A Guide to Disability Statistics from the Survey
of Income and Program Participation - By David C. Wittenburg and Sandi Nelson.
- Forthcoming http//digitalcommons.ilr.cornell.edu
/edicollect/ - Real trends or measurement problems Disability
and employment trends from the Survey of Income
and Program Participation. - By Elaine Maag and David C. Wittenburg.
- http//digitalcommons.ilr.cornell.edu/edicollect/1
50 - U.S Census Bureau Web Site
- http//www.bls.census.gov/sipp/
41Questions Answers
42SECTION 7Using Disability Statistics Which
definition and source?
43Using Disability Statistics Which dataset and
what definition
- Key questions to ask when choosing a data set.
- Examples of accessing the data.
44Dataset Comparison Key questions to ask
- Geographic level
- National, regional, state, county, metropolitan
area, etc. - Years data collected
- Specific year, most recent year
- Disability Concept/Measure
- Sensory, physical, mental disability
- Population coverage
- Civilian non-institutionalized, institutionalized
- Selected Areas of interest
- Employment, poverty, income, occupation,
ethnicity, housing, etc. - Ease of Accessibility and Use
45SECTION 8Exercises/Case Studies
46Identifying and Using Disability Statistics
- Give examples how the use of statistics may
assist or help you with your work? - Please specify
- The problem or question you have identified
- The information you need
- Where and how you would search for information
- How you would use the information
47Differences Exercise 1 Prevalence Rate
Question Three estimates of the prevalence
of disability are presented in the table below.
List possible reasons for the differences between
the three estimates.
Prevalence of Disability among Non-institutionalized Civilians Ages 25-61 Prevalence of Disability among Non-institutionalized Civilians Ages 25-61
Data Source Prevalence Rate
2003 American Community Survey (ACS) 11.9
2002 National Health Interview Survey (NHIS) 16.7
2002 Survey of Income and Program Participation (SIPP) 18.7
48Differences Exercise 1 Prevalence Rate
- Possible Answers
- The surveys use very different definitions of
disability. The SIPP prevalence rate is the
largest, and its definition includes many
questions related to potentially short-term
conditions. The prevalence rate is positively
related to the number of survey questions used.
The ACS uses six questions the NHIS uses 21
questions and the SIPP uses 27 questions. - The context in which the questions are asked.
The ACS is a general survey. The NHIS is a
health survey. The SIPP is a program-related
survey. We may expect high prevalence rates in
health surveys and perhaps program-related
surveys. - The surveys are conducted in different years and
during different months of the year. (But not
likely to cause a dramatic difference.)
49Differences Exercise 2 Employment Rate
Question Three estimates of the employment
rate of people with disability are presented in
the table below. List possible reasons for the
differences between the three estimates.
Employment Rate of Non-institutionalized Civilians with Disabilities Ages 25-61 Employment Rate of Non-institutionalized Civilians with Disabilities Ages 25-61
Data Source Employment Rate
2003 American Community Survey (ACS) 49.9
2002 National Health Interview Survey (NHIS) 58.6
2002 Survey of Income and Program Participation (SIPP) 53.5
50Differences Exercise 2 Employment Rate
- Possible Answers
- The surveys use very different definitions of
disability. - They also use different questions to collect
information on employment. Thus, the definitions
of employment differ. - The surveys are conducted in different years and
during different months of the year, which can
affect employment estimates (for example seasonal
differences.)
51Differences Exercise 3 State Comparisons
- Question
- State-level estimates of the disability
prevalence rate are presented in the table on the
next slide. What do states with high prevalence
rates have in common? What do states with low
prevalence rates have in common? What patterns
can you identify and explain? List possible
reasons for the differences and similarities.
