Care coordination network UK

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Care co-ordination network UK

• CCNUK including key working in England and
  supporting Every Disabled Child Matters campaign
• Cath Walder
• development co-ordinator England

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Care Co-ordination Network UK

• CCNUK is a networking organisation promoting key
  working for disabled children and their families
  in England, Northern Ireland, Scotland and Wales.
  
• CCNUK is an independent registered charity based
  at Tower House, Fishergate, York.

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history

• Evidence based research from1999 at a Wrexham
  conference
• 2000 JRF convene steering group and in 2001
  worker appointed
• 2002 charitable status and trustees appointed
• 2006 company limited by guarantee with charitable
  status
• 2006 independence from University of York

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CCNUK mission
work in partnership with disabled children,
their families and professionals, to ensure that
all families throughout the UK have access to
high quality care co-ordination or key worker
services
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staff
director
Scotland development worker
Wales development co-ordinator
admin manager
England development co-ordinator
Wales development worker
England development worker
Wales administrator
England clerical assistant
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CCNUK definition

• key working is a service, involving two or more
  agencies, that provides disabled children and
  young people and their families with a system
  whereby services from different agencies are
  co-ordinated. It encompasses individual
  tailoring of services based on assessment of
  need, inter-agency collaboration at strategic and
  practice levels, and a named key worker for the
  child and family giving a single point of
  contact. Families with disabled children should
  only have a key worker if they want one.

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CCNUK definition

• a key worker is both a source of support for
  disabled children and young people and their
  families and a link by which other services are
  accessed and used effectively. Key workers have
  responsibility for working together with the
  family and with professionals from services and
  for ensuring delivery of an interagency care plan
  for the child and family.

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policy context

• Every child matters five outcomes (BSEMA)
• Early Support Programme
• Childrens NSF disabled children key workers
  (standard 5.8)
• Development of childrens trusts and childrens
  centres
• Improving the life chances of disabled people
  Prime Ministers
  strategy unit January 2005
• Aiming high for disabled children (May 2007)
• Aiming high for disabled children National Core
  Offer (May 2008 2. Assessment)

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Aiming High for disabled children
The vision all families with disabled children
to have the support they need to live ordinary
family lives, as a matter of course

• access and empowerment
• responsive services and timely support
• improving quality and capacity
• the context
• the funding
• making the system work better

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national core offer

• CCNUK key working - where does this fit?
• 2.assessment
• disabled children and young people receive
  child- centred multi-agency co-ordinated
  services from the point of referral through
  identification and assessment to delivery

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five elements grouped under three headings

• information and transparency
• assessment
• participation and feedback

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(No Transcript)
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standards

• organisational standards
• practice standards

• including
• assessment
• planning
• review

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key working in England where are we now?
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development work England

• Department of Children Schools and Families
• designing a key worker standards training module
• regional meetings
• government offices
• networking
• working in partnership with other sector
  organisations
• parent partnership
• free membership
• poster

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care co-ordination and key working in England -
the facts

• key working is requested by government policy
• 150 local authorities in England
• 73 presently signed up to the EDCM charter
• 150 primary care trusts
• 52 presently signed up to the EDCM charter
• actual operational key worker services are
  unknown

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Every Disabled Child Matters

• CCNUK are members and active supporters of the
  EDCM campaign

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What is Every Disabled Child Matters?

• Campaign to get rights and justice for every
  disabled child
• Run by
• Contact a Family
• Council for Disabled Children
• Mencap
• Special Education Consortium

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Why was a campaign needed?

• Disabled children too low on the agenda
• ECM outcomes not being delivered for disabled
  children
• Need for new rights to services and support
• Opportunity to influence the Comprehensive
  Spending Review

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The current situation

• Poverty higher rates than other families
• Exclusion at least 7 times more likely
• Family breakdown 8 in 10 at breaking point

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The changing population

• Since 1975
• children 0-16 are the fastest growing group of
  disabled people in the UK (from 476,000 in
  1975 to 772,000 in 2002)
• This represents an increase of 62.
  Improving Life Chances Report, 2005

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CSCI report - March 2007

• 'Services remain variable and in some areas, very
  limited and insufficiently joined up. Parents
  are dissatisfied with the overall experience.
  Despite the principles of Every Child Matters,
  they feel there is a lack of information, too
  much duplication of assessments and services,
  access is difficult and there are high thresholds
  to social care support. Parents and young people
  say they do not get enough respite and what is
  provided is often inappropriate.

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EDCM wants

• 1 New rights
• 2 New resources
• 3 New priority (a) nationally and (b)
  locally

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Highlights to date

• New rights CYP Act 2008 duty to provide short
  breaks
• New resources AHDC - 430m ringfenced plus
  millions for NHS
• New priority national indicator and EDCM
  charter sign-up

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If I could change one thing

• Disabled children and young people want
• Things to do and places to go
• To be respected
• A good education
• Parents want
• To not have to fight for support
• To be included in their communities
• To find educational provision that meets their
  childs needs

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29,000 supporters signed up online
www.edcm.org.uk
Please sign up and ask everyone you know to do
the same!
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Thanks and questions

• Cath Walder, England development co-ordinator
• e england_at_ccnuk.org.uk ? t 01904 567314
• Contact EDCM
• Laura Courtney, Campaign Manager
• Louise Franklin, Policy Manager
• Pam Shaw, Campaign Officer
• e pamela_at_edcm.org.uk ? t 020 7843 6318