Checklist development

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Checklist development
1. The co-production process 2. What we initially
found out 3. Participants and aspirations 4. What
was already available 5. Creating the first
draft 6. Changes and improvement 7. Version 2 8.
Testing
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1. The coproduction approach
This Checklist has been co-developed by people
living with dementia and their carers, supporting
organisations and medical professionals, using
the SILK co-production approach
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2. What we initially found out
I went to the doctor with a memory problem, it
took two or three more goes to make him
understand. Thats only because thats who I am,
but some people cant stand up for themselves and
cant be forceful to make the doctor understand,
SILK Insight Report (2012) carried out with
people living with dementia, their carers and
frontline workers. Diagnosis was sometimes
difficult. People wanted something that could
support them when talking to their doctor about
the symptoms they were experiencing.
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3. Participants aspirations
Participants included People living with
dementia, a carers group, a day centre group for
people living with dementia, and professionals
working in the field, including GPs and
charities Participants agreed a new document
needed to Provide people with an understanding
of the symptoms Prepare people for meeting with
their GP Signpost people to additional support if
they needed it
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4. What was already available
Participants reviewed examples of symptom
checklists from the Azheimers Society (UK) and
the Alzheimers Association (USA) Alzheimers
disease 10 warning signs Recognising the signs
and symptoms of dementia Worried about your
memory Know the 10 signs Preparing for your
doctors visit
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5. Creating the first draft
A prototype was designed based on the needs and
aspirations identified in the review
discussions This first prototype was shared with
all contributors so far and the Kent and Medway
Dementia Collaborative Board to share with their
organisations The feedback was used to refine
the design of the Checklist
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6. Changes and improvement
Calling the document Concerned about your
memory? Re-phrasing some of the text so that it
applied to the person concerned and also family
members and friends Changing or removing some of
the questions Creating space for people to add
any other symptoms, changes or questions Including
a question about current medication Adding the
Kent 24 hour Dementia help line number
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7. Version 2
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8. Testing
A pilot area was identified, Tunbridge Wells,
where there was a low 37 diagnosis rate. There
was an opportunity to link with the Prime
Ministers Challenge project for primary care
diagnosis. People referred to secondary care
prior to assessment were sought to test the
checklist We worked with Community Mental Health
Teams to target people who have not yet sought
help by accessing other areas GP Surgeries,
Pharmacies etc
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9. Evaluation
The checklist is about to undergo a formal
evaluation by the Kent, Sussex and Surrey
Demetria Care Innovation Hub If you would like
to take part in the evaluation or for more
information please contact silk.team_at_kent.gov.uk