A Case for Data Sharing

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A Case for Data Sharing

• Belinda Seto, Ph.D.
• Deputy Director
• National Institute of Biomedical Imaging and
  Bioengineering

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Case Study

• Healthy 62 year-old woman with no history of
  smoking, drinking or drug abuse experienced
  abdominal pain. Believed it was an ulcer and
  treated with medication. Her symptoms got worse
  and were accompanied by a 15 lb weight loss.
  Sent to a community radiology clinic for an
  abdominal CT scan. Scan revealed a mass in the
  pancreas and others in the liver.

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Case Study (cont)

• Sent home with a CD of the image and was referred
  to a hospital for further evaluation. Physicians
  at the hospital were not able to read the CD.
  Returned to the radiology clinic, provided
  another CD. Returned to the hospital and this
  time the CD was readable.

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Case Study

• Issues
• Transmission and sharing of patient image data
  between the clinic and the hospital
• Clinical decision support in health information
  system
• Optimizing procedure ordering

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Questions

• What role does health information exchange play
  in this patients care?
• How might image data sharing be implemented?
• Broadly, how might clinical decision support
  systems improve health care value?

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Data Sharing to Support Better Decisions
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President Obamas Health IT Vision

• A secure, nationwide, interoperable health
  information infrastructure that will connect
  providers, consumers, and others involved in
  supporting health and healthcare

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Nationwide Health Information Network

• Improve coordination of care across providers
• Ensure that consumers health information is
  secure and confidential
• Enable consumers control and decision making
• Reduce risks from medical errors
• Enable evidence-based decision support systems
• Lower health care costs

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Image Data Sharing NIBIB Activities

• Contract awarded to Radiological Society of North
  America Image Sharing Network, PI Dr. David
  Mendelson
• Grant awarded to Wake Forest University
• Grant awarded to University of Alabama

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Wake Forest Project

• Develop a patient controlled platform for medical
  image sharing
• Test a model using electronic keys to access data
  
• Integrate image data with electronic health
  records
• Include imaging facilities in rural and urban
  southeast U.S.

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Alabama Project

• Establish regional health image exchange system
  among hospitals in Alabama
• Design a web accessible point for physicians and
  patients to view images
• Adopt standards of National Health Information
  networks, 2007
• Initially focusing on trauma patients
• Scalable

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Health Information Technology Integration is
the Key
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Health Information Technology (HIT) the Means
toward Better Care

• HIT is not the end itself but a means to
  improving quality of health care, Dr. David
  Blumenthal
• Data is the fuel that drives HIT

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Decision Support in Health Information Systems

• Patient data needs to be integrated and assessed
  to provide real-time, point-of-care information
  regarding the right care
• Improves clinical decision support with enriched
  data
• Develop algorithms to use comparative
  effectiveness findings to optimize outcomes

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Comparative Effectiveness Research

• Purpose to improve health outcomes by providing
  evidenced-based information to patients and
  providers
• Mandate to conduct study of outcomes and to
  derive conclusions to inform medical
  choices/decisions.