www'dipex'org

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www.dipex.org

• Sue Ziebland
• DIPEx Research Group
• University of Oxford

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DIPEx (personal experiences of health and
illness)

• An electronic multimedia resource available on
  the internet www.dipex.org and DVD
• Stand alone qualitative interview studies of
  illness experiences
• QAs and evidence based information

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Andrews story
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(No Transcript)
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Completed DIPEx sites

• depression prostate cancer bowel cancer
• breast cancer cervical screening breast
  screening
• testicular cancer lung cancer
  ovarian cancer
• cervical cancer living with dying epilepsy
• heart failure hypertension heart attack
• chronic pain pregnancy dementia (carers)
• congenital heart disease (parents) antenatal
  screening
• RA

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DIPEx research methods

• literature and field review, advisory panel
• wide sample of people from all over UK - at
  different stages and from different backgrounds
• 40-50 interviews at home
• unstructured and semi-structured sections
• digital video and audio recorded
• Ethics approval for broadcasting, teaching and
  research

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Who uses DIPEx?

• Approx one million hits per month
• Patients, their families and the general public
• Teachers medical students, nurses, social
  science, research methods and health policy
• Researchers (secondary analysis archive for
  social science history of medicine)
• Health professionals policy makers (what issues
  are important to patients) - NICE
• Patient representatives (e.g. on committees)

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www.youthhealthtalk.org

• teenage cancer
• sexual health
• diabetes
• epilepsy

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DIPEx funding( more needed!)

• Ethical funding policy no advertising on site
• Funding for individual conditions from health
  charities (e.g. ARC, Alzheimers Society, Cancer
  Research UK, BUPA Foundation, BHF, Macmillan) and
  trusts (e.g. Citrina, Welton and Warburg)
• Department of Health, Section 64, National
  Screening Committee
• Donations to the DIPEx charity

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More information from

• The Website
• www.dipex.org
• DIPEx, University Department of Primary Health
  Care
• Institute of Health Sciences
• Oxford OX3 7LF
• Tel [phone]
• Email info_at_dipex.org