52 2011 Prevalence of Disability among
Non-institutionalized Civilians, by State ()
State Rate State Rate State Rate
AL 16.2 KS 12.2 ND 10.4
AK 10.9 KY 16.8 OH 13.3
AZ 11.2 LA 15.1 OK 15.7
AR 16.3 ME 15.1 OR 13.8
CA 9.9 MD 10.2 PA 13.1
CO 10.1 MA 10.8 RI 13.5
CT 10.4 MI 13.6 SC 13.9
DE 12.3 MN 10.0 SD 11.3
DC 11.1 MS 16.3 TN 15.1
FL 12.8 MO 13.8 TX 11.6
GA 11.7 MT 12.8 UT 8.5
HI 10.7 NE 11.4 VT 13.2
ID 12.6 NV 10.6 VA 10.8
IL 10.2 NH 11.2 WA 11.9
IN 12.5 NJ 9.7 WV 18.9
IA 11.2 NM 13.3 WI 10.8
NY 10.6 NC 13.2 WY 11.8
Source Cornell University tabulations using the
2004 ACS.
53Differences Exercise 3 State Comparisons
- Possible Answers
- Higher prevalence rates are seen in the
Appalachian states and the lower Mississippi
Valley. - The patterns across states are consistent with
what is known as the Disability Belt, which is
also reflected in other surveys and in enrollment
numbers in the Social Security disability
programs. - West Virginia figures may be due to Black Lung
Disease. - High prevalence numbers may be associated with
labor-intensive industries, like agriculture and
mining. - Perhaps, there are cultural differences in the
reporting of a disability.
54Name-that-Data Source County Level
Question Which data source was used to
create the table below? And what is the question
used to define ambulatory difficulty?
2010 Number Non-institutionalized Civilians Ages 18-64 with Ambulatory Difficulty, by County in New Jersey 2010 Number Non-institutionalized Civilians Ages 18-64 with Ambulatory Difficulty, by County in New Jersey 2010 Number Non-institutionalized Civilians Ages 18-64 with Ambulatory Difficulty, by County in New Jersey 2010 Number Non-institutionalized Civilians Ages 18-64 with Ambulatory Difficulty, by County in New Jersey 2010 Number Non-institutionalized Civilians Ages 18-64 with Ambulatory Difficulty, by County in New Jersey 2010 Number Non-institutionalized Civilians Ages 18-64 with Ambulatory Difficulty, by County in New Jersey 2010 Number Non-institutionalized Civilians Ages 18-64 with Ambulatory Difficulty, by County in New Jersey 2010 Number Non-institutionalized Civilians Ages 18-64 with Ambulatory Difficulty, by County in New Jersey
County Number County Number County Number
Atlantic 9,556 Gloucester 9,257 Ocean 15.683
Bergen 13,185 Hudson 16,551 Passaic 13,221
Burlington 11,567 Hunterdon 1,954 Salem 2,224
Camden 18.477 Mercer 9,715 Somerset 4,711
Cape May 2,450 Middlesex 15.357 Sussex 3,396
Cumberland 6,004 Monmouth 11,255 Union 9,880
Essex 20,115 Morris 6,649 Warren 2,234
55Name-that-Data Source County Level
- Answers
- American Community Survey 3-year pooled estimates
- "Does this person have serious difficulty walking
or climbing stairs?
56Name-that-Data Source Over Time
Question Which data source was used to
create the figure below? And what is the
question used to define work limitation?
Prevalence of Work Limitations among
Non-Institutionalized Civilians, Ages 21-64
57Name-that-Data Source Over Time
- Answers
- These statistics are from the Current Population
Survey Annual Demographic Supplement (CPS). In
the future the ACS time series will become long
enough to become more relevant, although it will
never be able to look at patterns in the 1980s
and 1990s. The National Health Interview Survey
(NHIS) also has a work limitation question, but
it has a severe seam between 1996 and 1997 when
the entire survey was revised. - "A work limitation is determined by the following
question "does anyone in this household have a
health problem or disability which prevents them
from working or which limits the kind or amount
of work they can do? If so, who is that?
(Anyone else?)."
58Name-that-Data Source County Level and
Condition Specific
Question Which data source was used to
create the table below? What are some caveats
about such statistics?
