Anticipatory Health Care

1

• Anticipatory Health Care
• Calendar

Tracie Keats Project Implementation Manager
2
(No Transcript)
3
I matter too !
If you dont think these things happen
Then think again
4
My precious baby was laid in the neonatal
intensive care unit. The doctor told me Your
baby has downs syndrome.
What does that mean? I asked. Well, he
replied, Hell never be a brain surgeon.
Sandra, Neils mum
5
Our health visitor had been great so
supportive from day one. Then my daughter was
referred to the Child Development Centre
I asked for my health visitor to be my key
worker. I was told no it had to be a special
needs nurse. It didnt matter what I wanted.
Karen, Lucys mum
6
I had to go to a special school on a special
bus. I wanted to go to a school with all the
other children.
Im not special. Im just like you but I dont
learn as quickly as you. Why should I have to do
things separately from you?
Jonathon Aged 20
7
The doctor told me to go away and read up about
autism. That is how my son was diagnosed. I
feel disgusted that a doctor could treat a family
like that in this day and age.
Chris, Andrews mum
8
My beautiful son was very poorly with a chest
infection so I took him to our doctor.
The doctor told us that it was because Of the
way he is he tried to suggest his learning
disability was the problem, not the chest
infection.
Julie, Toms mum
9
We talked through Karens needs and routines
with the admissions nurse but this information
was never passed on.
In the end we had to stay at the hospital all
the time just to make sure Karen would survive.
Bill, Karens father
10
Nobody noticed that Max had developed a kidney
problem or was malnourished until he reached the
Intensive Therapy Unit. Thats what killed him
Why would nobody listen to us when we told them
something was terribly wrong?
Alison, Maxs mum
11
After Lauras operation I was very worried that
Laura was not getting better as she did not
speak.
The doctors and nurses had not realized Laura
had had a stroke. They said they didn't think
Laura could speak because she has a learning
disability.
Claire, Lauras carer
12
My GP is always in a rush. Id like him to take
more time when he sees me. I feel rushed because
I dont have enough time to explain whats wrong
and I dont always understand what he says to
me.
Elice
13
Jack hates taking his clothes off if he is
somewhere strange. He went for his flu jab but
got upset when the nurse tried to take his coat
off.
Before I could do anything the nurse just gave
the injection through his jacket. I couldnt
believe it.
Sam, Jacks carer
14
The doctor kept asking me questions that I
didnt understand. It got me upset and he said
Oh take her away!
The nurse was really nice to me and asked me to
draw a picture about how I felt. I did it and he
showed it to the doctor.
Lucy
15
Our daughter is so full of energy and life and
is a really happy person.
But at the doctors one day, we heard him say
Thats not coming in to my room. Itll trash the
place I was so angry and upset.
Jean, Victorias mum
16
(No Transcript)
17
I could get cancer too!
I could get cancer!
18
People with learning disabilities are 200 times
more likely die young!
Old age is a long way off for me!
19
I can help myself by eating a balanced diet and
staying healthy!
Less than 10 of people with learning
disabilities eat a balanced diet!
20
I can access screening programmes easily!
People with Learning Disabilities are more likely
to be excluded from screening programmes e.g 19
v 77 for cervical screening!
21
Despite accessing screening programmes there are
still risks in life!
The greater risks for people with Learning
Disabilities include respiratory disease or
coronary heart disease.
22
We are really both the same so why are our
experiences so different?
23
Inequalities
24
Drivers for improvement

• Government targets
• Valuing People (DoH 2001)
• Valuing people, the story so far (DoH 2005)
• Valuing people Now From progress to
  Transformation (DoH 2008)
• MENCAP Death by indifference

25
Purpose

• Reduce health inequalities
• clinical governance
• care pathways
• Improve communication
• Standardise information/documentation
• Record patterns in behaviour and symptoms
• Reduce diagnostic overshadowing
• Screening

26
What does it include?

10 key areas of health
27
(No Transcript)
28
(No Transcript)
29
(No Transcript)
30
(No Transcript)
31
(No Transcript)
32
(No Transcript)
33
(No Transcript)
34
Pilot 1 Evaluation
35
Pilot 2 Evaluation
36
Further developments

• DVD
• Self Care
• Elderly

37
Contact details

• Tracie Keats
• Project Lead
• Tracie.keats_at_mccn.nhs.uk