Prevention Research Centers

1
Prevention Research Centers Community
Participation

• Eduardo J. Simoes, MD, MSc, MPH, Director
• Prevention Research Centers Program
• Centers for Disease Control and Prevention

2
Program Characteristics

• Authorized by Congress in 1984 3 centers first
  funded in 1986
• Affiliated with schools of public health or
  medicine (with preventive medicine residency)
• Selected through competitive peer review
• Designed by public health leaders to conduct
  applied research in disease prevention for
  underserved groups
• Allows for diverse research types and
  methodologic designs

3
Prevention Research Centers
University of Rochester
University of
Washington at Seattle
University of
State University of New York at Albany
Minnesota
University
of Illinois
at Chicago
Oregon Health and Sciences University
University of
Michigan
West Virginia
Harvard University
University
Boston University
Yale University
University of Iowa
Columbia University
University of Pittsburgh
University of
The Johns Hopkins
California
University
University of
at Berkeley
Colorado
St. Louis
University
University of
University of
University
California
North Carolina at
of
San Diego State University
at Los Angeles
University of
Chapel Hill
Oklahoma
New Mexico
University of
South Carolina
University of
Morehouse
Arizona
Texas AM University
School of
Medicine
University of Texas
University of
Health Science Center
Tulane
Alabama at
Emory University
at Houston
University
Birmingham
University of
South Florida
4
Current Program Status

• 33 centers now funded in 26 states
• Partnership with underserved community required
• Core funding for centers foundation and main
  research project
• Funding from HHS and other agencies for special
  interest projects competed among PRCs only
• Expertise attracts funding from additional
  sources
• Total research portfolio of hundreds of projects
  each year
• Research includes translation and dissemination
  projects
• Structure allows for thematic networks

5
CTSA PRC Similarities

• Hosted by academic institutions
• Concept of networking among members
• Multidisciplinary research
• Translation from research to community practice
• Community engagement

6
PRC Novelty

• Larger network
• Wide distribution geographically
• Work with diverse populations
• Encompassing virtually every ethnic and
  sociodemographic group in the US
• Access to a population of approximately 2.5
  million
• Premier proving ground for efficacy to
  effectiveness research

7
CTSA Focus

• Enabling researchers to provide new treatments
  more efficiently and quickly to patients.
• serve as a magnet that concentrates basic
  translational and clinical investigators,
  community clinicians, clinical practices,
  networks, professional societies, and industry to
  facilitate the development of new professional
  interactions, programs, and research projects.

8
Examples of PRCs Communities

• Senior citizens with minor depression receiving
  state social work care in Washington State
• Spanish-speaking migrant workers in Floridas
  citrus groves
• Out-of-school youths seeking job training in
  Baltimore
• Deaf and hard-of-hearing adults in Rochester, New
  York

9
Examples of PRCs Partners

• Community-based organizations
• Faith-based institutions
• Businesses and work sites
• Public school systems
• Tribal associations
• Community centers
• Economic development agencies

10
Community Committees Responsibilities

• Reflect local attitudes and beliefs
• Contribute to setting research priorities
• Help recruit research participants and partner
  organizations
• Help deliver interventions and communicate
  results
• Foster community support for research
• Enhance community capacity for addressing health
  issues
• Increase likelihood of interventions being
  adopted and sustained

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http//www.cdc.gov/prc/partner-communities/trust-a
mong-partners.htm
12
National Community Committees Selected
Accomplishments

• Empowered research communities as health
  advocates
• Learned Evidence-Based Public Health
• Developed a mini-grants program
• Reviewed grant proposals
• Partnered on development of a curriculum in
  community-based prevention research
• Collaborated on community genomics education
  forums

13
http//www.cdc.gov/prc/program-material/index.htm
14

• How well do the CTSAs reach out to the community
  to increase health literacy and provide the
  opportunity to participate in the development and
  conduct of clinical trials?
• Barbara Alving in the June 2007 newsletter of the
  Association of American Medical Colleges

15
Challenges to Community EngagementSteering
Committee

• How do you help researchers learn about community
  engagement?
• What are some models of doing community research?
• What are some approaches to evaluating community
  programs?
• How can researchers address the institutional
  obstructionism encountered in community
  engagement work?

16
Community EngagementSteering Committee Goal

• to effectively engage communities in the
  translational research process via bidirectional
  dialogues.

17
Types of Translational Research

• T1 Bench to bedside
• T2 Bedside to practice
• T3 Practice to research
• T4 Research and practice to community,
• public health, and health policy

18

• practitioners other than health care
  professionals also translate research into
  practice.practitioners include patients,
  public health administrators, employers, school
  officials, regulators, product designers, the
  food industry, and other consumers of evidence.
  Trials that test the implementation of evidence
  in these settings can be just as vital as similar
  T2 work in clinical settings.
• Woolf, Steven H. JAMA. 2007297523-526.

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Selected PRC Research

• Harvard University Prevention Research Center on
  Nutrition and Physical Activity
• Clinical Intervention to Prevent Childhood
  Overweight
• University of Kentucky Prevention Research
  Center
• Prevention and Early Detection of Colorectal
  Cancer in Appalachian Kentucky
• Oregon Health and Science University Center for
  Healthy Native Communities
• Tribal Vision Impairment Prevention Project
• Columbia University Harlem Health Promotion
  Center
• Harlem Childrens Zone Asthma Initiative
• University of Illinois at Chicago Illinois
  Prevention Research Center
• Making the Connection Healthy Living Program

20
CTSA Sites
WA
ME
MT
ND
VT
MN
OR
NH
ID
WI
NY
MA
SD
RI
MI
WY
CT
NJ
IA
PA
NE
NV
OH
DE
IN
IL
UT
MD
CO
WV
VA
KS
MO
CA
KY
NC
TN
AZ
OK
AR
SC
NM
GA
MS
AL
Indicates CTSA and PRC sites at same institution
TX
AK
LA
AK
FL
HI
Participating Institutions
Since 2006 Since 2007
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Why play with us?

• Unique infrastructure for Research Translation
• Large and diverse communities fully engaged
• gt 20 years fostering and implementing CBPR
• gt 20 years of efficacy, effectiveness,
  translational and implementation research
• Economy of scale
• Potential complementarities to CTSAs
• Its built already

22
Questions

• Do you see the potential for partnerships with
  the PRCs?
• Can you suggest ways of fostering collaboration?
• Do you have any interest in having selected PRCs
  and/or community representatives address CTSA
  groups?
• Do you have an interest in having the PRCs and
  the National Community Committee organize
  training in community engagement for CTSA
  grantees?
• Do you have questions about the PRC Program or
  the NCC?

23
www.cdc.gov/prc