Number of Social Security Beneficiaries with Musculoskeletal Injuries that are Eligible of the Ticket-to-Work Program, by County in New Jersey Number of Social Security Beneficiaries with Musculoskeletal Injuries that are Eligible of the Ticket-to-Work Program, by County in New Jersey Number of Social Security Beneficiaries with Musculoskeletal Injuries that are Eligible of the Ticket-to-Work Program, by County in New Jersey Number of Social Security Beneficiaries with Musculoskeletal Injuries that are Eligible of the Ticket-to-Work Program, by County in New Jersey Number of Social Security Beneficiaries with Musculoskeletal Injuries that are Eligible of the Ticket-to-Work Program, by County in New Jersey Number of Social Security Beneficiaries with Musculoskeletal Injuries that are Eligible of the Ticket-to-Work Program, by County in New Jersey Number of Social Security Beneficiaries with Musculoskeletal Injuries that are Eligible of the Ticket-to-Work Program, by County in New Jersey Number of Social Security Beneficiaries with Musculoskeletal Injuries that are Eligible of the Ticket-to-Work Program, by County in New Jersey
County Number County Number County Number
Atlantic 3,536 Gloucester 3,232 Ocean 6,286
Bergen 4,569 Hudson 6,027 Passaic 4,790
Burlington 4,070 Hunterdon 622 Salem 1,132
Camden 7,075 Mercer 3,761 Somerset 1,297
Cape May 1,337 Middlesex 5,854 Sussex 1,275
Cumberland 2,471 Monmouth 4,893 Union 4,214
Essex 7,959 Morris 2,046 Warren 917
59Name-that-Data Source County Level
- Answers
- These statistics are from a web site, which is
part of the Ticket to Work program
(https//yourtickettowork.com/web/ttw/en-beneficia
ry-distribution). - An important caveat is that people with
musculoskeletal injuries that are not in these
programs are not included. This data is only for
those who are in the SSDI and/or SSI programs and
are eligible for the Ticket. - You can actually get zip code level statistics
for 19 diagnostic categories. However, there are
no additional breakdowns available, such as
breakdowns by age, race, and gender.
60SECTION 9Latest Developments and Other Resources
61Coming Improvements
- Uniform minimum set of disability question
Following a component of ACA, Secretary Sebelius
recently mandated the six ACS questions to be the
included in all surveys - ACS 5-Year Pooled Sample Once the 2013 ACS data
is available the Census Bureau will pool
2008-2013 to get a big sample to estimate even
smaller areas. - CPS Disability Supplement Already fielded, data
should be out soon. It looks specifically at
disability and employment barriers and
facilitators.
62Additional Resources
- www.ResearchOnDisability.org Our main web site
- www.DATA.gov a wealth data from agencies.
- www.ICDR.gov Subcommittee on Disability
Statistics (with a monthly conference call. - Good Example of Using Statistics From the
Center on Independence of the Disabled, New York
(NYCs ILC) www.cidny.org/resources/News/Reports/D
isability20Matters.pdf - Another Good Example of Using Statistics
Chicago Community Trust report that sets goals
for key outcomes www.cct.org/sites/cct.org/files/C
CT_QuestForEqualityWhitePaper_1110.pdf
63SECTION 10Summary and Conclusions
64Summary Learning Objectives
- Definitions of Disability
- Conceptual
- Survey Measurement
- Introduction to Major National Surveys
- How to Use Survey Data
65Questions Answers
66Contact
- DisabilityStatistics_at_unh.edu
- Andrew.Houtenville_at_unh.edu
- Eric.Lauer_at_unh.edu
- Tony.Ruiz_at_unh.edu
- www.ResearchOnDisability.org/
67Wrap Up and Evaluation
- Click the link below now to complete an
evaluation of todays program found at - https//vovici.com/wsb.dll/s/12291g507d1
68StatsRRTC Attribution
- Funding for the content of this
Webinar/teleconference and the participation of
Drs. Houtenville and Ruiz and Mr. Lauer was
provided by the Hunter College Rehabilitation,
Research and Training Center on Disability
Statistics and Demographics (StatsRRTC), which is
funded by the U.S. Department of Education,
National Institute for Disability and
Rehabilitation Research, under cooperative
agreements H133B080012. - The contents do not necessarily represent the
policy of the Department of Education, and you
should not assume endorsement by the Federal
Government (Edgar, 75.620 (b)).
69SILC-NET Attribution
- Support for development of this
Webinar/teleconference was provided by the U.S.
Department of Education, Rehabilitation Services
Administration under grant number H132B070003. No
official endorsement of the Department of
Education should be inferred. Permission is
granted for duplication of any portion of this
PowerPoint presentation, providing that the
following credit is given to the project and the
StatsRRTC Developed as part of the SILC-NET, a
project of the IL-NET, an ILRU/NCIL/APRIL
National Training and Technical Assistance
Program and as part of the Rehabilitation
Research and Training Center on Disability
Demographics and Statistics.