RC Brown Bag Series Scientific Data Service CIFASD Presentation

1
RC Brown Bag Series Scientific Data Service
CIFASD Presentation
Draft

• April 25, 2007

2
Agenda
Draft

• Introduction
• FASD and IU/IUPUI
• Informatics Core Group
• Process Example
• Initiatives
• Summary
• Q/A
• References

3
FASD and IU/IUPUI
Draft

• Participating Sites

4
Informatics Core
Draft

• Our role
• Provide tools to the researchers
• Manage the Central Repository
• Support
• Data management
• Bug fixes, enhancements
• New initiatives

5
Informatics Core (Cont.)
Draft

• Tools
• Data collection Access Input Tools (Dysmo,
  Neuro, Ultrasound, etc)
• Data Management Central Repository

6
Informatics Core (Cont.)
Draft

• Input Tools
• Are used by the researchers to gather information
• Provide safeguards to enforce data integrity
• Are designed for a specific data collection
  requirement (Dysmo, Ultrasound, Neuro, etc.)
• Are not web-based due to site/field constraints
• Developed in MS Acess

7
Informatics Core (Cont.)
Draft

• Central Repository
• Provides a one-stop shop for FASD data
• Has a Web Interface
• Uses Oracle to store the data
• Allows users to load, query, and export data
• Enforces data integrity during the load/parse
  process

8
Initiatives
Draft

• Current
• Dysmorphology
• Neurobehavior
• Future
• SAS Templates
• 2D/3D Facial Imaging
• Alcohol and Control