One Vision, One Voice: Palliative Care Community of Practice

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One Vision, One VoicePalliative Care Community
of Practice
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The Team

• Dr. Karen L. Spencer, Ed.D
• Purposeful Development Associates
• Dr. Cynda Rushton, DNSc, RN
• Institute for Johns Hopkins Nursing
• Susan Hanley
• Dell Professional Services

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Palliative Care

• A model for the relief of suffering and the
  improvement of quality of life across the
  spectrum of illness
• Applies to infants, children and adults with
  chronic and life threatening conditions

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Does the Cure Have to Look Like This?
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Where We Are

• Palliative and curative care challenges us to
  move beyond the serial processing of curative
  care then palliative care

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Where we want to be Integration

• Norms of practice that provide for the
• parallel processing of
• curative and palliative care.

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Where we want to beCulture Change

• Decision making that spans an interdisciplinary
  team
• Includes patients and families
• Focuses on cure AND quality of life

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The Nursing Leadership Academy for End-Of-Life
Care

• The Approach
• Educate nurse leaders in strategies of planning
  and managing organizational change and advocacy
  initiatives related to palliative end-of-life
  care
• Create a system of support, networking, and
  mentoring integrate palliative care into all
  specialties of nursing practice

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The Nursing Leadership Academy for End-Of-Life
Care

• Impact
• 44 national nursing specialty organizations
• More than 600,000 nurses represented by Academy
  participants

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WHAT TO DO WHEN THE FUNDING DRIES UP?

• COMMUNITY OF PRACTICE

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Technology Enables Community

• Find and make connections with one another
• Share best practices
• Solve problems
• Create enhanced meaning from their work
• Provide support for the care giver
• Find key resources

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Connecting Academy Members
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REWARDS

• THE WORK CONTINUES
• MORE SELF RESPONSIBILITY
• SENSE OF ACCOMPLISHMENT

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CHALLENGES

• GETTING PEOPLE ON LINE
• CONTRIBUTIONS TO KEEP SITE LIVELY
• FACE TO FACE TIME
• FUNDING

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Technology Platform

• Windows Server 2003
• Windows SharePoint Services
• SQL Server 2000 Standard

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Partnering for Success
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(Public website)
Contact Information Dr. Karen L. Spencer 410 730
8605 PurposefulD_at_aol.com