Future of CARE CARE V Organizers Perspectives

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Future of CARECARE V Organizers Perspectives

• Kåre Birger Hagen and Ingvild Kjeken
• National Resource Center for Rehabilitation in
  Rheumatology
• Diakonhjemmet Hospital, Oslo, Norway

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There is a future for CARE

• Research on interventions for the treatment of
  arthritis is dominated by studies of
  pharmaceutical and surgical interventions
• Surveys indicate that interventions such as team
  care, patient education and exercise are
  important to many patients (Tallon et al
  2000)(Hammond et al 1998)(Vetiene 2005)
• There is a mismatch between the amount of
  published work on different interventions, and
  the degree of interest of consumers

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There is a future for CARE

• To our knowledge, CARE is the only international
  network for patients, researchers and opinion
  leaders with a focus on team care

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Welcome to Oslo april 2008
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Future of CARE

• Aims of CARE
• Roles and topics
• Organization
• Funding

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Key issues from CARE I - IV

• Methodological issues
• Models of team care
• Knowledge transfer/implementation
• Patient perspective
• Education and training
• Recruit and mentor next generation of
  rheumatology care researchers

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Aims of CARE

• CARE is a network where researchers, opinion
  leaders, policy makers and patients/consumers
  within rheumatology cooperate to optimize the
  management of people with arthritis by
• Identify research needs
• discuss, develop and evaluate research
  methodology
• documentation and evaluation of team care
  interventions
• discuss, develop and evaluate methods for
  knowledge transfer and implementation

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Organization of CARE
Optimize the management of people with arthritis
Biannual conferences where working groups present
results and discuss next steps
2 Research methodology
3 Models of care
4 ImplementationKnowledge transfer
1 Identify areas for future research
Network for researchers and patients/consumers
within rheumatology
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Common for all working groups

• A mixture of researchers and patients
• Collaborate on research projects and report back
  on CARE conferences
• Each working group selects a chair person who
  cooperates with the local committee in organizing
  a session on CARE V

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Working group 1 Identify areas for future
research

• Sum up current research within key areas
• Identify areas where research is needed
• Recommend priority for future research/studies

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Working group 2Research methodology

• Consider and develop research designs relevant to
  team care
• Identify core outcomes for team care
• Design new or improve outcome measures when
  needed
• Recommend core set of instruments for team care

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Working group 3Models of care

• Develop an analytical framework to describe and
  classify components and models of team care
• Develop a common standard for reporting
  structure, process and outcomes of team care
• Evaluate models of team care across countries

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Working group 4 Knowledge transfer/implementation

• Describe, develop and evaluate methods and
  strategies for knowledge transfer
• Recommend strategies for effective implementation
  of research into practice

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Organization of CARE

• International committee
• Chair (4 year period)
• Co-chairs (organizers of current and next CARE
  conference)
• Two representatives from each working group
• Mixture of patients and health care
  professionals/researchers

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Organization of CARE

• National committee CARE V
• Professor Tore K. Kvien, Department of
  rheumatology, Diakonhjemmet hospital
• Kåre Birger Hagen, Ingvild Kjeken and Heidi
  Zangi, National resource center for
  rehabilitation in rheumatology
• Norwegian Rheumatism Association

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Funding of CARE

• Pharmaceutical industry
• Patient organizations
• Other non-commercial sources

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