New Tools New Visions

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New Tools New Visions W.K.
Kellogg Foundation Grant
Community Partners
HBCU Partners
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Health Disparities, Ethics, and Participation
New Tools/New Visions

• A Program to eliminate health disparities using
  Community-Based Participatory Research
• Initiated August 2005
• Funding W.K. Kellogg Foundation
• Amount 4 million over 5 years

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The Vision

• Unite together African American communities with
  Historically Black Colleges and University
  faculty and students to create solutions for
  reducing the economic, racist, cultural and
  health care problems that cause health
  disparities.

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NTNV Concept of Community
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The Approach

1. Use Community-Based Participatory Research (CBPR)
2. Connect Research to Action
3. Create new leaders in health
4. Network with communities and institutions to
   change local, state and national policy.

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Why Community-Based Participatory Research
(CBPR)?

• Respect for Community Competencies
• Willingness to share Power/decision-making, and
• Accept all perspectives
• We create powerful investigations, more effective
  programs, and enhance the trust within our
  communities.

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NTNV Seeks to Create
A process for developing current and future
leaders from the African American community
committed to, and capable of, closing the health
divide.
Ongoing community collaborative research projects
in health and health practices that reflect the
unique cultural and historical life of the
community.
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A sustainable network of HBCUs/practitioner
organizations/community organizations that will
take an activist approach to eliminating health
disparities.
A communications network with local communities
and HBCU institutions in other southeastern
states.
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Background
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Traditional Measure of Health Disparity

• Mortality Rate Ratio (RR) Mortality rate of
  African American Population / Mortality Rate of
  Anglo Population
• Note If the RR 1, then there is not
  disparity. If RR is greater than 1, then
  mortality in African Americans is higher.

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Age Adjusted Death Rate Ratios for African
Americans
1950 1960 1970 1980 1990 2000 2002
Heart Ds 1.0 1.0 1.1 1.1 1.2 1.3 1.3
Stroke 1.3 1.4 1.4 1.4 1.5 1.4 1.4
Cancer 0.9 1.0 1.1 1.3 1.3 2.6
Diabetes 1.0 1.2 1.2 2.0 2.2 2.2 2.1
HIV --- --- --- --- 3.2 8.3 8.6
Homicide 10.9 9.6 9.4 5.8 6.6 5.7 5.6
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The Persistence of the Problem

• Why have we not solved the problems of Health
  Disparities?
• Will doing the same things over and over again
  achieve a different outcome?

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AIDS by Ethnicity United States, 1990-2000
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How can we solve the problems of Health
Disparities?

• Our experience with HIV has shown us that
  providing the same interventions to ethnically
  different communities results in increased health
  disparities
• One Approach Community-Based Participatory
  Research

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Primary and Secondary Syphilis United States,
1995-1999
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NTNV--Details Moving on from Where We Stand Now.
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Project Elements
Element One Element Two Element Three Element Four Develop HBCU faculty capacity to address health disparities Increase African American leadership in health administration, management and policy Build capacity and readiness of communities of color for participatory research and interventions on health disparities Clarify minority perspectives on the ethics of health research and practices.
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Project Objectives

• Year One Create partnerships between communities
  and HBCUs
• Year Two Conduct pilot project
• Year Three Complete a fundable proposal or
  conduct an implementation project
• Year Four Policy translation
• Year Five - Final reporting, publications, model
  sharingand building
• .Sustainability after the funding ends

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Building Participation into Decision-Making
Process

• Grant w/Kellogg set forth objectives for the life
  of the project and on an annual basis.
• Statewide Coordinating Committee will review
  overall project objectives bi-annually
  (approximately every 6 months)
• Evaluation of previous year and plan for
  subsequent year outlined in Statewide
  Coordinating Committee for August Report by
  RCHD/SCRC.

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Decision-Making Cont
Site pilots, priorities, tasks, approaches, and resource allocation. Site Steering Committee Local steering committees establish democratic / participatory process. Membership to be gt 51 non-researcher community members.
Statewide activities, project-wide collaborative activities, policy initiatives Statewide Coordinating Committee Representatives from each site (Community and HBCU reps) and from RCHD and SCRC constitute.
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Questions

• Discussion