Hope Into Life

1
Hope Into Life
The Lifesaving Gift of Organ and Tissue Donation
Lola Lewis Donation Coordinator
2
About Gift of Hope

• Federally designated not-for-profit organ
  procurement organization
• Coordinates organ and tissue donation with 180
  hospitals in Illinois and northwest Indiana
• Works with 9 transplant centers
• Provides professional, public education
• Provides ongoing support for donor families

Our mission to save and enhance the lives of as
many people as possible through organ and tissue
donation
3
Donation is Critical

• More than 120,000 people in the U.S. are waiting
  for a lifesaving organ transplant.
• More than 5,300 people are waiting for an organ
  transplant in our donation service area.
• Last year, nearly 300 people in Illinois died
  while waiting for a lifesaving organ transplant.

Billi, liver transplant recipient, lived and gave
life to Jaxon
4
122,429 Waiting Nationwide
Kidney . . . . . . . . . .
100,431 Pancreas. . . . . . . . .
1,195 Kidney/Pancreas. . . . .
2,037 Liver . . . . . . . . . .
. 15,735 Intestine . . . . . . . . .
268 Heart . . . . . . . . . . .
3,958 Lung . . . . . . . . . . .
1,660 Heart/Lung . . . . . . . .
53 As of 05-15-14
5
Illinois Donor Registry

• As of January 1, 2006
• Illinois had the largest registry of intent with
  over 6 million registered donors.
• Illinois is the 43rd State to adopt 1st person
• It is an all or none registry
• Old registry is not automatically rolled into the
  new one.
• Legally binding no additional witnesses needed.
• Still very important that families share their
  wishes with each other.

6
When is Donation an Opportunity

• Tissue donation
• Any patient who dies anywhere in the hospital can
  be a tissue donor
• If there is a known time and cause of death
• Organ donation
• Any ventilated patient in a critical care setting
  can be an organ donor (can also be a tissue
  donor)
• If there is a declaration of brain death OR
• If there is a decision to withdraw
  life-sustaining therapies, with the expectation
  that death will occur

7
Organ Donation is not as common as you might
think

• Approximately 10 of hospital patients die from
  types of injuries/illnesses that make them
  potential organ donors
• Donations do not occur in about 93 of these
  cases
• Patients deemed medically ineligible
• Family declines to give donor authorization/change
  s mind
• Other reasons
• Less than 1 of all patients who die in the
  hospital become organ donors!
• That is around 7 donors per 1000 deaths.
• Out of 37,034 hospitals deaths in 2012, there
  were 270 organ donors.

8
Why Donated Organs Are Needed
Heart heart diseasecongenital, hypertensive
cardiomyopathy Lungs COPD, emphysema, cystic
fibrosis Liver chronic hepatitis, liver tumors,
cirrhosis Pancreas type 1 diabetes Kidneys
hypertension, diabetes, polycystic kidney
disease Intestine short bowel syndrome
9
Organ Viability
Heart
4-6 hrs
Lungs
4-6 hrs
Liver
6 hrs
Pancreas
12-18 hrs
Kidneys
36 hrs
Intestine
12-18 hrs
10
The Organ Donation Process

• How exactly does this work anyways?
• A Patient is referred to Gift of Hope.
• Gift of Hope determines medical eligibility
• Speaking with the family.
• Paperwork
• Placing of organs
• How long does this take?

11
Tissue Donation
12
Tissue Donation is Critical

• Tissue Donation
• 1 in 20 Americans will need some type of medical
  tissue transplant during a lifetime
• 900,000 human tissue (bone and soft tissue)
  transplants are performed per year
• Donated tissue often provides benefits that
  outweigh those of non-tissue implants and
  autografts.
• A single donor can enhance as many as 200 lives
• Skin Donation
• Helps an estimated 500,000 burn patients annually
• Thousands require reconstructive procedures

13
How Donated Tissues Are Used
Cornea/eye restores sight for patients with
corneal damage or disease Heart valve replaces
heart valve for patients with heart defects,
infection or damage Bone saves limbs, replaces
joints for patients with bone cancer, bone
fractures, degenerative diseases Soft tissue
repairs or restructures injured tendons and
ligaments Vein replaces femoral or saphenous
veins for patients with vascular disease or
diseased/blocked arterieslimb-saving measure
14
How Donated Tissues Are Used (contd)
Skin skin grafts for patients with severe burns
or surgical woundslifesaving measure Juvenile
cartilage promotes healing for patients with
cartilage defects caused by disease, stress to
knee brought on by physical activity and/or
age Adipose fatty tissue removed from the
abdominal area used to help patients with
hard-to-repair injuries like bone
fractures Costal cartilage soft tissue that
connects the ends of the ribs to the sternum
used primarily for functional or structural
implants in patients undergoing maxillofacial
reconstruction
15
The Tissue Donation Process

• How exactly does this work anyways?
• A Patient is referred to Gift of Hope
• Gift of Hope determines medical eligibility
• Speaking with the family
• How long does this take?

16
The Impact of 1 Tissue Donor

• 43 Year Old Male
• Central Illinois Donor
• January 2012
• Number of lives impacted to date
• 123

17
The Impact of 1 Tissue Donor on the Nation
18
GOH Donor Family Services

• More than 5,700 letters to families each year
• More than 1,000 inquiries each year
• Donor families
• Transplant recipients
• Transplant coordinators
• Quarterly Donor Family Advisory Council meetings
• Annual remembrance ceremony
• Transplant centers provide recipient outcome
  information
• Generate letters to donor families with general
  information about recipients and how they are
  doing
• We send follow up and thank you to staff at
  donors hospital, funeral director and
  coroner/medical examiner (if involved)

19
Donation benefits to families

• Donation can help to re-establish control
• Donation can help during the grief process
• Donation can be a way to memorialize a loved one
• Donation can honor a loved ones wishes
• 64 of families do not remember the exact words
  used, but remember the care and support they
  received upon the loss of their loved one
• 89 would donate again

20
Questions and Concerns

• Who pays for donation?
• Will donation interfere with my funeral
  arrangements?
• Will I hear about the transplant recipients
  and the outcome?
• Can I correspond with recipients?

21
Steves Story
22
How to Join the Illinois Donor Registry

• Call 800.210.2106
• Visit any drivers license facility.
• Go to the secretary of states web site at
• www.lifegoeson.com
• For additional information about donation,
  visit
• www.giftofhope.org

23

• Lola Lewis
• Donation Coordinator
• 630-758-2873
• llewis_at_giftofhope.org
• Gift of Hope Web site (GiftofHope.org)