NHS Lanarkshire Carers Information Strategy

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Princess Royal Trust Lanarkshire Carers Centre

• NHS Lanarkshire Carers Information Strategy

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Strategic Context

• NHS Lanarkshire Information Strategy approved by
  NHS Lanarkshire Board March 2007.
• NHS Lanarkshire Carers Information Strategy
  Action Plan Approved by Scottish Government
  November 2008.
• Partnership Working Carers Information Strategy
  Group, comprising
• NHS Lanarkshire (Acute Community).
• North Lanarkshire Carers Together.
• South Lanarkshire Carers Network.
• Princess Royal Trust.
• South Lanarkshire Council.
• North Lanarkshire Council

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Action Plan Developed Through CISG inclusive of
all Partners

• Updated each year.
• Monitored on a monthly basis.
• Strong linkages in relation to Carers strategy
  groups.
• Funding Sub Group with transparent application
  process
• Carers Support Team

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NHS Lanarkshire Carers Information Strategy

• Working with Carers
• A Partnership Approach

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NHS Lanarkshire Carers Information Strategy

• Carer Development Officers Post is funded by NHS
  Lanarkshire as part of the NHS Carers Information
  Strategy.
• Core Functions
• Develop links with Carer Co-ordinator Posts in
  Acute to ensure Carer Support
• Develop links with GP/Liaison Personnel within
  Practices to ensure identification of Carers.
• Develop links through Community Health
  Partnership process to Locality Management
  process.
• Identify and develop Good Practice in relation to
  Carers within Locality settings.

Outcomes Carer Support Team 7 personnel team to
achieve Carer awareness in Acute/Primary Care
This ensured early understandings of the
Development Officers remit. Representation on
Public Partnership Forums and South Public
Partnership Forum. Contacts were also made with
Local NHS Managers. Enable Joint Services to
roll out good practice throughout South
Lanarkshire
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NHS Lanarkshire Carers Information Strategy
Outcomes Carers supported at all stages in
Primary Care. Task - Develop Carers Health Needs
Database More Carers informed and
supported Carers resourced with condition
specific information and training Better
knowledge of Carer needs. Robust approach to
Carer Awareness Localised strategic approach to
Carer issues which will inform and enhance Local
Improvement Targets.

• Core Functions
• To identify and develop support process for
  Carers in Primary Care setting.
• To identify and develop Carer Awareness Training
  needs in Primary Care Staff.
• To provide data on Carers issues which will
  inform Community Health Partnership Locality
  Management and Joint Services protocols of Carers
  support needs.

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NHS Lanarkshire Carers Information Strategy

• Aims
• Raise awareness of the Carer Support Team in NHS
  Lanarkshire
• Increase Carer awareness with NHS Lanarkshire
  wide service providers
• Identify Hidden Carers
• Develop Carer awareness training for NHSL
  colleagues
• Link with co-ordinators in acute hospitals
• Develop partnership working with statutory and
  voluntary organisations to raise awareness and
  support carers
• Work with GP practices to develop their Carers
  Register
• Ensure Carer issues are raised at a strategic
  planning level
• Carry out Carers Health Needs Survey

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NHS Lanarkshire Carers Information Strategy

• Task
• How to make effective use of notice boards in GP
  practices
• Other work within GP practices
• Work with professional staff training
• Overall impact of raising awareness of Carer
  issues good and challenging

Outcomes Produce good quality information for
Carers and Professionals Provide good quality
support for Carers Offer GP practices Carer
awareness sessions training, good signposting and
protocols Working with practice staff in order to
increase Carer Register Share good practice Good
outcomes Carer positive outcome Being part of the
annual NHS Health Review Carer Support Team
Event Future Challenges Continuing the
Service Removing barriers at GP Practice level
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NHS Lanarkshire Carers Information Strategy

• SUPPORTING CARERS
• How the GP practices can assist Carers support

Highlight the Carers Support Team at staff
meetings Facilitate awareness sessions for
staff Ensure Carers are on the
agenda Mechanisms to identify Carers / Young
Carers Signpost Carers to Carer Assessment
Referral Signposting Publicity
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NHS Lanarkshire Carers Information Strategy

