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Registered Charity No. 1109398
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Brief History
The UK FSP Support Group was founded in 1991 by a
lady to support her affected husband and son. Our
membership is now nationwide and continues to
expand. In 2005 we became a registered UK
Charity. This earns us more respect from the
public or any organisation we may target for
support and funding.
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How we operate

• Most of our members pay an annual subscription of
  15
• Our members receive a newsletter every three
  months
• We have an annual meeting where medical
  professionals address us. There is also plenty
  of social time for members to get to know one
  another
• We have regional meetings where members are
  encouraged to get to know one another and share
  information.
• We provide an information booklet to all our
  members
• We provide financial assistance to members for
  mobility aids or anything that may improve their
  quality of life
• We currently have a committee of 6 who manage and
  organise all Group activities and procedures
• We support research programmes where our funds
  allow

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Membership Status
20 Family members
33 Honorary Members
270 Standard Members
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Where we all are!
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What we did in 2006 - 2007
Grants for Research
Grants for Members
Poster developed
New website
Young member communication
Questionnaire completed
Info BookletVersion 2
Five Regionalmeetings
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• Research Donations
• 3000 for Dr Evan Reid at the Cambridge Institute
  for Medical research to help fund his research
  into the cellular functions of proteins involved
  in causing HSP
• Supporting Dr Jon Marsden with his research into
  physiotherapy applied to HSP at the National
  Hospital

• Grants for Members
• During the past 12 months eight members have
  applied for and received grants.
• Mobility aids, FES assessment and specialised
  software are examples of items attracting grants.

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New Websites

• European
• www.hsp-info.eu

• UK
• www.hspgroup.org

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Advice and Information to Members

• Help line
• Functional Electrical Stimulation (FES)
• Over 15 of our members now use FES mainly on
  account of the Groups communication.
• Government Benefits
• Members are made very aware of what financial
  assistance they may be entitled to and assisted
  with their claim

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What wed like to do next

• Do more for our members
• Hold more Regional Meetings
• Provide more grants to members
• Attract more members - both standard and
  honorary

• Do more for research
• Support further research with grants
• Use Members efforts in research projects

• More communication with / among members
• Forum on the web site?
• Other ways to get greater use out of web site?
• Improve / extend our young member networking

Work closer with our European friends
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Can You help us?

• What can we learn from you?
• How do you raise your funds?
• How do you attract your members?
• Are there any ways we could work together?
• I am the editor of the UK Newsletter and always
  welcome material.

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Muchas GraciasThank YouContact
ian.bennett_at_tesco.net? 0044 1202 849391mobile
0044 7941 535 282