Personal Health Records (A Personal View)

1
Personal Health Records(A Personal View)

• Dr Phil Koczan
• GP in Chingford
• Clinical Lead NHS London Programme for IT

2
Wikipedia Definition

• A personal health record or PHR is typically a
  health record that is initiated and maintained by
  an individual. An ideal PHR would provide a
  complete and accurate summary of the health and
  medical history of an individual by gathering
  data from many sources and making this
  information accessible online to anyone who has
  the necessary electronic credentials to view the
  information.

3
What does a PHR look like

• Content controlled by the patient
• Ease of access by the patient
• Controlled easy access by clinicians
• Feeds from existing clinical systems
• Secure and auditable access with consent from
  patients
• Enough coverage to make it of value

4
Clinical Records Within the NHS

• Local detailed care record
• The system used locally by clinicians looking
  after a patient
• Shared detailed care records
• Records shared between clinicians from different
  organisations looking after a patient
• Summary Care Record
• A summary of the key events of patient that will
  be useful when no detailed care record is
  available (minimum data to include medication,
  allergies and adverse reactions)

5
The Summary Care Record

• Aims to provide records for patients across
  England
• Patients have the right to opt out
• Initial upload of only the core data of
  medication, allergies and adverse reactions
• Additional information can be added by the GP
• Patient access through Health Space
• Only clinicians with authority to access the SCR
  can access the record with patient consent

6
The Summary Care Record

• As of 28th May
• 29,795,780 patients contacted
• 250 practices live
• 1,591,845 records created
• Future Plans
• Develop Health Space further
• Contributions from other care settings
• Enhance integration with other clinical systems

7
Conclusion

• The Summary Care Record has come a long way.
• Confusion over what is it and the consent model.
• It is not being shelved.
• Patients are in control of the information on the
  system.
• It is a Personal Health Record in development.