• Working with addiction services
• Partnership board for addictions multi agency
  group meets monthly. Representation from social
  services, health, housing, service users,
  voluntary sector etc... My colleague participates
  in this meeting representing carers and young
  carers and ensure their issues and involvement in
  caring for someone with an addiction is raised.
• Hep C immunisation group discusses immunisation
  of at risk clients many of whom abuse
  substances. Highlighted the need to consider
  carers and young carers in this as close /
  household contacts.
• Carers Affected by substance misuse My
  colleague represent health NLCT on this multi
  agency group looking at information available for
  those who care for or affected by substance
  misuse. Currently looking at producing a generic
  leaflet which will inform all.
• Have carried out a number of awareness and
  training sessions to North community addiction
  teams in relation to recognising carers and young
  carers. Have emphasised the importance of
  recognising young people who may have a caring
  role (hidden carers) and assessing and
  communicating effectively in order that their
  needs are recognised and addressed/met.

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NHS Lanarkshire Carers Information Strategy

• Equality Diversity
• Update on BBV Support worker
• Additional funding secured to provide bi lingual
  Support worker (English Urdu) for carers
  affected by Blood borne Virus i.e. this can be
  their own health condition or they care for
  someone with BBV. Carers affected by BBV, high
  prevalence in South Asian communities therefore
  need for bi lingual worker
• Currently recruiting for this post
• Main remit
• Engage with BME communities
• Actively encourage people to be screened
• Inform people of the high risks involved
• Provide one to one support
• Information translated where required
• Form filling
• Access to services
• Access to grants/benefits
• Written/oral translations in Urdu, Punjabi,
  English
• BME Carer support worker post
• Bi lingual post as majority of known BME carers
  are from Pakistan or India. Full time post since
  Aug 09.
• Provides
• Identify BME carers, One to one support,
  facilitates International womens Group,
  Information, Access to services, training,
  translated material where required, etc. Access
  to and involvement in planning suitable Centre
  services

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NHS Lanarkshire Carers Information Strategy
Carer Review with BME carers Carer Review 21
BME participants 21 agreed contact with Centre
had helped them take more control. 95 accredited
information 48 accredited training and 81 said
because they were helped to access services 21
agreed that contact with Centre had helped them
take care of their own health wellbeing 57
accredited training 57 said they were less
stressed 63 benefitted from the pampering and
90 felt better because they had opportunity to
get together with other BME carers 21 agreed
contact with the Centre helped them feel less
alone 76 said this was because they had someone
to talk to 81 benefitted from a BME and a local
CSW and 38 enjoyed the social activities and
opportunities 21 agreed contact with the Centre
helped them to carry on with caring role 71
said they felt a relief from isolation 76 had
made new friends 71 had enjoyed the social
events and 76 said they felt better able to
carry on because they knew information and
support was always available from the Centre.
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NHS Lanarkshire Carer Information Strategy
Contact Information Hairmyres Hospital Elaine
Harrow 01355 585522 Monklands District General
Hospital Lesley Callan 01236 712566 Wishaw
General Hospital Elizabeth MacDonald 01698 366118
North Lanarkshire Carers Together Marion
McParland, Agnes Hadden, Pauline McIntosh 01698
404055 South Lanarkshire Carers Network Linda
Craig 01698 285163
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CO ORDINATOR FOR CARERSACUTE

• 1 Co ordinator for each Hospital
• Elaine Harrow Hairmyres Hospital
• Lesley Callan Monklands Hospital
• Elizabeth McDonald Wishaw General Hospital
• Post began May 2008

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CARERS RECOGNISED ASKEY PARTNERS IN THE
PROVISON OF CARE

• A Two Person Journey
• ADMISSION TREATMENT DISCHARGE

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ADMISSION

• A E / Acute Admission Wards
• Carer information Section Admission Form
• 6 month - Hospital case note review

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Hospital Wards and Departments

• Networked into all wards and Departments
• Established how aware staff are of the
• Key Partners in Care approach
• Continually raise awareness amongst NHS staff of
  Carers/Carers issues
• Developed an awareness raising programme

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Awareness Raising Programme

• CARERS RECOGNISED AS
• KEY PARTNERS
• IN THE PROVISON OF CARE
• COMMUNICATION LISTENING SKILLS
• PROMOTE THE NEED TO BE MORE SUPPORTIVE AND
  PROVIDE INFORMATION.
• IMPROVE KNOWLEDGE AND ABILTY TO SIGN POST CARERS
  TO CARER SUPPORTS
• DISTRIBUTE HOME FROM HOSPITAL PACKS TO CARERS
• IDENTIFY HIDDEN CARERS
• ENSURING CARERS RECEIVE CONDITION SPECIFIC
  INFORMATION

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HIDDEN CARERS

• IDENTIFY HIDDEN CARERS
• A CARER WHO DOES NOT RECOGNISE THEMSELVES AS A
  CARER

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IF HIDDEN CARERS DO NOT RECOGNISE THEMSELVES AND
PROFESSIONALS DO NOT RECOGNISE THEM THEY CANT
BE SUPPORTED OR SIGN POSTED
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HOME FROM HOSITAL PACKSUPPORTED PACK FOR CARERS

• Section 1 Before leaving Hospital Discharge
  Planning
• Section 2 After Leaving Hospital Services in
  the Community
• Section 3 Finances Costs and Benefits
• Section 4 Your Rights as a Carer
• Section 5 Useful Contacts
• Monitoring and evaluation programme implemented
• 6 month audit Benefit of packs- via follow up
  phone calls

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DISCHARGE PLANNING

• Review hospital admission and discharge
  procedures to ensure carers needs are addressed.
• Co ordinator for Carer member of sub -group
  addressing these issues.
• Close liaison with Discharge team
• Attend multidisciplinary meetings in wards
• Liaison with consultants, nurses, OT,
  Physiotherapist, Social Workers.
• Support Carers at hospital Case Conferences

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ROBUST REFERRAL SYSTEM

• Photographic Service information cards and
  referrals forms in all wards and Departments.
• Carer specific information boards at entrance of
  all 3 hospitals.
• Regular display information stands for
  professionals and Carers in hospitals and primary
  care sites.
• Development of link nurses in wards and
  departments

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ROLE OF THE CO ORDINATOR FOR CARER
ACUTE HOSPITALS
ASSESS AND MEET THE INDIVIDUAL NEEDS OF FAMILY,
FRIENDS AND CARERS WHILE THE PATIENT IS
IN HOSPITAL
EXPLAIN THE ROLE OF THE STAFF INVOLVED IN THE
CARE PROCESS
FOLLOW UP CALL TO HOME FOLLOWING DISCHARGE
ENSURE FAMILY FRIENDS AND CARERS HAVE NECESSARY
SKILLS BEFORE DISCHARGE THROUGH EDUCATION AND
TRAINING
INVOLVE FAMILY FRIENDS AND CARERS IN PLANNING
PATIENT CARE AND DISCHARGE
HIGHLIGHT AND SIGN POST CARER ORGANISATIONS IN
THE COMMUNITY
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Follow up Phone calls

• April 09 Dec 09 - 448 Follow up calls
• 6 months data collection.
• Outcomes
• Carer Support Agencies referrals
• Social work referrals
• The Pension service referrals
• GP register
• Carers assessment
• Home from Hospital packs
• Discharge plan

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Carer Support team Information EventFriday 4th
December 2009Alona Hotel ,Strathclyde Park

• 25 SERVICES / AGENCIES PARTICIPATED IN THE
  EVENT
• 107 - PEOPLE REGISTERED AT THE EVENT
• 72 PROFESSIONAL
• CARERS
• 25 Referrals
  497 Enquires
• Power Point Presentation
• Carers Health Issue Play DVD
• Carers Story Board

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FUTURE GOALS

• Review of carer education and training by
  professionals in acute setting.
• Exploring ways of improving identification young
  carers in acute setting.
• Improve Carer Information within Admission forms

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THANK YOU FOR YOUR ATTENTION

• Questions